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Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 23 of 23. This is the beginning of the thread.
Posted by Jeroen on June 29, 2018, at 11:38:46
im still taking CBD from hemp from cibdol
but a low dose, i requested medical CBD but the legal pharmacy in the netherlands was very rude to me in the email, they say it can worsen psychosis
so now my only option is doxycycline in treating this occult infection or lyme or whatever evil disease this is.
I just came across an article that might help with the initial herx heimer reaction, the severe bacteria DIE OFF reaction.
I need to be prepared for 3 hellish days atleast.http://www.treatlyme.net/guide/herxheimer-die-off-reaction-inflammation-run-amok
The symptoms of a die-off reaction are generally a worsening of the underlying symptoms of Lyme disease and its associated infections. A majority of Lyme disease symptoms are actually excess inflammatory cytokine symptoms. So in a die-off reaction there is a worsening of many Lyme disease symptoms including: fatigue, brain-fog, muscle and nerve pain, chills and sweats, and/or memory and thinking.
im scared of extreme paranoia, insanity, severe depression herx heimer, panick attacks, heart racing with doxyccyline, i should not even attempt but i only respond to anti biotics they remove my psychosis eliminate all schizophrenic symptomsa schizophrenia/lyme nuke (lyme atomic bomb) lets say. :s
Posted by bleauberry on June 30, 2018, at 13:07:35
In reply to So ive asked for doxycycline to my pdoc Bleauberry, posted by Jeroen on June 29, 2018, at 11:38:46
Hey you are doing the best you can do under the circumstances so keep fighting the good fight.
If Doxy sparks a Herx with you then that is rather solid diagnostic confirmation. But I'm pretty sure you already know that.
I wish a Herx was 3 days. If you stop taking Doxy and clear out, then yeah, it should be gone in 3 days. But if you keep taking the medicine without a break, the Herx can go on for weeks. It all depends on how deep the infection is. A milder infection is a short Herx. A heavier infection is a long Herx.
Question for you....can you get raw herbs? To make teas with? Custom tea? Not pills. Just raw herbs. You wouldn't need a lot of quantity but probably 6-12 different herbs for the tea. Just curious is there is any way you could do that?
Posted by Jeroen on June 30, 2018, at 15:16:59
In reply to Re: So ive asked for doxycycline to my pdoc Bleauberry » Jeroen, posted by bleauberry on June 30, 2018, at 13:07:35
Hey friend, yes I can get herbs but wont they interact with abilify, depends on what kind of herbs and my other meds...
Posted by Jeroen on July 2, 2018, at 11:20:54
In reply to Re: So ive asked for doxycycline to my pdoc Bleauberry » Jeroen, posted by bleauberry on June 30, 2018, at 13:07:35
Hi Bleauberry, this will be the ultimate fight against this evil disease.
I need to be prepared for a possible serious herx heimer reaction, it will be my first exposure to doxycycline, just hoping i will get better after 3 days...
Can you advice what precautions to take, a herx in this case is possible, is doxycycline different then minocycline?
Posted by Jeroen on July 5, 2018, at 4:59:28
In reply to Re: So ive asked for doxycycline to my pdoc Bleauberry » Jeroen, posted by bleauberry on June 30, 2018, at 13:07:35
To bleauberry, ready to nuke the lymes bacteria or whatever is taking my sanity, brain fog, severe depression, out of my system.
Got a prescription from my psychiatrist today.
a strong pro biotic 10 million bacteria is enough?
i am really scared about a serious herx heimer then i will have to call 911 or my psychiatric hospital to come and get me, but i will stop thinking doom :)
Please get in touch friend. I know many people have this condition. its just sick!
Posted by ed_uk2010 on July 5, 2018, at 14:23:51
In reply to To bleauberry, ready to nuke the lymes bacteria, posted by Jeroen on July 5, 2018, at 4:59:28
Hi J,
So, did you actually get a prescription for doxycycline? What was the reason for the doctor prescribing it?
Posted by Jeroen on July 5, 2018, at 14:34:12
In reply to Re: To bleauberry, ready to nuke the lymes bacteria » Jeroen, posted by ed_uk2010 on July 5, 2018, at 14:23:51
Hi Ed.
