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Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 8 of 8. This is the beginning of the thread.
Posted by bleauberry on December 17, 2018, at 15:00:23
"It is cruel that someone with severe depression isn't well enough to get well."
So true. Do you know who said that? Our own SLS. He is spot on and it is heart breaking.
I suggest all the time that patients learn more about what they don't know - inflammation, immune dysfunction, stealth infections, toxins - because in my journey those are the actual bad guys that cause all of our psychiatric symptoms. It is one or a combo of those things.
But to learn about those, you need to read. Blogs, books, articles, chat rooms. And then you need to process what you read and draw your conclusions. And then you need to put it into action and make something happen. This is all extremely hard to do when you are depressed. I know that as well as anyone here.
My own journey was like SLS said. It was so hard. What can make it much easier, as happened with me, is to hook up with a clinician who already knows what you want to learn. The only ones I know of who fit that category of knowledge are the Lyme Literate doctors and nurses. Whether it's Lyme or not doesn't matter. What does matter is what those doctors know that all the doctors don't know. About toxicity, stealth infections, inflammation, and immune system dysfunction.
Easy reading with Marty Ross, M.D. and Bill Rawls, M.D. They don't zero in specifically on treating psychiatry, but they do focus in detail on the things that land us in a psychiatrist's office, and how to improve our outcomes.
There are good days and bad days. On a 1-10 scale, with 10 being the worst depression ever, and 1 being happy, maybe you are in 8-10 range often, but sometimes you experience a 6-8 day, or even just a few hours. Use those times to study and learn. Don't try it when it's too hard or you will get frustrated and give up, and then the whole thing snowballs worse.
And for those reading this who don't know me, I cured 20 years of major depression/bipolar/schizo with antibiotics and herbs. This was following a "suggestion" that "maybe" I had Lyme. You can't really test very well. The suggestion - 3 years later - had turned out to be spot on.
I did every psych med you can name except for Nardil. Most were not helpful. Most made things worse. A few were helpful but not curative - prozac, zyprexa, Ritalin, modafinil, adrafinil, parnate.
Try to be in tune with the flow and use the "better" days or better hours of a day to learn new stuff.
I would love to share what I know. But honestly, the authors out there - including the 2 I listed - as well as Burrascanno - say it all so much better than I do, in detail, in ways a layman can understand and a scientist can understand, at the same time. And of course since they have mountains of experience and study, and they have "M.D." after their names (I don't) they carry a lot more credibility than my words do. But we say the same things. They're just a lot better at it.
Posted by bleauberry on December 19, 2018, at 14:46:52
In reply to It's not fair!, posted by bleauberry on December 17, 2018, at 15:00:23
The game certainly is not fair to the patient. If you or someone else feels too weak or disconnected to research, study and comprehend, that is totally understandable. Totally.
In that scenario, ask questions. Ask a lot of questions. Have somebody else do the work for you. Have somebody else get the answers for you. Have someone else go hunt and find what you would like to learn. We are all accustomed to going online and studying limited universe of psychiatric medications. But studying big grand ideas - such as systemic inflammation - and herbal therapies can be totally overwhelming because it is so unlimited. So ask questions. Have some help. Don't try to reinvent the wheel. It's already been done for you. Just ask.
The only thing required of the patient is an open mind and the genuine desire to get better.
Posted by Lamdage22 on December 21, 2018, at 7:04:55
In reply to Re: It's not fair!, posted by bleauberry on December 19, 2018, at 14:46:52
I agree with you bleauberry. I have contacted two "literate" doctors. One of them can see me in January and one in the 3rd quarter of 2019. He said that he cant treat lots of people with these complex issues. If he did, he wouldnt succeed. Fair enough.
They are not "lyme literate" but they seem smart anyway. I will ask them all the questions i have. Maybe something good comes out of it.
I am driving 3 hours for this so i sure hope so.
Posted by Lamdage22 on December 21, 2018, at 11:10:18
In reply to Re: It's not fair!, posted by Lamdage22 on December 21, 2018, at 7:04:55
You inspired me to continue to try to improve my situation!
Thanks.
Posted by Jeroen on December 25, 2018, at 20:51:32
In reply to Re: It's not fair!, posted by Lamdage22 on December 21, 2018, at 11:10:18
tomorrow i am calling my pdoc to remove the abilify from my medication list (temporary or permanent) well see about that
the Saphris 5 mg is treating psychosis i might have to up the dosage... 1 month on it no weight gain
Merry Christmas to you all!
Posted by bleauberry on December 27, 2018, at 10:55:22
In reply to Re: It's not fair!, posted by Lamdage22 on December 21, 2018, at 7:04:55
Hey that's cool news and I hope it opens new doors for you. I don't know if these literate guys you mentioned are strictly med-based or integrative-based. Hopefully integrative because what we are looking for are the multi-angle approaches for silent inflammation, unseen pathogens, and unknown toxins, all of which require specific supplements and herbs in addition to whatever meds. The med-based guys seem to do just antibiotics and not much else. Need someone with lots of training and expertise on the other topics. Since the guys are so backed up, and he mentions how complex the cases are, that is consistent with what I have seen. The first literate doc I saw was a 3 month wait for new patients, and the second one was a 6 month waiting list. Currently seeing a new one who just went into private practice after leaving the general hospital practice and hers is only 6 week wait.
Most of these literate docs do longer visits than other docs - usually an hour each time for me - because there are complex things to be talked about and managed.
A cool thing is that after your first visit you can share how it went and we can talk about it. Any questions on meds or supplements, I probably can help with those. And would be happy to.
My first literate doc was a 3 hour drive one-way. It was an all day thing for that round trip. The second one was 1 1/2 hours away. They are getting more numerous now. My new one is only a 20 minute drive.
Anyway, thumbs up!
> I agree with you bleauberry. I have contacted two "literate" doctors. One of them can see me in January and one in the 3rd quarter of 2019. He said that he cant treat lots of people with these complex issues. If he did, he wouldnt succeed. Fair enough.
>
> They are not "lyme literate" but they seem smart anyway. I will ask them all the questions i have. Maybe something good comes out of it.
>
> I am driving 3 hours for this so i sure hope so.
Posted by Lamdage22 on December 28, 2018, at 5:34:56
In reply to Re: It's not fair! » Lamdage22, posted by bleauberry on December 27, 2018, at 10:55:22
I would think that they are not strictly med based. They probably can do both
>I don't know if these literate guys you mentioned are strictly med-based or integrative-based.
Posted by Lamdage22 on December 28, 2018, at 22:15:06
In reply to Re: It's not fair! » Lamdage22, posted by bleauberry on December 27, 2018, at 10:55:22
thanks for the support. I will give an update after the Dr visit.
This is the end of the thread.
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