![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 25 of 41. This is the beginning of the thread.
Posted by AMY II on February 28, 2008, at 0:43:21
I urge EVERY SINGLE PERSON on this site to get together for the sake of one human life...MINE. Look up my postings. Started in 1999 under AMY II. That is i's not 1's. I posted here and there throughout the years and have posted recently. Look at it. Tell me what you think. Be the one to crack this f**kin case. I can't be the only one out there with this. HELP ME. I am desperate. I am a mother and a wife and am sick of this horror. I want answers. WHOEVER is intelligent out here, please help. I need comfort. I just...just...need help. I see PDOC tomorrow. I feel if you can be your own advocate you might just be able to save yourself when your doctors are overlooking something, looking too much into something, or looking completely in the wrong direction. HELP!
Posted by henryo on February 28, 2008, at 4:45:17
In reply to FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOCS, posted by AMY II on February 28, 2008, at 0:43:21
Your previous posts are hard to put together. Give us the short story. Intrusive unpleasant thoughts, depression, anxiety? Is that close?
I have to say any intrusive thoughts I've had to deal with were caused by meds, but that is me. Both Effexor and Wellbutrin gave me spooky feelings, shadow men and night terrors. They work for some people. Serzone, Neurontin killed my sex drive and were no help. Prozac pooped out. Others, names I can't remember gave me tremors, insomnia or wasted my painful time.
For depression I've been taking Lamictal for 6 years or more. I like it very much. No weight gain no sexual B.S. no depressing crappy side-effects at all. Its way way way better than nothing. Still though the depression has at times been bad.
I occasionally take Pindolol also called Visken. I don't use it very often. It is used as heart/blood pressure medication (it is a beta blocker) It takes the PHYSICAL response to anxiety (which plays some kinda role in my depression, maybe) out of the picture. It doesn't make everything rosy but for me it put the nasty fire out if things were unusually ugly. But if you are taking it, your heart rate will not budge for love or money- so I avoid exercise when its in me. When I'm hurting it takes the edge off.
Now, I just added Deplin (not a drug) 4 months ago. I cannot say enough about Deplin -for me. It has changed my life. Its an augmentation, it has to be prescribed. L-methylfolate, is not Folic acid. It is what your body is supposed to be able to metabolize Folic acid into. It is classified as medical food, go figure. But in my case it is miraculous. I feel as good as I can remember. Huge breakthrough.
So I take Lamictal 300mg (lowered my dose slowly from 400mg after Deplin amped me up some) Obviously I take Deplin 7.5mg Also usually a klonopin at bed time. I guess I'd take some Pindolol if need arose.
Oh yeah, I ought to mention, I take a lot of fish oil. Enough of to give me 1000mgs of DHA daily. I do that based on personal research. It has no discernable effect but I consider it part of my mental health regimen. You might look into it, see what you think. There is a Carlson's with 500 DHA per a gel cap EPA is irrelevant. Wikipedia DHA. Docosahexaenoic acid.
So that is what has worked for me. Tried any of those?
Advice- Try some new things, if it is a mistake you've learned something. Or it might work. But if you don't try some new tactics/meds nothing will change. So keep slogging. Something is gonna work great. Steer clear of the giant multi med cocktails (just my opinion), too many interactions and variables. "Oh, you get dizzy and have a dry mouth? We have a fifth and a sixth med for that." These doctors ought to take their own prescriptions for awhile. When they wanted to go up to four meds I junked my cards and started over from scratch. Thank God for Lamictal. But it was quite painful to get off everything and work up to a therapeutic dose. Even then as good as it was, at times things still sucked.
Here is the whole game- the effect you want without intolerable side-effects you don't want. Perseverance and a scrip happy doc are a huge help. Try whatever you can- screw logic. They have NO idea how these meds work. The fine print that comes with every psychoactive scrip is very clear on that, "mechanism of interaction unknown". They just go down the list by percentage of efficacy in the population. Everything else is noise and guess work based some past cases.
