![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 15 of 15. This is the beginning of the thread.
Posted by musky on September 1, 2006, at 0:18:53
Hi all:
havent seen anyone lately posting .. jules. johnny, cashy, etc... hope all is well with you gys.
Me Im doin not too bad... Physically Im not quite as tired anymore or not that much bad anxiety.. again kinda worse in ams but even this hasnt been as bad this past week now compared to 3months ago.. I try not to get too excited about this but I feel that maybe just maybe im gonna recover from this night mare after all.
I know one thing I DEFINITELY am clearer headed more than Ive ever been since being on Remeron. I almost feel like my old mind (its been soooo long) I almost forgotten what it is like to be connected to the world.
My Foggy brain episodes have been less frequent too. I still get some weird mood stuff now and then but acupuncture isironing out the last of these "wrinkles" I think.
Tommorrow I am gong to start a 2month detox to see if this will also help rid me of the last of this ...
I know this truly takes a long time for the body to come back after being on an a/d.. My advice is to just keep going... if you dont you stay stuck on meds and the unrealistic world the docs put you in... to me thats not living... its just existing... I try to deal with my life issues head on and just maintain a strong mind no matter what.. we need to not get caught up in poor me attitudes and "needy" beliefs when it comes to mind altering drugs... LIke i said many times before in other posts I never felt good on Remeron and dont know why i kept taking it... like countless others I did what my "doctor said"! dah!!!! Now I know better... I listen to my gut and to God and to positive people ONLY that are not on drugs. And I also watch nature and try to learn from what is right in front of us to teach us... to me that is more therapy than ANY drug out there can ever do.sorry to rant and rave... Im still kinda scared about this. but I must say I have been feeling better lately after 3months off and have lost even more wt that the Remeron so horribly put on.
I was 145lbs from 107 (prior to Remeron)and now am down to 119lbs .. so I just have to loose another 10 lbs or so and I will be back to my preremeron wt... what a nightmare!!!!Hang in Everyone and keep postin...
Musky
Posted by Holly VanBen on September 1, 2006, at 13:16:35
In reply to Off Remeron update, posted by musky on September 1, 2006, at 0:18:53
> Hi all:
>
> havent seen anyone lately posting .. jules. johnny, cashy, etc... hope all is well with you gys.
>
> Me Im doin not too bad... Physically Im not quite as tired anymore or not that much bad anxiety.. again kinda worse in ams but even this hasnt been as bad this past week now compared to 3months ago.. I try not to get too excited about this but I feel that maybe just maybe im gonna recover from this night mare after all.
> I know one thing I DEFINITELY am clearer headed more than Ive ever been since being on Remeron. I almost feel like my old mind (its been soooo long) I almost forgotten what it is like to be connected to the world.
> My Foggy brain episodes have been less frequent too. I still get some weird mood stuff now and then but acupuncture isironing out the last of these "wrinkles" I think.
> Tommorrow I am gong to start a 2month detox to see if this will also help rid me of the last of this ...
> I know this truly takes a long time for the body to come back after being on an a/d.. My advice is to just keep going... if you dont you stay stuck on meds and the unrealistic world the docs put you in... to me thats not living... its just existing... I try to deal with my life issues head on and just maintain a strong mind no matter what.. we need to not get caught up in poor me attitudes and "needy" beliefs when it comes to mind altering drugs... LIke i said many times before in other posts I never felt good on Remeron and dont know why i kept taking it... like countless others I did what my "doctor said"! dah!!!! Now I know better... I listen to my gut and to God and to positive people ONLY that are not on drugs. And I also watch nature and try to learn from what is right in front of us to teach us... to me that is more therapy than ANY drug out there can ever do.
>
> sorry to rant and rave... Im still kinda scared about this. but I must say I have been feeling better lately after 3months off and have lost even more wt that the Remeron so horribly put on.
> I was 145lbs from 107 (prior to Remeron)and now am down to 119lbs .. so I just have to loose another 10 lbs or so and I will be back to my preremeron wt... what a nightmare!!!!
>
> Hang in Everyone and keep postin...
