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Posted by ert on October 5, 2018, at 16:23:17
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 5, 2018, at 15:31:34
> > and then there's liability insurance...
>
> You should not need a liability insurance for that.
> He hosts copyright infringements of sensitive data, coerces the participants or owners by not executing their will of deleting some posts, all posts or if desired their whole profile.
> And by that he exposes participants to the potential danger of public sensitive data containing profiles.
> I think he should soon update and amend the current policy.
> But what is that for a doctor who acts unlawful? I think that participants or sick people deserve to be respected, treated seriously and they must be granted the rights that the law sets.
> I do not say that the idea of this babble is bad in general but the policy is.
>
>
>however, it also must be mentioned that the policy is 20 years old, but he has not taken any steps yet to change it and adapt them to new circumstances.
Posted by ert on October 6, 2018, at 17:23:12
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 5, 2018, at 16:23:17
Alexandra: NZ should better tighten a bit the intellectual property laws so that they can sell more intellectual goods and not only wool and dairy products.
For Europe and neighboring countries I am very sure that dr. bob acts unlawful with the current policy. This especially also in the light of the new GDPR. Whereas for the US I am a bit less sure but from what I have read is that fair use is limited and does not apply for particular sensitive data. And the permission for usage can anyway be revoked from the copyright holder at anytime. Furthermore, every post is linked and therefore also every trivial phrase within that post with every other substantial text in another post.
In the us apply e.g.
State specific privacy laws like Personal Data Collection and Protection Ordinance
Federal Health Insurance Portability and Accountability Act of 1996 and state specific laws
21st Century Cures Act
Copyright Act
Posted by alexandra_k on October 6, 2018, at 17:31:14
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 6, 2018, at 17:23:12
how do you feel about the Khan Academy posting rules, then? that's a site for children. I think (though I didn't take a multi-guess, admittedly) they state they retain copyright over your post, too. and they can use your data (including test statistic) how they want.
Posted by rjlockhart37 on October 6, 2018, at 19:27:38
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 5, 2018, at 15:31:34
bob literally is doing an experiment with posts, and directly linking them to google, I know eveeerrrrythang there is know about Deeeee Bob
Posted by ert on October 7, 2018, at 5:44:24
In reply to Re: robert hsiung hosts copyright infringements..., posted by rjlockhart37 on October 6, 2018, at 19:27:38
interesting question, alexandra:
i am not a specialist, but as far as I understand the automatic transfer of the copyright would not be legal. I would need an agreement, contract or license with the conditions signed in mutuality. an automatic transfer could signify theft or unconscionably. however, when the data qualifies eg. as fair use, then it can be used with permission. but the ownership is not transferred.
Posted by ert on October 7, 2018, at 6:17:41
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 7, 2018, at 5:44:24
alexandra:
I do not think that med data, disability data etc. do qualify as fair use. Moreover, every post with whatever content is connected with another post and the latter connected with all others. They build together a profile, so therefore the content of a post must be considered with all other posts. Because the ownership is not transferred automatically to a user, the given permission for usage should be able to be revoked by the owner. If the right to be revoked not or only partly granted, that could signify theft or coercion. These rules apply, as far as I understand, regardless if somebody posts anonymous or partly anonymous. In some countries anonymous content loose their copyright after 80 years or more, however.
In other countries it might be similar but also different.
Posted by SLS on October 7, 2018, at 10:20:11
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 5, 2018, at 15:31:34
What would you like to see happen?
- Scott
Posted by ert on October 7, 2018, at 14:07:51
In reply to Re: robert hsiung hosts copyright infringements... » ert, posted by SLS on October 7, 2018, at 10:20:11
> What would you like to see happen?
>
>
> - ScottDear Scott,
For the fulfillment of lawfulness:
Regardless of the content a participant must be able to delete his/her posts or they must be reliably deleted by someone else.
To abide by the laws of at best most countries overrides the negative argument that the size of the database could get 20% smaller by deleting posts and it could consequently loose of its quality. The database consists of much non medication posts like melt downs, venting etc. Moreover, a positive clinical effect of this database has not been proven yet. It could be, however, that the present policy makes the participants more sick and anxious than healthy.