Just before I hit gold with Deplin, I was on the verge of starting EMSAM. It still sounds good to me. The old MAOI's were very effective, they just had dietary interaction problems. I think EMSAM sounds like an option I'd try. That and klonopin or Pindolol. Thats my very uninformed unprofessional advice for you. Check all med suggestions with Google and Wikipedia. Good luck.
Posted by polarbear206 on February 28, 2008, at 9:46:45
In reply to FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOCS, posted by AMY II on February 28, 2008, at 0:43:21
> I urge EVERY SINGLE PERSON on this site to get together for the sake of one human life...MINE. Look up my postings. Started in 1999 under AMY II. That is i's not 1's. I posted here and there throughout the years and have posted recently. Look at it. Tell me what you think. Be the one to crack this f**kin case. I can't be the only one out there with this. HELP ME. I am desperate. I am a mother and a wife and am sick of this horror. I want answers. WHOEVER is intelligent out here, please help. I need comfort. I just...just...need help. I see PDOC tomorrow. I feel if you can be your own advocate you might just be able to save yourself when your doctors are overlooking something, looking too much into something, or looking completely in the wrong direction. HELP!
Amy,Please give us a detailed history. Age of onset, symptoms, your sleep cycle, family history, medications. Was blood work done to rule out underlying disease? Your previous posting really don't give us much to go on.
Thanks,
PB
Posted by AMY II on February 28, 2008, at 14:23:04
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOCS » AMY II, posted by polarbear206 on February 28, 2008, at 9:46:45
My previous postings have EVERYTHING on it. It's as detailed as I have ever been with anybody about anything. I was 24 when it started. Sleep fine. I don't stay up for days or anything like that. I had blood work in the way of ruling out diabetes and such.
Family history of anxiety and depression. Nothing else. I have asked and asked and checked and rechecked.
My grandmother had epilepsy but my mother said it was because she was hit in the head with something when she was a child and it gave her epilepsy.
Look at my posting of Weird dialated eyes weird feelings in my head posted in 1999.
This all happened after an x trip, powder form, after half an hour I past out I was so high that I felt like my head was coming off my body. Maybe I wasn't high at all. Maybe I had a seizure. I don't know.
Emergency room visit after visit said anxiety. Doc after doc said anxiety. Couldn't stand the psychologists because they wanted me to breathe through this. That is like asking someone to breathe through a heart attack..."Don't worry it will get better". Uh Uh.
I don't know how else to be more detailed. Over the last nine years and all of my posts, there are lengthy writings on my symptoms and episodes.
Anti anxiety meds only seem to work 80% of the time. Even zanax when I have an acute "episode" works only sometimes.
Latest post "Psychosis OCD Anxiety Help Me" Gives description of latest episode.
Have I missed anything?
Oh, I was a bad tempered teenager, didn't do drugs (that started in 1999 and lasted for a year) and I had fear of the dark, and fear of dolls. I would stare at them in my room and couldn't close my eyes because I would be afraid they would get posessed and like climb under my bed and then attack me when I slept.
I attributed that to too many Chucky and Poltergeist movies...
I have irregular periods my whole life, too much testosterone (I get facial area around my upper lip and chin) I have resulted to just shaving it. It's not severe, but noticable.
So hormonely I am all messed up.
In my old posts you will see I use to be a model, I was an exotic dancer, etc. I was HOT! LOL. But now, I have gained 80 pounds since this started and after starting meds.
I have been without effexor since September of last year and have dropped 25 pounds without doing anything different. Just no meds. So I KNOW that is why I am overweight. It sucks.
Can poisons like drugs that you have done stay in your fat cells so as I start to lose weight my symptoms get worse??? Sounds weird but I will grasp at any reasonable conclusion...
Posted by AMY II on February 28, 2008, at 14:37:36
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC, posted by henryo on February 28, 2008, at 4:45:17
I guess I thought it wouldn't be hard to put together. I am pretty straight forward with my symptoms and such. I guess you have to be careful when you go on these sites because you ARE talking to people that have mental illnesses :).
Thanks for the info on dietary pills but I am well informed of those already.
Thanks for sharing your story, however not close to mine.