>
> Musky
Hi Musky,That is truly a story of encouragement and hope. You are doing awesome and congratulations on more then 90 days and the weight loss is amazing. I am on day 24 from opiates, narcotics, neurontin and others and it is getting better for me also. I also feel my mind clearning and every once in awhile I get a brief period where I feel my old self for a few seconds. I gained 80 lbs while on Neurontin and have lost over 30 now. I have a long way to go but really look forward to it. I can't tell you how much it means to read success stories like yours. Keep up the good work and thank you.
Holly
Posted by musky on September 4, 2006, at 1:04:57
In reply to Re: Off Remeron update, posted by Holly VanBen on September 1, 2006, at 13:16:35
> >No problem Holly... Hang in there and you will make it... Wow! 80lbs on neurontin.. thats crazy.. glad you are losing the wt too. Yes the clear head does come with time and I am feeling more myself than before..
keep posting... and stay clean!
Musky
Hi all:
> >
> > havent seen anyone lately posting .. jules. johnny, cashy, etc... hope all is well with you gys.
> >
> > Me Im doin not too bad... Physically Im not quite as tired anymore or not that much bad anxiety.. again kinda worse in ams but even this hasnt been as bad this past week now compared to 3months ago.. I try not to get too excited about this but I feel that maybe just maybe im gonna recover from this night mare after all.
> > I know one thing I DEFINITELY am clearer headed more than Ive ever been since being on Remeron. I almost feel like my old mind (its been soooo long) I almost forgotten what it is like to be connected to the world.
> > My Foggy brain episodes have been less frequent too. I still get some weird mood stuff now and then but acupuncture isironing out the last of these "wrinkles" I think.
> > Tommorrow I am gong to start a 2month detox to see if this will also help rid me of the last of this ...
> > I know this truly takes a long time for the body to come back after being on an a/d.. My advice is to just keep going... if you dont you stay stuck on meds and the unrealistic world the docs put you in... to me thats not living... its just existing... I try to deal with my life issues head on and just maintain a strong mind no matter what.. we need to not get caught up in poor me attitudes and "needy" beliefs when it comes to mind altering drugs... LIke i said many times before in other posts I never felt good on Remeron and dont know why i kept taking it... like countless others I did what my "doctor said"! dah!!!! Now I know better... I listen to my gut and to God and to positive people ONLY that are not on drugs. And I also watch nature and try to learn from what is right in front of us to teach us... to me that is more therapy than ANY drug out there can ever do.
> >
> > sorry to rant and rave... Im still kinda scared about this. but I must say I have been feeling better lately after 3months off and have lost even more wt that the Remeron so horribly put on.
> > I was 145lbs from 107 (prior to Remeron)and now am down to 119lbs .. so I just have to loose another 10 lbs or so and I will be back to my preremeron wt... what a nightmare!!!!
> >
> > Hang in Everyone and keep postin...
> >
> > Musky
>
>
> Hi Musky,
>
> That is truly a story of encouragement and hope. You are doing awesome and congratulations on more then 90 days and the weight loss is amazing. I am on day 24 from opiates, narcotics, neurontin and others and it is getting better for me also. I also feel my mind clearning and every once in awhile I get a brief period where I feel my old self for a few seconds. I gained 80 lbs while on Neurontin and have lost over 30 now. I have a long way to go but really look forward to it. I can't tell you how much it means to read success stories like yours. Keep up the good work and thank you.
> Holly
Posted by cashy72 on September 6, 2006, at 10:06:36
In reply to Re: Off Remeron update, posted by musky on September 4, 2006, at 1:04:57
Hey there Musky, glad things are begining too even out for you now... thats good. I've been off for a week or two longer than you, and am also getting back some sort of normality, and clearer thinking..much less anxiety, although sometimes still some in the mornings...but i guess this has got too be expected...i think that perhaps a certain percentage of the population experience this anyhow, whether they've taken some a/d's or not?! But i for sure will not go down that route again, if indeed i ever need too. Just natural stuff, and calm thoughts all the way for me... few glasses of wine in the evenings if required!!
Take it easy everyone...
Cashy72.