Research and academic achievement with an ever growing database with copyright infringements is ethically and legally questionable. Especially, when it is being considered the bad consequences and risks that it can pose, currently or many years later in a participants life. For example, consequences mentioned in the faqs or others.
maybe you scott could be given the responsible ability to delete posts and identifiers.
Posted by ert on October 7, 2018, at 14:42:54
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 7, 2018, at 14:07:51
scott:
Of course partly anonymous full public profiles of sick people not only with med data, but in addition combined with e.g. social, demographical or whatever data is better for research.
But exactly such full public profiles consisting of sensitive data copyright infringements combined with other data are ethically even more questionable. Moreover, such a public profile can be descriptively puzzled together by anyone, not only the researcher.
Posted by rjlockhart37 on October 7, 2018, at 20:02:53
In reply to Re: robert hsiung hosts copyright infringements... » ert, posted by SLS on October 7, 2018, at 10:20:11
the deputies had control over deleting posts, you don't see duputies anymore, either that or they just read our posts and study us, but i know this is not what your specifically talking about, but all these posts are linked to Google, as a database, whatever keywords are googled, posts will be linked to it. Really given the option of deleting ones posts, it won't happen. Back in 2000s, these boards were big, and now since babble, i think dr-bob had redone the site and changed the server into a database, or a new server. I think, "the same furniture, new location" is what I think he wrote on the previous post above this post.
Posted by rjlockhart37 on October 7, 2018, at 20:04:46
In reply to Re: robert hsiung hosts copyright infringements..., posted by rjlockhart37 on October 7, 2018, at 20:02:53
that includes twittering what we write, publically
Posted by rjlockhart37 on October 7, 2018, at 20:24:47
In reply to Re: robert hsiung hosts copyright infringements..., posted by rjlockhart37 on October 7, 2018, at 20:04:46
but that's just a view, sometimes i don't get the big picture of things....
Posted by ert on October 9, 2018, at 14:39:47
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 7, 2018, at 14:42:54
did not know that obviously someone had the privilege to do that, rjlockhart37
how are you ? , scotty, after you tapered off your med and started a new one ?
Posted by ert on October 10, 2018, at 13:59:45
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 9, 2018, at 14:39:47
A little correction: an automatic transfer of the copyright could signify theft or unconscionability
Since Robert Hsiung hosts a database that contains full profiles connected with medical data that deserves special protection and each of these posts are linked with all other posts that build together a sensitive containing personality profile, every post of a user or copyright holder must be deleted. The personality profile is simply accessible by typing a users name and is public, not only visible by the researcher. Even if it were not public it must be deleted, when desired.
But I do not think that most participants would demand to delete their whole profile (provided the user name was anonymous) but of course an indefinite number of posts.
Posted by ert on October 10, 2018, at 14:08:36
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 10, 2018, at 13:59:45
OOPS,
I made some mistakes. but that is exactly the problem. It is not editable, once it is posted it can not be deleted anymore by the owner or user.
A little correction: an automatic transfer of the copyright could signify theft or unconscionability
Since Robert Hsiung hosts a database that contains full profiles connected with medical data that deserves special protection and each of these posts are linked with all other posts that build together a sensitive data containing personality profile, every post of a user or copyright holder must be deleted. The personality profile is simply accessible by typing in and query a users name, is public and not only visible by the researcher. Even if it were not public it must be deleted, when desired.
But I do not think that most participants would demand to delete their whole profile (provided the user name was anonymous) but of course an indefinite number of posts.
Posted by ert on October 11, 2018, at 9:43:19
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 10, 2018, at 14:08:36
I must be precise, he has copyright infringements according to his policy. But it is NOT blackmail as I stated before. That is the false word. But it *could* be theft and coercion. But probably he is really in a hurry. I said only phrases, words but it must be posts too. All those I demand.
Posted by SLS on October 11, 2018, at 14:23:45
In reply to Re: robert hsiung hosts copyright infringements..., posted by ert on October 9, 2018, at 14:39:47
> Scotty, after you tapered off your med and started a new one ?
