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Re: IMPORTANT WARNING!!

Posted by susan C on July 12, 2001, at 22:13:06

In reply to IMPORTANT WARNING!!, posted by Pattisun on July 12, 2001, at 14:52:06

Dear Pattisun, I am looking at my test for TSH and it is .75miU/ml. As I understanding the range is 1.0-3.0

If I may take you up on your offer,Would you explain it in plain english. I have been trying to educate myself on hypo and hyper and the thyroid...and I cant get it straight. Docs say, not to worry. If I look for an internist and or endrochinologist what, in your opinion are good questions to ask from a bipolar/thyroid point of view. Thank you in advance..


> 1. Why do you take thyroid supplements? Did you have your thyroid removed (all or partially, or killed via RAI)?
> 2. Is your treating doc a family gen'l pract or an internist or endocrynologist?
> Here's my own personal hell (story):
> I have Graves disease and had RAI (no thryoid gland). Things fine since '95. In Dec '99 TSH showed my thyroid low (13-15 maybe). The family doc upped (Levoxyl) to .137. After 6 weeks I complained of "hyper" symptoms. She took a test, TSH at 3 and she said I was fine. I continued to complain that I felt lousy (hyper-racing heart, emotional outbursts, etc.). They took another test, this time TSH 1. Doc said your fine.
>
> Okay, I gave up, figured it was just my imagination. Then, my eyes starting bothering me, referred to thyroid eye doctors--my left eye was bulging (thyroid eye disease). GREAT!! So, now I was having hyper symptoms and my eye made me look like a wierd lizard or something.
>
> Family docts telling me I was crazy (sent my to a psychiatrist); they told me I had a possible brain tumor; (NOT-had to endure CAT scan, MRI and snotty Neurologists).
>
> Well, finally retested and whalla I was over the mark and 0.32 --hyper!! I TOLD THEM THAT ALL ALONG!
>
> So, they over-react. Have me stop all supplement. Then restart at .100. Long story, I ended up so severely low thyroid I was out on disability. I think them giving me too much supplement set off my eye disease.
>
> Bottom line, thyroid level is VERY, VERY IMPORTANT. Don't leave your care to family docts. Go to an internist or an endocrynologist. If you feel hyper, complain LOUDLY. Change docts if you need to. It's more than just numbers, it's also how you feel. And, for me, they should have just had me take .125 then .137--alternating doses and I would have been fine.
>
> Good luck!


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poster:susan C thread:69577
URL: http://www.dr-bob.org/babble/20010708/msgs/69930.html