Posted by musky on September 7, 2006, at 0:02:55
In reply to Re: Off Remeron update, posted by cashy72 on September 6, 2006, at 10:06:36
>Good to hear from you cashy!
Was wondering what happened to the "gang" .. havent seen ANY postings lately.. Yes, like you say just takes time... I still get the downs and some anxiety, but not as often and not as long lasting. so Im hoping that this will finally dwindle out.. Its been a very long road.. I just hope that the a/d didnt do permanent damage and I will never be completely normal?? but I try not to get into this thinking too much.. I just keep busy and try to keep healthy habits.
Ive just started a detox this week and will do this for 2months to see if this will help rid the last of this nasty drug from my body.
My wt is much better since weaning and now completely off.. just over 3months now.. I have finally gotten a normal appetite again. NOt craving all the sweets like before or the Remeron hunger like I call it. I actually taste food and dont GORGE like I did when on the Remeron.. so this makes me feel good again.
I am sleeping better and wake up much clearer headed. still some days foggy brain but these are even getting less often.
Im still not completely over the feeling restless but its definitely better than it was compared to 3months or even 6months ago. at least im not constantly tapping my foot or jerking my leg like I use to.. that was totally ridiculous what it did to me and embarassing to say the least!!!!
Anyways I like your words of encouragement and your attitude Cashy.. me too.. I dont want to repeat the road of a/d ever ever again. no matter what.. I will suffer and survive somehow than be a prisoner on drugs and side effects.. to me that is no life... Like you say,, calm thoughts and meditation, natural stuff, etc. all help. Also I can hardly wait to introduce a beer or a glass of wine like I use to do.. just waiting till my detox is done.
I didnt drink( and was warned strongly NOT to ) take alcohol while on a/d .. another depressing thought .. I can understand this, but boy I think that is what I needed to relax sometimes.. and to me not that I drank alot , i found and enjoyable beer and feeling good was better therapy than anything.. I wonder now that maybe I should have just chilled with some beers when I first had my neck issues. dizzyness and that maybe I would never have ended up on so many Rx. pills, mainly a/d/... but hindsight you know...take care
keep up the supportive posts
Im not on every day like I use to, but I still like to give support( and receive it) .Musky
Hey there Musky, glad things are begining too even out for you now... thats good. I've been off for a week or two longer than you, and am also getting back some sort of normality, and clearer thinking..much less anxiety, although sometimes still some in the mornings...but i guess this has got too be expected...i think that perhaps a certain percentage of the population experience this anyhow, whether they've taken some a/d's or not?! But i for sure will not go down that route again, if indeed i ever need too. Just natural stuff, and calm thoughts all the way for me... few glasses of wine in the evenings if required!!
> Take it easy everyone...
> Cashy72.
Posted by jules354 on September 9, 2006, at 17:44:44
In reply to Re: Off Remeron update, posted by musky on September 7, 2006, at 0:02:55
hi everyone,
glad to know so many folks are doing well!
my last dose of remeron was last february. in general it's been ok, no more of the withdrawal symptoms. for the past few months i've been really struggling with anxiety. no actual panic attacks but sleeplessnes and lots of bad panicky feelings, loss of appetite etc. that's getting to be hard. i'm not sure if it's situational or not, or maybe a combination of factors. not sure if it's related to long-time use of remeron or not. is that possible or paranoid?
anyway, glad to hear from you guys.
johnnyj if you're out there i hope you're doing okay.
take care,
jules
Posted by johnnyj on September 9, 2006, at 20:44:24
In reply to Re: Off Remeron update, posted by jules354 on September 9, 2006, at 17:44:44
Hello everyone.
Well Jules, you and I are having similiar experiences. However, I have other issues. I see that some of us have done well and I am happy for them, keep fighting if you can!
Me, well, I stopped sleeping about 6 weeks ago. I think I posted that I had to start something and that was lunesta. Unfortunatley, the anxiety and restlessness has been very bad. I started having ocd issues again and that has been very, very hard.
