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Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 8 of 8. This is the beginning of the thread.
Posted by Karrot on January 30, 2013, at 19:51:55
Hi there! I take LDN for Fibromyalgia. I know, yes, I know, that every frickin' site I look at has a loooong list of all the meds you can't take with LDN - and that includes alllll the pain meds/opiates. Here's my question: If we take away the fear and hysteria, what is the truth? If I take a tiny dose of LDN at 10pm, and am having a really bad pain relapse let's say for 2 days - why can I not take a low dose of pain meds let's say in the afternoon? I'm NOT suggesting taking them at the same time and yes, I know, the LDN blocks the opioid receptors. BUT, 10 hours later the receptors have been free enough for some people to get relief from Vicodin, let's say.
IF you were a doctor, chemist, pharmacist.....I'd really appreciate someone explaining to me why, scientifically, it is actually dangerous to take a tiny amount of opiates many hours after the LDN....for only a couple of days.
The only people who have responded so far just tell me not to do it. Headbang! I get it. I get that everyone's being afraid of getting sued, etc. - but my goodness, I'd really just love some honest answers. Bc when I talked to the local compounding pharmacists they reluctantly admitted that in the verrrry specific scenario I'm discussing, they don't see where the danger is either. They weren't sure the pain med would work (it did, in my case).
If you're going to bash me, please don't. I've had enough of that to last at least one lifetime. ;) I'm just looking for brainy people who are willing to think outside the box - and ideally for some studies. But, there's no money to be made, so there are no studies. Maybe people in other countries can weigh in? Thanks brainiacs! <3
Posted by jono_in_adelaide on January 30, 2013, at 20:16:25
In reply to LDN and pain meds - the truth!, posted by Karrot on January 30, 2013, at 19:51:55
I dont know the answer to the question, but given your experiment worked, you could either continue down that path, or, you could use a non narcotic analgesic when you're in pain (say diclofenac rapid 50mg or ibuprofen 600mg)
Posted by Karrot on January 30, 2013, at 22:53:43
In reply to Re: LDN and pain meds - the truth!, posted by jono_in_adelaide on January 30, 2013, at 20:16:25
Except my doctor freaked out. She's a GP, not a specialist - but I wish we could have a conversation vs. just a 'no'. Unfortunately, nothing else helps when the fibro gets bad except opioids. And most doctors I've met don't understand the mechanism of Low dose Naltrexone - which is apparently very different from 'regular dose'. So frustrating. I'd love to find a more 'maverick' doctor here. Ha!
I also wish i could find out how to get an email when someone comments on my post. ???
Anyone?
Thanks! Karrot
Posted by Karrot on January 30, 2013, at 23:35:24
In reply to LDN and pain meds - the truth!, posted by Karrot on January 30, 2013, at 19:51:55
Posted by Phillipa on January 31, 2013, at 9:25:29
In reply to Re: LDN and pain meds - the truth!, posted by Karrot on January 30, 2013, at 22:53:43
You mean a notification that someone has posted on your thread? If so when you write a reply make sure you click the email notify of later follow ups to this thread on the portion you wrote your response or original question on and if would like to direct the message to the person who wrote it also click add name of previous poster. That is what I did so this is directed to you . Phillipa
Posted by baseball55 on January 31, 2013, at 19:02:22
In reply to Re: LDN and pain meds - the truth! » Karrot, posted by Phillipa on January 31, 2013, at 9:25:29
I don't know why anyone would say taking opiates with LDN is dangerous. It's just that the naltraxone blocks opiate receptors, so opiates don't work. It's true that if you give an opiate addict naltrexone, you can put them into immediate withdrawal, but that's an altogether different situation. The problem though with opiates and naltrexone is that the naltrexone stays in your system for a while, so you can't take it in the morning, then take opiates in the evening and expect the opiates to have any effect.
I also don't understand why anyone would prescribe LDN for pain. Naltrexone blocks opiate receptors but is not, itself, an opiate and does not reduce pain.Hope this helps.
Posted by Karrot on January 31, 2013, at 19:46:01
In reply to Re: LDN and pain meds - the truth!, posted by baseball55 on January 31, 2013, at 19:02:22
Hey Baseball! Actually, my fibro pain has reduced at least 50% from the Ldn. Before it I had to be on sustained release morphine 24/7.....and even that didn't work as well as the Ldn alone. But, the breakthrough pain is a problem. Ldn is supposedly metabolized w/in 4 hours...and it's a weak receptor blocker at this dose (5mg). Opioids have worked for me 10 hours post Ldn dosing - but I can't find a doctor willing to look deeply enough into the issue to actually be willing to prescribe them. It sucks. I'm trying to find an email address for my old doctor, who was sooooo 'outside the box' and just curious enough that he might have been okay with it. :(. So maybe another question is how to get hold of this brilliant doc. Or find another one. The key seems to be finding someone who is willing to do the research rather than just going by label warnings. Any thoughts? Thanks!!!
Posted by baseball55 on February 1, 2013, at 18:30:46
In reply to Re: LDN and pain meds - the truth!, posted by Karrot on January 31, 2013, at 19:46:01
Huh. I've never taken a dose that low. I used to take 50mg to prevent opiate relapse.
This is the end of the thread.
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