I only feel better with anti biotics.
After 3 days i Am well again if i survive the herx heimer reaction this time...I hope you are well.
Posted by ed_uk2010 on July 5, 2018, at 15:59:52
In reply to Re: To bleauberry, ready to nuke the lymes bacteria, posted by Jeroen on July 5, 2018, at 14:34:12
Yeah I'm good thanks :)
So what did you doctor have to say about the doxycycline?
Posted by bleauberry on July 6, 2018, at 10:10:23
In reply to To bleauberry, ready to nuke the lymes bacteria, posted by Jeroen on July 5, 2018, at 4:59:28
How to avoid a Herxheimer reaction, or how to minimize one so that you can survive it without going crazy:
Do the pulsing method. Basically what that means is you don't take the antibiotic every day. You can be flexible. Some examples...3 days on, 2 days off; 2 days on, 3 days off; 4 days on, 3 days off.
The pulsing method accomplishes several things:
1. It gives your body some time off to catch up and clean out death and debris of dead organisms.
2. Lyme bacteria are slow growing so taking a few days off does not slow down recovery.
3. Pulsing makes the antibiotics more effective and can generate harsh Herxheimer reactions. That's why it's good to take some days off to rest and clean out. The bacteria are smart. They go into hiding when under threat. And then your antibiotic doesn't work because they're hiding. When you take days off, the bacteria sense safety and they come out. And then you nuke them again. It's sort of like peeling layers of an onion. One at a time.I'm starting to wonder if I am only well if I am on antibiotics. ??? it seems that might be. Maybe. Maybe not. I'm pretty stable and fairly normal, certainly not depressed or treatment-resistant or anything like I used to be, when I'm on antibiotics. But things can so south when I'm off. I recently stopped one of them. So we'll see.
> To bleauberry, ready to nuke the lymes bacteria or whatever is taking my sanity, brain fog, severe depression, out of my system.
>
> Got a prescription from my psychiatrist today.
>
> a strong pro biotic 10 million bacteria is enough?
>
> i am really scared about a serious herx heimer then i will have to call 911 or my psychiatric hospital to come and get me, but i will stop thinking doom :)
>
> Please get in touch friend. I know many people have this condition. its just sick!
Posted by Jeroen on July 6, 2018, at 10:49:16
In reply to Re: To bleauberry, ready to nuke the lymes bacteria, posted by bleauberry on July 6, 2018, at 10:10:23
like i had the 3rd and 4rd time i was on minocycline hallucinations, paranoia, insanity!
it didnt happen the first time and second time i took it and i felt normal.
will this happen with doxycycline too but now the first time is it the same as minocycline am i resistant to tetracyclines?then the nuke is off.... i am very scared
Posted by ed_uk2010 on July 6, 2018, at 18:03:53
In reply to So ive asked for doxycycline to my pdoc Bleauberry, posted by Jeroen on June 29, 2018, at 11:38:46
Hi J,
The best thing you can do to avoid worsened symptoms when taking doxycycline is not to assume that any of your symptoms actually will get worse. It's common for people on doxycycline to have no side effects, or just nausea. Assuming that you're going to get really ill on it may be a self-fulfilling prophecy. The belief that you'll feel awful on it will make you anxious and that can make your symptoms much worse.
Posted by Jeroen on July 7, 2018, at 3:03:46
In reply to Re: So ive asked for doxycycline to my pdoc Bleauberry » Jeroen, posted by ed_uk2010 on July 6, 2018, at 18:03:53
thanks Ed for your support!
im dead in the water, abilify is causing a gambling compulsive disorder in me, im tired of this situation
they claim it on their website, youtube movies about people gambling away all their money on abilify
Posted by ed_uk2010 on July 7, 2018, at 18:39:26
In reply to thanks Ed, posted by Jeroen on July 7, 2018, at 3:03:46
>abilify is causing a gambling compulsive disorder in me
Often, if that happens, it would be useful to switch to a different antipsychotic. What does your psychiatrist say about this?