I do believe I have a good dx now and that is anxiety/ocd(obessive thoughts), but no compulsions that are distinct like hand washing, etc. I was somewhat relieved to understand that I was not purely crazy, but just suffering from ocd. I have been researching and reading on things and I was SHOCKED to see myself so clearly in what I have read. It does seem that with ocd and panic/anxiety meds are almost always necessary. I am figthing accepting this and what little sleep I can get on lunesta keeps me just in the "barely ok" state. Therapy will be long and hard. I have no panic attacks just a nagging anxiety that prevents me from enjoying things. I get some relief with weight lifting but aerobic stuff makes it worse. The front of my head is "activated" I just don't get the feeling of sleep or nodding off anymore. After the luenesta wears off I awake to my head being "on" just like before it knocked me out.
I am in the process of accepting myself for who I am right now and I am not going to beat myself up over this (or at least try and not obssess over it!).
One thing I have found out is that remeron can make some ocd issues worse. I had that experience but at least then I slept. I sometimes hope it is just withdrawal still but I know part of it is not because I had this problem before and it is complex. I have wondered if long term use of remeron has done something also but we will never know. We just have to go on from where we are at.
I will not feel bad starting something else even though I am terrified because of what remeron did to me. But, maybe, just maybe, I can get some peace with something else. My pdoc says I was never treated correctly and that is why my response has been low.
take care all and get healthy
cheers
johnnyj
Posted by Impermanence on September 10, 2006, at 9:41:29
In reply to Off Remeron update, posted by musky on September 1, 2006, at 0:18:53
> Hi all:
>
> havent seen anyone lately posting .. jules. johnny, cashy, etc... hope all is well with you gys.
>
> Me Im doin not too bad... Physically Im not quite as tired anymore or not that much bad anxiety.. again kinda worse in ams but even this hasnt been as bad this past week now compared to 3months ago.. I try not to get too excited about this but I feel that maybe just maybe im gonna recover from this night mare after all.
> I know one thing I DEFINITELY am clearer headed more than Ive ever been since being on Remeron. I almost feel like my old mind (its been soooo long) I almost forgotten what it is like to be connected to the world.
> My Foggy brain episodes have been less frequent too. I still get some weird mood stuff now and then but acupuncture isironing out the last of these "wrinkles" I think.
> Tommorrow I am gong to start a 2month detox to see if this will also help rid me of the last of this ...
> I know this truly takes a long time for the body to come back after being on an a/d.. My advice is to just keep going... if you dont you stay stuck on meds and the unrealistic world the docs put you in... to me thats not living... its just existing... I try to deal with my life issues head on and just maintain a strong mind no matter what.. we need to not get caught up in poor me attitudes and "needy" beliefs when it comes to mind altering drugs... LIke i said many times before in other posts I never felt good on Remeron and dont know why i kept taking it... like countless others I did what my "doctor said"! dah!!!! Now I know better... I listen to my gut and to God and to positive people ONLY that are not on drugs. And I also watch nature and try to learn from what is right in front of us to teach us... to me that is more therapy than ANY drug out there can ever do.
>
> sorry to rant and rave... Im still kinda scared about this. but I must say I have been feeling better lately after 3months off and have lost even more wt that the Remeron so horribly put on.
> I was 145lbs from 107 (prior to Remeron)and now am down to 119lbs .. so I just have to loose another 10 lbs or so and I will be back to my preremeron wt... what a nightmare!!!!
>
> Hang in Everyone and keep postin...
>
> Musky
Hi Musky, you're a beautiful, aware, intelligent being. You're going to be fine. It took me a week or so to get off Mirtazapine (30mg per day), I had horrible hallucinations and pretty severe withdrawals actually for a couple of days, nothing near as bad as lexapro though and short. For me it takes a month or so to feel any way "normal" after a few months on benzodiazepines or weed or any drugs actually. But Remeron / Zispin is pretty clean as far as I'm concerned In the "antidepressant area". One of the best and easiest to come off in a massive market of consciousness manipulating toxic poisons.Namaste
Posted by johnnyj on September 10, 2006, at 10:04:52
In reply to Re: Off Remeron update, posted by Impermanence on September 10, 2006, at 9:41:29
Wow, you are the first person that has said it has been relatively easy to come off remeron. I guess we are all different.