Thanks for asking.
I discontinued Effexor and waited three weeks before starting Nardil. I am only on day two of treatment.
- Scott
Posted by ert on October 11, 2018, at 14:29:32
In reply to Re: copyright infringements..., posted by ert on October 11, 2018, at 9:43:19
I am concerned about these babble forum. Because of the present policy, it could pose risks for the participants here. For example someone can get blackmailed, cannot forget reminiscences, younger ones can post things that they would not post later on down the road or it cannot be pushed the reset button. At best some power should be conceded to someone independent who would not put personal interests in front of the interests of the participants. And the policy must be changed so that it is compliant with the laws. Therefore, the policy must allow that posts can be deleted.
Since the users cannot delete themselves, someone from the student counseling service from the University of Chicago could be entrusted with deleting posts and oversight about this website. Somebody, who can be called via the phone. This also will bring some more trust and integrity. Since how it is now, it cannot be really trusted.
Posted by ert on October 11, 2018, at 14:33:21
In reply to Re: Thanks for asking. » ert, posted by SLS on October 11, 2018, at 14:23:45
> > Scotty, after you tapered off your med and started a new one ?
>
> Thanks for asking.
>
> I discontinued Effexor and waited three weeks before starting Nardil. I am only on day two of treatment.
>
> - ScottGood luck. the nardil is considered as effective. there is the cheese issue, it can cause myoclonic jerks. maybe the nardil will be better for anxiety than effexor. all the best.
Posted by ert on October 11, 2018, at 14:40:42
In reply to Re: Thanks for asking., posted by ert on October 11, 2018, at 14:33:21
> > > Scotty, after you tapered off your med and started a new one ?
> >
> > Thanks for asking.
> >
> > I discontinued Effexor and waited three weeks before starting Nardil. I am only on day two of treatment.
> >
> > - Scott
>
> Good luck. the nardil is considered as effective. there is the cheese issue, it can cause myoclonic jerks. maybe the nardil will be better for anxiety than effexor. all the best.
>
>for some people symptoms can get bigger when the nights are longer. so, i think more light is a good idea and more walks. i believe linkadge used walks and light.
Posted by rjlockhart37 on October 11, 2018, at 23:45:34
In reply to Re: Thanks for asking. to scott, posted by ert on October 11, 2018, at 14:40:42
i made a suggestion about making babble a database, it's somewhere up in the archives, not sure if that gave a new idea, research previous archives on admin board.
Posted by ert on October 13, 2018, at 4:30:08
In reply to Re: Thanks for asking. to scott, posted by rjlockhart37 on October 11, 2018, at 23:45:34
he said per email that he is super busy right now, so i have some understanding. However, not all phrases were deleted, that I already demanded. He said that he desires some mutuality, but I do not think it needs any mutuality when someone wants back its property. Over a year ago I notified. But there was no response, maybe it had not been read.
the policy must change for the participants and for the compliance of the laws. Otherwise, it lacks integrity and trust.
Posted by ert on October 13, 2018, at 16:01:54
In reply to Re: Thanks for asking. to scott, posted by ert on October 13, 2018, at 4:30:08
no post got deleted but he said that he will do it in a couple of weeks...
I have somehow the impression that he maybe does not take his responsibilities very seriously.
Posted by ert on October 14, 2018, at 9:48:31
In reply to Re: no post got deleted, posted by ert on October 13, 2018, at 16:01:54
just the (deputies) can not be contacted ??? and send them a babble mail ???
Posted by ert on October 14, 2018, at 12:04:18
In reply to Re: isn't it strange SLS that ..., posted by ert on October 14, 2018, at 9:48:31
SLS, could you please stop posting as Dr. Bob ???
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Dr. Bob is Robert Hsiung, MD, [email protected]
Script revised: February 4, 2008
URL: http://www.dr-bob.org/cgi-bin/pb/mget.pl
Copyright 2006-17 Robert Hsiung.
Owned and operated by Dr. Bob LLC and not the University of Chicago.