Posted by floatingbridge on July 26, 2011, at 13:19:31
In reply to Went off nardil 1 week ago. HR/BP problems persist, posted by mantus on July 26, 2011, at 12:48:33
Mantus, do not despair. I think it takes a few weeks for the circulating maoi soup to diminish. (Until someone else names the chemicals properly.) I don't see why your heart rate will not return to it's pre-Nardil state. I don't think you broke anything. I don't know anything about how to taper an maoi properly. Did your docs say just stop? Is that how it's done? I really believe your HR/BP will recover. It might take a few weeks.
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> So, I went off of Nardil cold turkey after being on varying dosages but mostly 75mg for about 7 months. I did experience some pretty bad headaches and some very vivid dreams early on, and still deal with considerable brain fog and such now. But all in all I haven't had as bad of an experience thus far as I expected. However, the main reason I discontinued the Nardil was due to severe hr and bp issues it caused, and never improved at any point. Now, I have been off of Nardil completely for 6-7days and I STILL have the same problem, an extreme increase in my heart rate upon standing which remains as long as I am standing. It is not orthostatic hypotension, but exactly mirrors the symptoms of POTS (Postural orthostatic tachycardia syndrome). Yesterday for example my hr jumped from about 65 while supine to 130, 135, 137 in 3 measurements over several minutes. Yesterday was horrible. If I stand I have extreme chest tightness, leg weakness, overall body jitteriness and weakness, and basically can't do ANYTHING and have to sit back down. I went to see the p-doc yesterday and he still thinks it will go away, but I don't. I innately feel that Nardil somehow triggered a change in my autonomic nervous system which may likely be permanent. Every day I check my pulse and bp upon standing I am overwhelmed my an extreme level of anger, because AGAIN it feels like a doctor has not listened to me and has likely caused a substantial problem to my body. i am not angry for trying nardil, as I was all about it too. However, for over 3 months I kept saying "there is something wrong with my hr, it is not the same orthostatic hypotension se of Nardil, what should I do?" And for months I was ignored. Finally, my Family Doctor and P-doc one day actually listen to me and say "well, you are right, this is very bad, and you should discontinue the nardil." What if they would have listened to me months ago? I feel like it is very likely that this problem wouldn't be persisting even after complete discontinuation of the medicine. I know that I might need to be off of it completely for longer, but I am absolute enraged every day I wake up to the same problems. In between and during my bouts of depression/anxiety, I have pushed myself to continue to exercise, play sports and exert myself in a way I have my entire life. If this turns out to be another example of doctors completely being negligent in my opinion to my concerns for months and months, I will never again seek any type of help from them. I will make completely my own decisions, and hope to find another doctor that will just listen and understand I know my physical and mental state infinitely more than they do, and they should basically just shut up, and do what I say. Over the past 2 years, I truly believe, no I know, the reason I have been dealing with varying levels of anxiety/depression longer than anytime in the past is because this is the 2nd significant problem completely caused as a result of a doctor being negligent to my very openly spoken concerns. I know that there is possibility that this will subside with time, but as time continues to pass and their is absolutely no improvement, I see that fixing this problem is not as easy as discontinuing Nardil, and everything goes back to normal. I am so angry every day I can't hardly even stand for long periods of time, and don't know where to go from here, especially if anxiety/depressive symptoms were to return.
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> Mantus
poster:floatingbridge
thread:991911
URL: http://www.dr-bob.org/babble/20110714/msgs/991915.html