Posted by jules354 on September 10, 2006, at 17:27:40
In reply to Re: Off Remeron update » jules354, posted by johnnyj on September 9, 2006, at 20:44:24
hi johnnyj,
i'm sorry to hear the ocd and the sleeping have been bad. my thoughts are with you...
the work of self-acceptance is so important. i'm surprised by how it comes up with new challenges...maybe a lifelong journey.
take care,
jules
Posted by musky on September 13, 2006, at 0:34:44
In reply to Re: Off Remeron update, posted by jules354 on September 9, 2006, at 17:44:44
>
good to hear from you jules.. sounds like you are fairly stable.. but still some anxiety issues. hopefully not the cause of long term use of remeron. I thought about that too. that will i ever have complete clearness of my mind and feel like me totally again?.. I just keep going and saying it takes a LONg time, many months to recover..
Good luck.
I know that my anxiety is less often. but still a problem with tension in neck, and some dizzy, sorta weak/faint.. but much less now than when i first went off Remeron.. less foggy brain episodes but still not completely gone. so I think now I have evened out and am just in coasting mode and that this will just be a LONG phase of feeling this way until the next improvement.. thats my gut instinct on thisMusky
hi everyone,
>
> glad to know so many folks are doing well!
>
> my last dose of remeron was last february. in general it's been ok, no more of the withdrawal symptoms. for the past few months i've been really struggling with anxiety. no actual panic attacks but sleeplessnes and lots of bad panicky feelings, loss of appetite etc. that's getting to be hard. i'm not sure if it's situational or not, or maybe a combination of factors. not sure if it's related to long-time use of remeron or not. is that possible or paranoid?
>
> anyway, glad to hear from you guys.
>
> johnnyj if you're out there i hope you're doing okay.
>
> take care,
> jules
Posted by musky on September 13, 2006, at 0:46:55
In reply to Re: Off Remeron update » jules354, posted by johnnyj on September 9, 2006, at 20:44:24
>Sorry johnny to hear you are stuggling. Me too has had, OCD issues, but I dont believe for a minute that it Must be treated by meds.. For me success has been with cognitive therapy.. I found that when I was under extreme stress/anxiety thats when the OCD first happened and I didnt know it then.. years ago. then it went completely away on its own once my life issues were resolved. Years later it cropped up again.. and again I was under alot of personal stress. SO this hit the nail on the head, and when I first was treated with Remeron it did not get rid of OCD. and my short experience with amytriptylene made it WORSE!!! , so since being off the remeron, first the OCD kinda increased, but my own meditation, cognitive therapy skills , etc. and my pure will and stubborn nature , I have been able to overcome this OCD.. on MY OWN!!! NO MEDS.. and I think drs will say that you were treated wrong,,or another dr. will disregard a previous diagnosis, and claim that "they have the med figured out"... watch out for this... I know you are stuggling, and maybe your OCD is different than mine or you want relief, but I say fight this head on... I dare the OCD to stress me out and then it goes away! I dont want to discourage you from your dr. if you trust him/her. but the way I see it is they will have you medicated up for good.. and do you seriously want togo through yet another Remeron experience??!!
Sorry, your choice, bud.. hang in there.. be strong. and keep fighting..dont obscess about sleep... as hard as it is.. I actually put on a no care attitude about sleep and together with my past acupuncture treatments I am sleeping fairly well now.
Musky
Hello everyone.
>
> Well Jules, you and I are having similiar experiences. However, I have other issues. I see that some of us have done well and I am happy for them, keep fighting if you can!
>
> Me, well, I stopped sleeping about 6 weeks ago. I think I posted that I had to start something and that was lunesta. Unfortunatley, the anxiety and restlessness has been very bad. I started having ocd issues again and that has been very, very hard.
