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Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 11 of 11. This is the beginning of the thread.
Posted by rjlockhart04-08 on May 29, 2012, at 19:04:06
I .. went to a psychologist and got tested a couple months ago...it was for a program called DARS [Deparment of rehabilitation service] and I came accross a doctor she was nice, but In the report she throughly explained my thought and conversation patterns where disorginzied and said I shook my leg and also wrote down my sprital beliefs, spirits communicating with me. She wrote I was overweight and had some motor skill retardation, and wrote that I needed to get on disablity, and that employment would cause more problems to arise. I'm not going to accept this, but I do agree that what its called disorganized schizophenia is vary difficult to treat because mental thoughts are grossly disorganized and don't make sense, another term for this in my terms is a serious idiot, and psychology just makes it another word it. Mental Difficiancy is the term for both DS and an idiot. I am in nightmare living with this condition because I can't even socialize correctly with addicts, i jump to diffrent subjects because I lose where I am in the conversation, vary scattered. And will live with the pain of impending humilation.
Please someone could you research this...and see what are the best effective methods for treating this?
rj
Posted by Phillipa on May 29, 2012, at 19:27:46
In reply to disorganized schizophrenia, posted by rjlockhart04-08 on May 29, 2012, at 19:04:06
I will are you sure it's the right diagnosis? Phillipa
Posted by Phillipa on May 29, 2012, at 19:40:27
In reply to disorganized schizophrenia, posted by rjlockhart04-08 on May 29, 2012, at 19:04:06
Matt here's one. Phillipa
http://www.mayoclinic.com/health/disorganized-schizophrenia/DS00864
Posted by rjlockhart04-08 on May 30, 2012, at 22:59:15
In reply to disorganized schizophrenia, posted by rjlockhart04-08 on May 29, 2012, at 19:04:06
phillipa you are the only person who responded to this.....all the rest of babble won't listen. But yea....i do know the symptoms and I try by best to ignore them but alot of my lifstyle is vary disorganized, my thoughts, sometimes my conversations with people if im not trying to mask it. See another doctor 2008 diagnosed me with Asperger's....i never tell anyone that's my friends because they will view me mentally hanicapped and will be obligated to be morally supportive. In 2010 at a rehab with my current dr...they said I had low processing speed...and had a moderatly low IQ, and of course rehabs are the most miserable places you can be because they always address everything with addiction advice when it's not the problem....its like being at a summer camp with annoying counselors making you sing lowlife songs and have to always act happy. I hate being forced to act happy, but you have to do it to get out of the camp, or rehabs. Anyways...back to what I was saying...my diagnosis since 1998 .. ADHD...along the way it was depression and anxiety from abusing my stimulant medications....then aspgergers....and now disroganized schizophenia...
You know it makes me think that when you where young there where always people that labeled you....but when you grow up its the same thing...expect their doctors with degrees that make sterotype label of disorders, and they will make deragotory comments in psych reports. Their are doctors that will give what you need and won't ever make reports of negative thought, and that is what I am looking for right now.Anyways, thanks phillipa ... ill see ya around:)
rj
Posted by Novelagent on May 31, 2012, at 12:11:44
In reply to disorganized schizophrenia, posted by rjlockhart04-08 on May 29, 2012, at 19:04:06
If your doc knew what he was doing, you'd be on clozapine.It requires more frequent monitoring and regular blood tests, but it is known to work very well for treatment-refractory psychosis. I don't know if this means it will lead to more organized thoughts, but you can try doing a search on Medline with the terms clozapine + disorganized and print out some good study abstracts you find.
Good luck. Most docs don't know how to treat refractory cases, and assume it's not something within their control, and basically patients become victims of their low expectations. If you were to try clozapine injection (and dear God, you don't go about taking oral antipsychotics with a refractory case) you'd be all set. I think, unless disorganized thoughts can persist even with clozapine, but my guess is that's rare.
.....