I am looking for someone that may know something, has gone through this, or is part of the profession that recognizes these things.
Is there a way that you can search for old users on here? I had some really great talks with some people years ago.
No offense guys, but I am coming on here for help and questions and it seems like I am getting your life story as my answer.
I would love to hear it, if I could help, but I can't.
I don't want to be turned off by this board because it was a great help to me in finding information in the past but nothing so far is really informative or telling me things that aren't already obvious or that I already know.
I am here looking for something different....Please respond if you are that person.
Posted by bleauberry on February 28, 2008, at 17:32:33
In reply to FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOCS, posted by AMY II on February 28, 2008, at 0:43:21
I wish we all had the answers you are looking for. We all need them ourselves.
All I can say is, similar to what henryo's response to your post said, is to screw logic and try new stuff. Most important, screw the logic. If you search archives or sites where people rate meds, you will find people who found Wellbutrin to be their magical antianxiety med, after failing just about everything else normally prescribed for anxiety. Go figure. Wellbutrin. Doesn't make sense. Someone here a few months ago was on massive doses of Klonopin and still desperate. As I recall, huge relief came very quickly shortly after starting Lithium. Go figure. Lithium is for bipolar, not anxiety. Bottom line, don't go near anything similar to what you have already tried. Instead, venture into brand new territory, even if whatever the drug is doesn't make sense, and perhaps especially if it doesn't make sense.
You mentioned something. Hormones. Those are powerful powerful powerful. Not to be taken with a ho-hum attitude. Major psych symptoms can result to where the best of drug combos may only smooth the edges but come nowhere near what you are looking for.
Hey, we are all guilty of saying, "Mood disorder, must be in the brain." Psychiatrists make their living off that. Just my opinion, but that is a huge mistake. The brain is attached to the rest of the body, feeds off the rest of the body, and is impacted strongly by what happens in the body. Mood problems of all kinds can and often do come from other places than the brain.
Mainstream medical lab tests are fairly useless for diagnosing your stuff. When someone suggests you have bloodwork done to rule out other causes, I almost cough. Typical bloodwork looks at a lot of real important stuff, but not the kind of stuff directly related to your symptoms. Did you look at TSH, freeT3, freeT4, reverseT3, and the 3 thyroid antibodies? Did you look at what cortisol is doing over a 24 hour period with 4 saliva samples?
Do you have, or ever had, silver fillings (amalgams) in your teeth? Regardless, all psych patients, in my opinion, NEED to consider lead and/or mercury toxicity and not laugh it off. All psych patients should own the book Amalgam Illness, even if they never had amalgams. There is a ton to learn about what goes wrong in the body and brain that causes symptoms, and a ton of it is in that book. Besides mercury and lead, copper is another one. People can become copper toxic and display your symptoms and history by simpling taking vitamins that have copper and drinking water from copper pipes.
Food intolerance testing? Can you guarantee by lab results that you are not intolerant of any particular foods? If not, well. What is a most common primary symptom of a delayed food reaction? Massive anxiety, followed the addition of lethargy on top of the anxiety to make quite a strange brew.
What is your reaction to Magnesium Glycinate? Is it calming? Sedating? Neutral? Runny stools? You would not be the first impossible psych case solved with simple high dose magnesium.
The moral of the story is...look where you have not looked, and try new stuff. Don't limit your search to things that work just between the ears. You might actually do yourself a huge favor by seeing a good integrative doctor rather than a psychiatrict specialist. There is obviously something impacting your brain with some power. Question is, what is causing that impact? Is it the brain itself, or is it from outside the brain?
General stuff. Probably not the direct pinpoint help you, and we all, want. Mostly endorsed by underground medicine, amalgam illness patients, autistic children's mothers, and integrative doctors, and often seen as quackery by mainstream medicine. I visit lots of forums. With all due respect to my former psychiatrists, I must admit I have seen and continue to see solid gains happen to impossible cases when people test for real causes rather than blindly attempt to treat a set of labeled neatly categorized symptoms.