>
> I do believe I have a good dx now and that is anxiety/ocd(obessive thoughts), but no compulsions that are distinct like hand washing, etc. I was somewhat relieved to understand that I was not purely crazy, but just suffering from ocd. I have been researching and reading on things and I was SHOCKED to see myself so clearly in what I have read. It does seem that with ocd and panic/anxiety meds are almost always necessary. I am figthing accepting this and what little sleep I can get on lunesta keeps me just in the "barely ok" state. Therapy will be long and hard. I have no panic attacks just a nagging anxiety that prevents me from enjoying things. I get some relief with weight lifting but aerobic stuff makes it worse. The front of my head is "activated" I just don't get the feeling of sleep or nodding off anymore. After the luenesta wears off I awake to my head being "on" just like before it knocked me out.
>
> I am in the process of accepting myself for who I am right now and I am not going to beat myself up over this (or at least try and not obssess over it!).
>
> One thing I have found out is that remeron can make some ocd issues worse. I had that experience but at least then I slept. I sometimes hope it is just withdrawal still but I know part of it is not because I had this problem before and it is complex. I have wondered if long term use of remeron has done something also but we will never know. We just have to go on from where we are at.
>
> I will not feel bad starting something else even though I am terrified because of what remeron did to me. But, maybe, just maybe, I can get some peace with something else. My pdoc says I was never treated correctly and that is why my response has been low.
>
> take care all and get healthy
>
> cheers
>
> johnnyj
Posted by musky on September 13, 2006, at 0:55:48
In reply to Re: Off Remeron update » johnnyj, posted by jules354 on September 10, 2006, at 17:27:40
>I agree jules,, acceptance of our situation , but not surrender... and most of all faith and the will to win.. yes I think that this is a journey and we just have to stay on the path to health and well being.. We may never be the same after all this meds, or we may indeed heal completely one day and be wiser and spiritually healthier,, one does not know for sure.. All we have is the here and now and the belief that we will be well again.. that is my hope.. that this was just a "chapter " in my life and that one day it will be a distant memory that doesnt freak me out anymore..
Im almost 4months off Remeron and the more the days pass the less I think of this nasty drug and the easier it is to stay OFF .. I dont look back as much now and psychologically have adjusted to being OFF of it ... never to even Consider it ever ever again!!.must look forward
its great to not have to take any meds!!!Musky
hi johnnyj,
>
> i'm sorry to hear the ocd and the sleeping have been bad. my thoughts are with you...
>
> the work of self-acceptance is so important. i'm surprised by how it comes up with new challenges...maybe a lifelong journey.
>
> take care,
> jules
Posted by johnnyj on September 13, 2006, at 21:29:10
In reply to Re: Off Remeron update, posted by musky on September 13, 2006, at 0:46:55
Hi Musky:
I have ocd issues in the past but I didn't realize up until now. I was afraid to really talk about it and thought I was just crazy and no one would understand. I have been told that remeron and at least nortryptline, the meds, I was on can make it worse. The problem for me is severe anxiety that leads to ocd issues. I have been doing CBT and also reading too help me understand. In some of my reading I have found so many exact experiences with me that I was shocked. How could a doctor not notice this for 15 years??
It took one session with a new doc for him to say "hey, look, you never cut yourself any slack" He really hit the nail on the head. The truth of the matter is I know he is right about my dx. I haven't felt sure of anything reagarding my mental health until recently. I was always looking for a "reason" why I felt certain ways and now it makes sense. The pdoc was very supportive of me trying therapy and outlined what he thought but said it was ultimately up to me to decide. But, he said he thought he could help me with the right meds. From all of my reading it appears that painc AND ocd is very hard to treat without meds. Right now no lunesta and NO sleep for me. I have been lifting weights to try and help pull myself up but it is not easy. I envy you sleeping without meds. GOOD JOB!.
The truth the front of my head feels "activated" and I will not nod off easy at all. If I manage to nod off, without sleep meds, my body jumps or startles awake and then the adrenaline goes crazy. Trust me, it has been four months and I am trying excerise, meditation, acupuncutre, and chinese gigong and it is not getting any better. I will try and give the excercise another month or so then I need to make a decision "to live in almost constant pain and be obsessive" or try and get relief. The choice is not clear yet. It all comes down to quality of life ya know? Right now I have no quality and if I died tomorrow I might be relieved. I don't mean I would do it myself as I would never do that when I am numb all of time I feel life is just passing me by. I am engaging in as much as I can hoping enjoyment will come back.