> I .. went to a psychologist and got tested a couple months ago...it was for a program called DARS [Deparment of rehabilitation service] and I came accross a doctor she was nice, but In the report she throughly explained my thought and conversation patterns where disorginzied and said I shook my leg and also wrote down my sprital beliefs, spirits communicating with me. She wrote I was overweight and had some motor skill retardation, and wrote that I needed to get on disablity, and that employment would cause more problems to arise. I'm not going to accept this, but I do agree that what its called disorganized schizophenia is vary difficult to treat because mental thoughts are grossly disorganized and don't make sense, another term for this in my terms is a serious idiot, and psychology just makes it another word it. Mental Difficiancy is the term for both DS and an idiot. I am in nightmare living with this condition because I can't even socialize correctly with addicts, i jump to diffrent subjects because I lose where I am in the conversation, vary scattered. And will live with the pain of impending humilation.
>
> Please someone could you research this...and see what are the best effective methods for treating this?
>
> rj
Posted by Phillipa on May 31, 2012, at 19:05:15
In reply to Re: disorganized schizophrenia, posted by rjlockhart04-08 on May 30, 2012, at 22:59:15
RJ ever since you got that diagnosis of Asperger's I've watched you go downhill. Many with Asperger's are more intelligent than others. Are you seeing this doc on your own? Phillipa
Posted by novelagent on June 1, 2012, at 10:29:23
In reply to Re: disorganized schizophrenia, posted by rjlockhart04-08 on May 30, 2012, at 22:59:15
When I first had psychosis, I was sent toa rehab--it happens all the time. They claim it's because the regular hospitals are all full, but the real reason is the nurses are too lazy to call more than one regular hospital.
I would ask your doc if you could try going to a regular psychiatric hospital, where you could get a better work-up, as the diagnostic process is called, and they could adjust your meds to a long-acting drug, ideally clozapine, because it works such miracles for refractory cases like yours.
Clozapine really is a drug you'd want to take at first in a good hospital, and not as an outpatient. They can monitor you better that way. I highly advise a long-acting antipsychotic. It is proven long-acting injections increase psychological "insight', as objective awareness to your illness is called. It also requires a lower dose to receive an equal or greater therapeutic benefit over time, all of course due to the precise nature of how well it achieves a steady state in your bloodstream.I get this from Harvard docs who treat me. I hope this helps.
I first went to a rehab hospital, and I couldn't relate to all of the drug addicts there. I was going through something I desperately needed to share with someone my age going through the same thing, and couldn't. It made me convinced I didn't have anything wrong, and attributed it all to not taking my klonopin (which didn't help, but as it turns out, taking my klonopin again alone wasn't enough).
I wound up leaving the rehab place after three weeks, convinced the docs were over-worrying what was a brief psychotic episode. I got psychotic again that weekend, and my doc sat me down during out appointment and asked me to return to a real psychiatric hospital. I agreed, and meeting kids going through what I was going through put me at ease, because it made it all make more sense and likely. I didn't feel lonely anymore. I insisted I be put on Risperdal Consta, so I had no worries about missing a dose by accident, and the hospital put me on the regimen. It was great.
Now I take Invega Sustenna, which is like Risperdal Consta, only it's just once a month instead of twice a month. I never have had a psychotic episode since. I also take Vyvanse, to keep my head clear. I'm studying a foreign language, and about to return to college this fall. I'm also working this summer. My docs at the real hospital had high expectations of me, and they didn't mess around with writing down a diagnosis for the sake of recording it-- they actually did something about it.
It sounds like your doctor doesn't. A doctor who keeps up on the research doesn't prescribe Zyprexa, which I was prescribed by the rehab doctors. Zyprexa gave me weight gain, made me crave sugary foods, and I was told it can cause type II diabeties even if I did control my weight (I'm a skinny kid). A lot worse than Risperdal. So the first thing the real hospital doctors did was switch me to Risperdal-- they didn't just write down "weight gain" or "monitor for diabeties." They did something about it.
you don't have to go to the ER, and a lot of hospitals these days will even let you use a laptop. You can bring your favorite books and things if you plan right, and your doctor can arrange a bed for you at the best hospital he/she has admitting privileges to, without needing to go through the ER. That's what I did.
