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Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 12 of 12. This is the beginning of the thread.
Posted by Sheilac on November 22, 2013, at 6:31:07
My doc drew tons of blood from me because she says I'm showing all signs of an autoimmune disorder, possibly drug induced lupus accompanied by Raynauds Syndrome with Rheumatoid Arthirits, she thinks caused by Trileptal. Before Trileptal I did try lithium for a while & Twgretol, which are both on the drug induced lupus list.
I'm missing an enzyme in my liver and am a very slow metabolizer (a risk factor of DIL) and meds build up in my system.
She's concerned about Trileptal. She said the vision loss (blurry, poor vision), cloudy, low urine output, no appetite and weight loss, etc. should have alerted my pdoc. My pdoc just said, "Hmm". Should I be concerned about Klonopin? Been taking it for years. What about Geodon?
I've never heard of this. I found Tegretol & Trileptal on the DIL list, but couldn't find any info on Klonopin. Anti-seizure meds are on the list. Wasn't Klonopin originally an anti-seizure med? What about Geodon? I have some swelling, maybe from the Trileptal or Geodon. Who knows. Abilify & Risperdal caused terrible swelling. Swelling =some joint pain.
I'm going to be left with a whole bunch of Xanax as my med!
She says if it is drug induced it should go away after the offending drug is stopped and I should be on the lowest doses of ALL meds due to the build up in my body. This sucks.
Anyone know about this? I was hoping it was just a sodium problem with Trileptal :(
On the brighter side, it will be nice to see again if she and the Rheumatologist wean me off Trileptal. Yea, this sucks.
Posted by Phillipa on November 22, 2013, at 8:39:02
In reply to Drug induced lupus?, posted by Sheilac on November 22, 2013, at 6:31:07
I had some DNA swab test for metabolization of meds and it showed I was normal as the test results showed the proper levels of my meds in tests. So I understand if you are a slow metabolizer than you need less of a med than normal metabolizers. I also have heard of med induced lupus. And yes it should be true that the condition should resolve with the discontinuation of the offending med. So it's trileptal? Phillipa
Posted by Phillipa on November 22, 2013, at 8:45:30
In reply to Drug induced lupus?, posted by Sheilac on November 22, 2013, at 6:31:07
partial list. Phillipa
http://www.webmd.com/lupus/tc/drug-induced-lupus-topic-overview
Posted by ed_uk2010 on November 22, 2013, at 11:06:36
In reply to Drug induced lupus?, posted by Sheilac on November 22, 2013, at 6:31:07
>She said the vision loss (blurry, poor vision), cloudy, low urine output, no appetite and weight loss, etc. should have alerted my pdoc. My pdoc just said, "Hmm".
Blurred vision is a 'normal' side effect of Trileptal. Not sure about weight loss but Trileptal can cause nausea.
I wouldn't want anyone to jump to conclusions and say this is lupus.
Posted by Sheilac on November 22, 2013, at 13:38:45
In reply to Re: Drug induced lupus? » Sheilac, posted by ed_uk2010 on November 22, 2013, at 11:06:36
I agree. Especially, because Trileptal has been so good to me.
I mean Geodon and klonopin rock, but it would be awful to have to make a decision about Trileptal.
In the meantime, my doc took enough vials of blood! So, we'll see. Hopefully, I won't test positive for any of these autoimmune issues.
I hate that she thinks it could be drug induced. But I have a crappy liver.
Posted by Sheilac on November 22, 2013, at 13:41:32
In reply to Re: Drug induced lupus? » Sheilac, posted by Phillipa on November 22, 2013, at 8:45:30
http://www.nlm.nih.gov/medlineplus/ency/article/000446.htm
I think this is what my doc was talking about. I have a lot of these symptoms from Trileptal. I had to stop both Lamictal and Tegretrol was the worst for me.
Posted by Sheilac on November 22, 2013, at 13:43:36
In reply to Re: Drug induced lupus? » Phillipa, posted by Sheilac on November 22, 2013, at 13:41:32
I know docs use Klonopin as a benzo now, but wasn't it originally classified as an anti-seizure med?
Would it be similar to Trileptal?
I've been taking Klonopin for at least 10 years!
Posted by Phillipa on November 22, 2013, at 19:52:26
In reply to Is Klonopin an anti-seziure med?, posted by Sheilac on November 22, 2013, at 13:43:36
Up to 20mg of klonopin is or can be used for seizures. Phillipa
Posted by joef on November 22, 2013, at 21:39:51
In reply to Re: Is Klonopin an anti-seziure med? » Sheilac, posted by Phillipa on November 22, 2013, at 19:52:26
what is your dosage sheilac
Posted by Sheilac on November 23, 2013, at 5:38:19
In reply to Re: Is Klonopin an anti-seziure med?, posted by joef on November 22, 2013, at 21:39:51
Klonopin is 2 - 3mg a day.
Posted by joef on November 24, 2013, at 9:21:45
In reply to Re: Is Klonopin an anti-seziure med? » joef, posted by Sheilac on November 23, 2013, at 5:38:19
that's what mine is...are you comfortable with that...without worrying about withdrawal if and when you need to taper...thanks
Posted by phidippus on December 5, 2013, at 17:55:01
In reply to Drug induced lupus?, posted by Sheilac on November 22, 2013, at 6:31:07
I will make another strong recommendation for Keppra @ 3000 mgs daily, to replace the Trileptal. Keppra Hepatotoxicity
Prospective studies suggest that chronic levetiracetam therapy is not accompanied by significant elevations in serum aminotransferase levels. Clinically apparent hepatotoxicity from levetiracetam is quite rare.Eric
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