Posted by Jeroen on July 8, 2018, at 3:01:29
In reply to Re: thanks Ed » Jeroen, posted by ed_uk2010 on July 7, 2018, at 18:39:26
ive read CBD might prevent herx heimer reactions
from the massive bad bacteria die off from doxycycline, well see
Posted by Jeroen on July 10, 2018, at 7:41:09
In reply to Re: thanks Ed » Jeroen, posted by ed_uk2010 on July 7, 2018, at 18:39:26
Hey friend, they say nothing about my gambling problems, nothing
also is CBD safe with doxycycline ive read one some sources it can prevent a jarisch herxheimer reaction thats what i had on minocycline!
Posted by bleauberry on July 11, 2018, at 9:18:45
In reply to bleauberry what about neurotoxic reaction, posted by Jeroen on July 6, 2018, at 10:49:16
Jereon you are doing good. You are open minded. You are willing to try things. You are asking questions. You are thinking of strategies. These are all good signs!
As you know, the craziness that happens sometimes is most likely the die-off effect, commonly called the Herx. The only way to handle that in your situation is to stop and wait a couple days before resuming again. That is a common strategy with Lymies like me. :-)
Sure wish you could get some herbs.
Do the best you can with what you've got. That's the best that any of us can do. If you ask me, you are doing a lot more with the little bit that you've got, than another patient who has a ton of options but is doing very little with it all.
Even just the few times you've tried antibiotics, I can tell, as an outsider, that you sound better today than you did 5 years ago, 10 years ago. You've made progress.
> like i had the 3rd and 4rd time i was on minocycline hallucinations, paranoia, insanity!
>
> it didnt happen the first time and second time i took it and i felt normal.
>
>
> will this happen with doxycycline too but now the first time is it the same as minocycline am i resistant to tetracyclines?
>
> then the nuke is off.... i am very scared
Posted by ed_uk2010 on July 11, 2018, at 14:04:10
In reply to To Ed, posted by Jeroen on July 10, 2018, at 7:41:09
Hi J :)
Didn't the gambling start long before Abilify? I thought you did it a lot, even years ago?
>also is CBD safe with doxycycline
Yes it should be fine. Not heard mention of any problems.
Glad you hear you thinking of new ideas. When do you start doxycycline?
Posted by Jeroen on July 11, 2018, at 14:55:54
In reply to Re: To Ed » Jeroen, posted by ed_uk2010 on July 11, 2018, at 14:04:10
I was taking anti depressants while I started gambling and sedating Seroquel and benzos im afraid I blame the meds they encourage me to do it
tomorrow I start doxycycline Ed, do I need it on empty stomach, or eat something with it or drink water or milk?
Posted by ed_uk2010 on July 12, 2018, at 13:15:31
In reply to Re: To Ed, posted by Jeroen on July 11, 2018, at 14:55:54
>tomorrow I start doxycycline Ed, do I need it on empty stomach, or eat something with it or drink water or milk?
Hi J,
You should take it during or immediately after a meal, with a full glass of water. Don't take it at bedtime.
Don't take it on an empty stomach, it can cause nausea.
Good luck :)
Posted by Jeroen on July 12, 2018, at 13:20:54
In reply to Re: To Ed » Jeroen, posted by ed_uk2010 on July 12, 2018, at 13:15:31
to Ed
Posted by ed_uk2010 on July 14, 2018, at 7:20:21
In reply to why not at bedtime Ed? or few hours before?, posted by Jeroen on July 12, 2018, at 13:20:54
Hi J,
Yes, you can take it a few hours before bed, that's fine. You don't take doxycycline just before getting into bed because it's not to be taken while lying down - this is because it can irritate the oesophagus.
Posted by Jeroen on July 14, 2018, at 7:45:36
In reply to Re: why not at bedtime Ed? or few hours before? » Jeroen, posted by ed_uk2010 on July 14, 2018, at 7:20:21
thanks Ed for the warning :)
Posted by ed_uk2010 on July 18, 2018, at 14:00:49
In reply to thanks Ed, posted by Jeroen on July 14, 2018, at 7:45:36
> thanks Ed for the warning :)
How are you doing then J?
This is the end of the thread.
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