I was initially going to reject going to the hospital, only because I had just gotten a job offer that would start soon for a lot of money. And my doc told me, "I've seen people in your situation make this decision before, and the ones who choose to stick it out don't do so well."
this illness gets worse with neglect. It may seem inconvenient to return to a hospital, but you get to go to a real hospital, not with drug addicts, where you can relate to the people you see there. You have to weight the illness progressing against the inconvenience, and hopefully, you'll realize stopping its progression and working towards a full recovery is worthwhile.
> phillipa you are the only person who responded to this.....all the rest of babble won't listen. But yea....i do know the symptoms and I try by best to ignore them but alot of my lifstyle is vary disorganized, my thoughts, sometimes my conversations with people if im not trying to mask it. See another doctor 2008 diagnosed me with Asperger's....i never tell anyone that's my friends because they will view me mentally hanicapped and will be obligated to be morally supportive. In 2010 at a rehab with my current dr...they said I had low processing speed...and had a moderatly low IQ, and of course rehabs are the most miserable places you can be because they always address everything with addiction advice when it's not the problem....its like being at a summer camp with annoying counselors making you sing lowlife songs and have to always act happy. I hate being forced to act happy, but you have to do it to get out of the camp, or rehabs. Anyways...back to what I was saying...my diagnosis since 1998 .. ADHD...along the way it was depression and anxiety from abusing my stimulant medications....then aspgergers....and now disroganized schizophenia...
> You know it makes me think that when you where young there where always people that labeled you....but when you grow up its the same thing...expect their doctors with degrees that make sterotype label of disorders, and they will make deragotory comments in psych reports. Their are doctors that will give what you need and won't ever make reports of negative thought, and that is what I am looking for right now.
>
> Anyways, thanks phillipa ... ill see ya around:)
>
> rj
Posted by rjlockhart04-08 on June 4, 2012, at 10:50:16
In reply to Re: disorganized schizophrenia » rjlockhart04-08, posted by novelagent on June 1, 2012, at 10:29:23
thanks for the suggestion....i have heard of this medication, i've read about it in previous research on medications, clozopine...ok ill bring that up....and see if theirs like an injection form....something is not working right in my digestive system, its not absorbing and i contantly have pains in my abominal and then i have to constantly use the bathroom....its crazy. They did tests and found nothing wrong...bloodwork, but there is something not right...im still going to investigate this more.
Phillipa, I think before I got all these labels of what is wrong I wasnt aware of my things that prevented me from having a big social life....i was isolated, and tended to research on my own intrests even before all these diagnosis that where made....their just advanced terms to label someone of whats wrong with them. I hate it...but Ill find someway to get around them....thanks, i really appricate your care:)
rj
Posted by Zyprexa on June 6, 2012, at 23:50:19
In reply to Re: novelagent and phillipa, posted by rjlockhart04-08 on June 4, 2012, at 10:50:16
Is it possible to get adderal shots in the arm that last for a couple of weeks that your doc would give you. This way you wouldn't abuse it. Or maybe anouther ADD drug that works?
Posted by novelagent on June 7, 2012, at 10:31:08
In reply to Re: shots? » rjlockhart04-08, posted by Zyprexa on June 6, 2012, at 23:50:19
> Is it possible to get adderal shots in the arm that last for a couple of weeks that your doc would give you. This way you wouldn't abuse it. Or maybe anouther ADD drug that works?
>no, but try Vyvanse. Vyvanse is a prodrug, so it's not possible to inject or snort. It must be metabolized to work by ingesting it, and it then only works within therapeutic ranges. It plateaus after the therapeutic window has been reached. I read this on the patent, but my docs never know this-- they all only know it can't be injected or snorted.
Drug likability by addicts or Vyvanse is signifigantly lower than for other stimulants. Abuse of Vyvanse would be a relative turn of phrase, because you'd be categorizing relatively marginal increases of the dose, within a therapeutic dose range, as abuse.
Alternatively, you could try Provigil.
Posted by phidippus on June 7, 2012, at 20:27:52
In reply to disorganized schizophrenia, posted by rjlockhart04-08 on May 29, 2012, at 19:04:06
You need to be taking antipsychotics.
Eric
This is the end of the thread.
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Dr. Bob is Robert Hsiung, MD,
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