Ok. So you just want some drug ideas. Well, of the ones that do make sense for your symptoms, but haven't been tried, go for those. Even if reports are sketchy or the drug isn't used that often. So what. Try it. Neurontin for example gets bad press generally, but for the minority of people it works for it really really works where nothing else does. You don't want to overlook something like that. For things that do not make sense, well, go for it. Honestly though, I think your best bet is to widen the scope of what is impacting the brain. A psychiatrist will not be able to help much with that. So if you insist on your primary treatment coming from a psychiatrist you are essentially limiting your potential of success.
Disclaimer. Lots of personal opinions. Not anti-psychiatrist, it's just that in tough cases it becomes more important to look at the whole person rather just between the ears, and they are not specialized at that.
Posted by Justherself54 on February 28, 2008, at 17:49:45
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » henryo, posted by AMY II on February 28, 2008, at 14:37:36
> I guess I thought it wouldn't be hard to put together. I am pretty straight forward with my symptoms and such. I guess you have to be careful when you go on these sites because you ARE talking to people that have mental illnesses :).
>
> Thanks for the info on dietary pills but I am well informed of those already.
>
> Thanks for sharing your story, however not close to mine.
>
> I am looking for someone that may know something, has gone through this, or is part of the profession that recognizes these things.
>
> Is there a way that you can search for old users on here? I had some really great talks with some people years ago.
>
> No offense guys, but I am coming on here for help and questions and it seems like I am getting your life story as my answer.
>
> I would love to hear it, if I could help, but I can't.
>
> I don't want to be turned off by this board because it was a great help to me in finding information in the past but nothing so far is really informative or telling me things that aren't already obvious or that I already know.
>
> I am here looking for something different....Please respond if you are that person."Is there a way that you can search for old users on here? I had some really great talks with some people years ago."
Have you tried googling at the bottom of this page? Type in your old posting name and a lot of your old posts should come up and you can then see who responded to you then.
"No offense guys, but I am coming on here for help and questions and it seems like I am getting your life story as my answer."
Everyone who is posting to you is trying to offer support to you so if you get a "life story" thrown in, please bear in mind they are trying to help.
Have you had a MRI on your head? That should go a long way in helping you with your diagnosis..other than that suggestion I have nothing to offer you other than the possibly of silent migraines which I posted before..
No one wants you to be turned off by this site, but please remember we aren't neurologists, doctors, or psychiatrists..we're all sufferers of some disorder or another..some here are extremely versed in different disorders and medications so hopefully you'll get some responses more to your taste..
Posted by bleauberry on February 28, 2008, at 18:16:39
In reply to FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOCS, posted by AMY II on February 28, 2008, at 0:43:21
I apologize Amy for the long post. Didn't mean to overwhelm you with so much stuff. It all is real important though.
I'm like you. Massive symptoms that flare up on their own. History of over 20 psych drugs and combos. Also did ECT. After all was said and done, I was worse than before.
The most important thing to me is to somehow remain capable as a parent. That means I have to reach for a drug, even though I hate it, when I know the time calls for it. Might be xanax, klonopin, zyprexa, milnacipran, ritalin, lunesta. They all serve a quick purpose at the right time. Can't tolerate anything on a day to day basis. But I can function and focus on two things...healing, kids.
Thanks to a brilliant Nurse Practioner I discovered something very foreign and weird to me. I am mercury and lead toxic. Mercury from amalgams. Lead is a mystery. My favorite drug is DMSA since it pulls those evil metals out. There have been times on it I felt so close to normal it was scary and giddy at the same time. Amazing. It's nice to know it is attainable. It is for you too. All our paths take different directions, but yours will lead to good things if you widen the lens. I never ever would have got where I am today with psych drugs alone. I would be in a coffin by my own hands. It was a mere Nurse Practioner. Go figure. Like I said, try things that don't make sense, look where you haven't look, do not scoff at anything. Admittedly, I scoffed at the whole mercury thing when I first found out. That was just totally ridiculous and unheard of. What quackery. Oh my how wrong I was. I hope you will have a similar awakening.