BTW: the new pdoc, HATES remeron. Said it has not been any good for any of his patients and has only 1 patient on it. He said he would never recommend it to anybody.
BIG question for everyone. Does anybody get real spacey after eating? Sometimes it is almost unbearable.
Cheers
johnnyj
Posted by musky on September 14, 2006, at 23:45:49
In reply to Re: Off Remeron update » musky, posted by johnnyj on September 13, 2006, at 21:29:10
>Hi Johnny:
WEll, that is interesting what you say about panic and ocd being very hard to manage without meds.. well I am managiing WITHOUT MEDS!! for my ocd.. it is dimisining more and more, by simply using my cognitive therapy techniques, and acupuncture and just plain fighting it.. and it is working!!! so I am living proof it can be done.. and remember that everyone has some form of OCD they just dont tell you that the pdocs... its completely NORMAL!! as long as it isnt extreme and intereferes with your functining..
I think that your lack of sleep is clouding your judgement and yes I know you have tried.. but remember dont try too hard , and too many things at once oK?.. try try to be patient.. also remember you are still on some meds no?? cause I think you told me awhile back that you were on lithium , then also now lunesta?? could it be that these meds themselves are creating this whole mess or contributing to it?? I would put that to your doc, and see what he says..
its good you are exercising and meditation.you are trying and I think you will be OK if you just keep hangin in... even if its by a thread..
I use to startle awake to. but I didnt give in to it.. it finally went away on its own.. I only get this once and awhile now.
Its great to hear that your doc is against remeron at least.. more dr.s need to take notice. but of course $$$$$$ talks..
I say listen to lyour gut ,,not your fear and you will win this fight.Hang in there
even try to nap here and there,,, to try to conserve energy
are you able to work?? cause me returning to work was the best thing for me as far as feeling productive again and changing my mind off of just obscessing at home by myself.Musky
Hi Musky:
>
> I have ocd issues in the past but I didn't realize up until now. I was afraid to really talk about it and thought I was just crazy and no one would understand. I have been told that remeron and at least nortryptline, the meds, I was on can make it worse. The problem for me is severe anxiety that leads to ocd issues. I have been doing CBT and also reading too help me understand. In some of my reading I have found so many exact experiences with me that I was shocked. How could a doctor not notice this for 15 years??
>
> It took one session with a new doc for him to say "hey, look, you never cut yourself any slack" He really hit the nail on the head. The truth of the matter is I know he is right about my dx. I haven't felt sure of anything reagarding my mental health until recently. I was always looking for a "reason" why I felt certain ways and now it makes sense. The pdoc was very supportive of me trying therapy and outlined what he thought but said it was ultimately up to me to decide. But, he said he thought he could help me with the right meds. From all of my reading it appears that painc AND ocd is very hard to treat without meds. Right now no lunesta and NO sleep for me. I have been lifting weights to try and help pull myself up but it is not easy. I envy you sleeping without meds. GOOD JOB!.
>
> The truth the front of my head feels "activated" and I will not nod off easy at all. If I manage to nod off, without sleep meds, my body jumps or startles awake and then the adrenaline goes crazy. Trust me, it has been four months and I am trying excerise, meditation, acupuncutre, and chinese gigong and it is not getting any better. I will try and give the excercise another month or so then I need to make a decision "to live in almost constant pain and be obsessive" or try and get relief. The choice is not clear yet. It all comes down to quality of life ya know? Right now I have no quality and if I died tomorrow I might be relieved. I don't mean I would do it myself as I would never do that when I am numb all of time I feel life is just passing me by. I am engaging in as much as I can hoping enjoyment will come back.
>
> BTW: the new pdoc, HATES remeron. Said it has not been any good for any of his patients and has only 1 patient on it. He said he would never recommend it to anybody.
>
> BIG question for everyone. Does anybody get real spacey after eating? Sometimes it is almost unbearable.
>
> Cheers
>
> johnnyj
>
This is the end of the thread.
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