Posted by AMenz on June 8, 2001, at 0:01:40
In reply to Re: question for mocdoc? » mocdoc, posted by Miragee on June 7, 2001, at 17:46:59
What are the symptoms of Multiple Chemical Sensitivity and what specialty of doctor diagnoses this.
> Well - - - Do you want the long story or the short story?
>
> The semi-short answer is that I was diagnosed with Multiple Chemical Sensitivty in 1990. In 1998, I finally found a PDoc who understood this malady. In research with many MCS patients at a clinic in Dallas, Texas, he had discovered that Neurontin, in high dosages (from 3200 mg. per day up to 6000 mg.) gave relief. I was one of the lucky ones who responded well and my chemical sensitivity abated almost immediately. I started taking Nerontin in November 1998.
>
> However . . . I was still very sick and dependent on penicillin to control excruiciating mental symptoms. (This effect of the penicillin was discovered "by accident" when I had to take it for a dental problem).
>
> For more than two years, I tried to get someone to diagnose why I needed the penicillin. (And I tried to get someone to prescribe it -- you would have thought I was asking for powdered Oxycontin -- no one would prescribe that common antibiotic!)
>
> I finally found a "Lyme Literate" doctor who diagnosed me with Lyme Disease. I have the type that affects the Central Nervous System. In other words, it is in my brain.
>
> Now that I am on the antibiotics that work for me to treat chronic Lyme Disease (Penicillin and Flagyl and Bactrim), I have my life back.
>
> I have met others who have Lyme Disease, who also suffer from the chemical sensitivity. There might be some relationship between the two conditions. The Lyme "bugs" mess with your immune system something terrible if the disease is not discovered *immediately*. I do not know when I got Lyme Disease. I could have gotten it when I was a child or . . .
>
> So, I take my thirty plus pills six times a day and feel better than I have in twenty years!
>
>
> > Dear Miragee,
> > Thanks for the tip about Magnesium a no-no with Neurontin. By the way, what is the condition you're taking it for-surely not simple insomnia!
> > Be well,
> > mocdoc
poster:AMenz
thread:611
URL: http://www.dr-bob.org/babble/20010605/msgs/65718.html