Posted by Phillipa on February 28, 2008, at 18:39:36
In reply to Re: Amy short follow up » AMY II, posted by bleauberry on February 28, 2008, at 18:16:39
Amy please call and ask for some help a crisis line? Your pdoc? You shouldn't be alone with three children feeling as horrible as I can feel you do. Is a family friend or family nearby? Can they stay with you? Love Phillipa
Posted by 4WD on February 28, 2008, at 21:11:18
In reply to FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOCS, posted by AMY II on February 28, 2008, at 0:43:21
> I urge EVERY SINGLE PERSON on this site to get together for the sake of one human life...MINE. Look up my postings. Started in 1999 under AMY II. That is i's not 1's. I posted here and there throughout the years and have posted recently. Look at it. Tell me what you think. Be the one to crack this f**kin case. I can't be the only one out there with this. HELP ME. I am desperate. I am a mother and a wife and am sick of this horror. I want answers. WHOEVER is intelligent out here, please help. I need comfort. I just...just...need help. I see PDOC tomorrow. I feel if you can be your own advocate you might just be able to save yourself when your doctors are overlooking something, looking too much into something, or looking completely in the wrong direction. HELP!
Tell your pdoc exactly what has been going on. Give him every detail. Don't worry about taking up too much of his time - you are in a crisis. It sounds like psychosis to me. Perhaps he will put you on an atypical antipsychotic. Geodon worked well for me but I have heard that for psychosis, Abilify might be the bette choice.
I will pray for you.
Marsha
Posted by AMY II on February 28, 2008, at 21:26:05
In reply to Re: Amy short follow up, posted by Phillipa on February 28, 2008, at 18:39:36
Not that kinda of help Phillipa...I am figuratively speaking when I am descriptive in my desperation. I am on no verge of suicide etc....Thank you.
Posted by AMY II on February 28, 2008, at 21:28:51
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » AMY II, posted by 4WD on February 28, 2008, at 21:11:18
Told pdoc everything.OCD and Anxiety is what he is going with. At first thought pyschosis because of bad thoughts, but then ruled it out. That is OCD. I read a book on it and man on man do I have it. Not the only thing going on though....This is gonna be a long road....I argued with him today (the pdoc). I just went off. So mad at this field and he replied "You really think I was gonna have an answer for you in a month?"
Posted by Phillipa on February 28, 2008, at 21:39:29
In reply to Re: Amy short follow up, posted by AMY II on February 28, 2008, at 21:26:05
Since I don't know you I was worried glad you're doing okay and talked with your pdoc. Love Phillipa
Posted by obsidian on February 28, 2008, at 21:50:44
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » 4WD, posted by AMY II on February 28, 2008, at 21:28:51
...came across this and figured I'd share it
http://www.epilepsy.com/epilepsy/simple_partial_seizures
also, is the OCD new to you? or have you had it a long time?
Posted by obsidian on February 28, 2008, at 21:58:39
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » AMY II, posted by obsidian on February 28, 2008, at 21:50:44
Posted by obsidian on February 28, 2008, at 22:03:43
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC, posted by obsidian on February 28, 2008, at 21:58:39
have you ever given one of the anticonvulsant/mood stabilizers a try? like lamictal?
Posted by AMY II on February 29, 2008, at 0:12:39
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » AMY II, posted by obsidian on February 28, 2008, at 21:50:44
Never occured to me until I happened on that book. I always thought of OCD as the extreme cleaning or can't step on cracks sort of thing. I never thought of my gory, tormenting, repetitive thoughts that are happening during "anxiety attacks" as OCD. But I read that book "Tormenting thoughts and Secret Rituals" and it fit perfect as far as those thoughts and the feelings of me going crazy because of them. It fits that perfectly. The question now is what about those physical symptoms? Are those OCD or are they something else all together.
Like I said before, I actually got into a fight with the Pdoc today over demanding an eeg. I want to rule out things that could be more serious but because I saw a neurologist in 2002 and had an MRI done and it came back normal, he thinks no other tests need to be done. Whatever!
SOMEBODY TELL ME IF YOU KNOW OF ANY TESTS THAT ARE WORTH DOING FOR ME!
