Posted by fires on July 30, 2004, at 14:36:57
In reply to Re: are you ok fires?, posted by lucy stone on July 30, 2004, at 12:52:16
> My daughter has NCS, a condition with some symptoms similar to POTS. The web site you gave below has a very good section on NCS with some new jounal articles which I have forwarded to her doctor, so I thank you for giving it. In order to definitively diagnose the NCS she had a battery of tests including but not limited to: EKG, sleep deprived EEG, cardiac and carotid ultrasounds, treadmill stress tests, cardiac event monitor, and a tilt table test with isoproterenol. The tilt table test proved definitive. The web site specifically states that patients who suspect they have POTS should not self diagnose, yet you stated that you self diagnosed. It addition, you say that it was diaganosed with an event monitor, but the web site does not say that POTS can be diagnosed by an event monitor. An event monitor is used to determine the effect of POTS on cardiac activity. How was your POTS definitively diagnosed? It is important that your condition be diagnosed correctly if you are to receive proper treatment. <<
I first self-diagnosed, then saw a Cardio. who Dxed me. DX = tachycardia and symptoms while standing for many hours after being hooked up to event monitor which recorded tachy. Also, 2 echos done to rule out other causes. Also, Holter done a year before Dx showed "tachy during much of 24 hr. period."
Self DXed using the standing still "poor man's tilt table test" -- preferred by those in the know -- because people don't tilt. People lay, stand, sit, but don't tilt.
The fact that Florinef has helped is yet more proof of POTS.
NCS is much different than my type of POTS (there are subtypes) because I don't get hypotension or syncope.
Glad you found good info. on the link.
bye
poster:fires
thread:368898
URL: http://www.dr-bob.org/babble/psycho/20040728/msgs/372413.html