DID I MENTION THAT I GO TO A TEACHING HOSPITAL (well known and good one) AND THIS IS A 3rd YEAR RESIDENT (my pdoc) that says he has to see 3 different supervisors that go over his clinical work every week? I thought this was a good thing since he was a resident he would have time to work on my case and I would have essentially more than one doctor working on my diagnosis.
Posted by AMY II on February 29, 2008, at 0:16:51
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC, posted by obsidian on February 28, 2008, at 22:03:43
Never heard of it or ever tried it. Always back to the anti anxiety. He wants to try clomipramine. He says common side effects are difficulty urinating and "WEIGHT GAIN". He said that is a big problem with this medicine. I don't want to gain anymore weight guys. I am losing weight now. If you see my previous posts I use to be an exotic dancer and model (or stripper whatever you want to call it) and after this X trip and having to go on meds I gained like 80 pounds. Every time I go off meds I start dropping it fast. I go back on a med, I gain weight. So if this one is famous for weight gain, I just know I will gain it all back plus some.
He wants to try this TCA instead of another SSRI because I have pretty much taken every SSRI there is an either have horrible side effects or I don't get enough relief to be worth it. The SNRI Effexor worked the best but still not total relief and I had to quit because my heart was at risk. I had irregular ekg's, irregular heart beats, high blood pressure (through the roof), etc.
Feeling hopeless....
Posted by AMY II on February 29, 2008, at 0:34:34
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » AMY II, posted by obsidian on February 28, 2008, at 21:50:44
I would love it if someone could find some symptoms written online of people with partial seizure disorder. It says in the link that you sent that the symptoms can be vastly different. The more the better so that I can show my Pdoc that I know what I am talking about. Thank you!
Posted by R. -T. V. 52y on February 29, 2008, at 1:34:20
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » obsidian, posted by AMY II on February 29, 2008, at 0:34:34
hi amy,
i have had mental problems since my military service in 1976, and later on also some severe other illnesses (see my previous messages),
when i have been down, i often have had help just forgetting all the illnesses and other bad things for a while and listening some good music, it has relaxed me,
so why don't you just look at my messages on "Books": Music that has helped me, relax and listen.... Maybe you find a piece of music there that will make you also feel better just for a while,
then i would be satisfied for being alive this day,
kind regards
chris
fin, eu
Posted by henryo on February 29, 2008, at 3:23:26
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOCS » polarbear206, posted by AMY II on February 28, 2008, at 14:23:04
This all happened after an x trip, powder form, after half an hour I past out I was so high that I felt like my head was coming off my body. Maybe I wasn't high at all. Maybe I had a seizure. I don't know.
Sounds like you got poisoned. Many people have done X and not passed out and never been the same. So probably at the least, it was X and something else. They put all kinds of stuff in street drugs, strychnine is fairly common, in small amounts many poisons are psychoactive. But a bit too much is a bad thing. Who knows what else it was cut with, say, Sudafed, Rohypnol, and pesticides. Mix it in a bucket and use some acetone to evaporate it into a "base" that might do it. Maybe you need to be researching toxicology sites. There could be history or a likely suspect- substance wise.
Have you ever read up on the "limber leg" poisoning also called "Jake walk" or "Jake leg"? Long story short, pretty nasty poisoning epidemic in the US in the 30's involving a cheap alcohol and a "plasticizer" whatever that is. Point being, it could have been quite unintentional and still very serious.
Who says it was even X at all. I've never heard of X in a powder. I just googled it- "MDMA also is related in its structure and effects to methamphetamine, which has been shown to cause degeneration of neurons containing the neurotransmitter dopamine." Some of the numerous symptoms fit with yours.
Posted by brooke484 on February 29, 2008, at 11:44:31
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC » obsidian, posted by AMY II on February 29, 2008, at 0:34:34
Amy,
I had a 24-hour EEG and a regular EEG, but nothing was found. I think if you have a seizure disorder you only experience derealization or depersonalization before or during the seizure (someone can correct me if I'm wrong), not all of the time. But it wouldn't hurt to have one done just to put your mind at ease.
brooke
Posted by AMY II on February 29, 2008, at 13:32:11
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC, posted by R. -T. V. 52y on February 29, 2008, at 1:34:20
Thanks for the message but if it were that easy, I would have done that a long time ago. Believe me, after 9 years of dealing with this I have tried ALOT of things. This isn't something that I can just take my mind off of. It doesn't work like that for me.
Posted by AMY II on February 29, 2008, at 13:44:23
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC, posted by henryo on February 29, 2008, at 3:23:26
Yep, it was a powder in a plastic baggy. I had done meth and coke before so I know it wasn't that. This guy I was dating was getting the X from someone else. Maybe even running it for him. I don't know. I was in the dark about it. All I know is that he put it in a little twisty plastic bag for me to swallow, I verified with him that this was gonna be "OK" and then BAM, not even 15-30 minutes later I was sooo "High" that literally my head felt like it was being pulled up to the sky right off my head. I had to go home right away, went to the bedroom and fell asleep. Definately not right.
Funny thing is, it didn't affect my boyfriend the same way afterward, but he said he didn't feel right either after taking it and also went home with me and passed out. He agreed that something was wrong.
I had done meth and coke without having panic attacks afterwards, or anxiety attacks, or any other weird symptoms. I tried acid ONCE and never did it again because of the slight hallucinations that happened. But again, never anything that happened in the way of anxiety attacks or anything. NOT until I did X. After that, I had huge anxiety attack the next day but nothing like this!Another thing I will add that may be significant is that I was fine for two days after this final x trip, powder form. It was two days later and I had this HUGE electrical surge in my head that just felt like my brain burst and then all the symptoms started from there.
I hate the psychiatrists point of view on things like looking at you differently because you used drugs. I partied like a rock star, looked like one and felt like one for a year. Ok, but that doesn't define me now. Or before that year. I feel like you just aren't taken seriously because of it. That they are always looking at you like you might be Schizophrenic or can't discern what is real and what is fake.(sorry to those of you that are, truly).
I wish I could find a doctor that does extensive testing on those that have done "X" or a doctor that has taken speical interest in these cases and the effects it has on the body.
If I only would have kept some of that drug and had it tested. I can't go back now, I can only look for answers here in the present.
Where would I look up poisoning? Why does it seem that doctors don't care to find out what is wrong with you, only to treat the symptoms you have and call it whatever they want so long as it seems to fit? Why not DIG damn it!
Posted by AMY II on February 29, 2008, at 13:52:32
In reply to Re: FIGURE ME OUT AND YOU ARE SMARTER THAN ANY DOC, posted by brooke484 on February 29, 2008, at 11:44:31
Well, my Pdoc yesterday, when he could get a word in, mentinoed derealization and how it is associated with OCD and anxiety. I wish they could just walk a mile in my shoes.....
Is it possible to find another doctor that WILL do the tests?
My Pdoc says that is not how medicine is practiced. That patients don't determine treatment or diagnosis and they can't just demand tests. Verbatim he said "You don't drive the bus, Amy".
I understand that. I get it. But I am not a one size fits all case and if I want some things ruled out then just DO IT. I have insurance and it is my money. Just do it. He is a resident anyway. The only harm to him is that he LEARNS something from it.
I told him that I thought that Doctors have big EGO's and don't want to be proved wrong especially by a Psych Patient. And that the previous Neurologist may not think there is a need for tests or want to do anymore tests because it just may show up that something else is wrong and this could have been fixed for me a long time ago if he would have just listened.
Has anyone ever watched Diagnosis X or Mystery Diagnosis? I need to be on that show. Then again, they probably aren't good shows for me to watch because it just furthers my belief that DOCS can and will get it wrong. That there are people out there that have had to search for years to get doctors to listen and to give a crap and perform test after test after test.
I am sorry but I am just not going to accept an anxiety and OCD diagnosis and a "since I can't come up with any other answers for your weird and unusual physical and neurological symptoms that aren't a part of the OCD and anxiety diagnosis, we are just gonna ignore that part??? Learn to live with it Amy"
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