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Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 15 of 15. This is the beginning of the thread.
Posted by JACJ on April 26, 2005, at 22:39:43
The side effects of neuroleptics can be very serious and they do not always resolve following discontinuation of the medication. In particular, all neuroleptics, with the exception (thus far) of clozapine have been reported to induce parkinsonism and tardive symptoms, including tardive dyskinesia and tardive dystonia. "Tardive" refers to the late occurrence of symptoms, often many months after starting the medicine, and, in some cases, many months after stopping the medicine.
I copied this from an article I was reading. What bother's me is that TD can show up many months after stopping the drug??? How much truth is there to this? I read the most is 3 months after stopping this. I know you can't trust everything you read but it concerns me. I am off the drugs a year now. I am doing much better but still have much healing to do. I am still very angry b/c I was put on these drugs for nothing and suffered so much on them and off them. I understand and respect other's who chose drugs for their lives but I am anti-drug. I am just afraid I will wake up with TD someday b/c a doctor wanted to test me on a AP and b/c I went psychotic on other drugs. I am allergic to all psychotropic drugs.
I was on AP's for 2.5 years and to me that is a long time. I just worry about permanent damage and don't know how to move on with life from here. I started this jounrey with some anxiety and depression which could have been controlled with therapy and some support along with eating right and instead I am a victim here. I just need to vent my feelings. I know this site is mroe for people who take drugs but I just wanted to vent. Thank you for listening.
JACJ
Posted by alienatari on April 27, 2005, at 1:43:36
In reply to TD and neuroleptics, posted by JACJ on April 26, 2005, at 22:39:43
I wouldnt worry about TD if you have been off the AP's for so long and nothing has happened. But Im not sure. I have TD and its slowly going away since stopping Zyprexa (got worse at first but now its slowly going. Ive read this is common.) Ive read that Vitamin E can help. Take care.
> The side effects of neuroleptics can be very serious and they do not always resolve following discontinuation of the medication. In particular, all neuroleptics, with the exception (thus far) of clozapine have been reported to induce parkinsonism and tardive symptoms, including tardive dyskinesia and tardive dystonia. "Tardive" refers to the late occurrence of symptoms, often many months after starting the medicine, and, in some cases, many months after stopping the medicine.
>
> I copied this from an article I was reading. What bother's me is that TD can show up many months after stopping the drug??? How much truth is there to this? I read the most is 3 months after stopping this. I know you can't trust everything you read but it concerns me. I am off the drugs a year now. I am doing much better but still have much healing to do. I am still very angry b/c I was put on these drugs for nothing and suffered so much on them and off them. I understand and respect other's who chose drugs for their lives but I am anti-drug. I am just afraid I will wake up with TD someday b/c a doctor wanted to test me on a AP and b/c I went psychotic on other drugs. I am allergic to all psychotropic drugs.
>
> I was on AP's for 2.5 years and to me that is a long time. I just worry about permanent damage and don't know how to move on with life from here. I started this jounrey with some anxiety and depression which could have been controlled with therapy and some support along with eating right and instead I am a victim here. I just need to vent my feelings. I know this site is mroe for people who take drugs but I just wanted to vent. Thank you for listening.
>
> JACJ
Posted by JACJ on April 27, 2005, at 6:35:43
In reply to Re: TD and neuroleptics, posted by alienatari on April 27, 2005, at 1:43:36
How long were you on Zyprexa? What doseage? How long have you been off it and what were your TD symptoms? I am very interested in movement disorders so I hope that you don't mind the questions.
Thanks,
JACJ
Posted by alienatari on April 27, 2005, at 7:56:26
In reply to Re: TD and neuroleptics. alienatari, posted by JACJ on April 27, 2005, at 6:35:43
Its cool you can ask me any question. I have been on 6 antipsychotics. Most have caused akathesia for me, sometimes taking a while to stop even after stopping the drug (tardive akathesia maybe?) and I had to take benztropine to get some releif. Solian was the first drug to give me TD, basically what I get is uncontrollable jaw biting so I bite my tongue, my lips and so on. But my jaw bites down really hard so I get cuts and sores all over my mouth. Ive been on antipsychotics for about 3 years I never really had a break from them at all until now. Was on Zyprexa for about 6 months maybe more before it started again, the same thing as what the Solian did to me, uncontrollable jaw movements. Though it was much worse with solian, I actually didnt notice it that much but my psychatrist picked it up because it was that obvious. It only happens now a couple of times a day rather then every 10-20 seconds like when I was on solian but its still annoying. Since starting Anafranil ive gotten weird mouth movements but its different, more like jaw clenching and teeth grinding (i get this on ssri's too so im not that worried). Ive read some horror stories about tardive dyskinesia and related problems with AP's, im just really glad nothing like that happened to me. I also know 2 people that have tardive dyskinesia, one from Solian (hers never went away even after stopping the drug) and another from something else that I can not recall at the moment, his went away though. He would thrust his tongue up against his teeth every 5 seconds or so it was quite obvious with him. It just surprises me that the pdocs arnt more upfront with the risks of atypicals, TD can and does happen on them. I think people should be warned about this but obviously a lot of people need these drugs and they do save lives im sure so I dont think people should just simply stop taking their meds. Take care.
> How long were you on Zyprexa? What doseage? How long have you been off it and what were your TD symptoms? I am very interested in movement disorders so I hope that you don't mind the questions.
>
> Thanks,
> JACJ
Posted by JACJ on April 27, 2005, at 15:41:42
In reply to Re: TD and neuroleptics. alienatari, posted by alienatari on April 27, 2005, at 7:56:26
Hi,
Thanks for telling me your story. I am sorry you have to deal with this. Was your friend on reglan? There are other drugs that cause TD. I stay away from drus that stop dopamine. May I ask why you still take AP's? Isn't there any other mixtures of drugs you can use? What were your dosages? I was on 5 mg of zyprexa and 50 mgs of seroquel and 80 mgs of geodon but I wasn't on them all at once. I don't know if those are high doses or not??? How long was your friends on those drugs when their TD came up? Take care too.
Posted by Phillipa on April 27, 2005, at 18:18:53
In reply to Re: TD and neuroleptics. alienatari, posted by JACJ on April 27, 2005, at 15:41:42
They used to use cogentin to keep people from getting TD. I wonder why they don't use it with newer AP's? Fondly, Phillipa
Posted by alienatari on April 27, 2005, at 18:47:37
In reply to Re: TD and neuroleptics. alienatari, posted by JACJ on April 27, 2005, at 15:41:42
Im totally off AP's and happy about it. I dont think i needed to be on them. Valium has been a great replacement. I have not heard of reglan, what is that?
My friend just changed antipsychotics and his symptoms went away. I think he had it from only 6 months of treatment. Hes on seroquel now and doesnt seem to have many problems.
Take care.> Hi,
> Thanks for telling me your story. I am sorry you have to deal with this. Was your friend on reglan? There are other drugs that cause TD. I stay away from drus that stop dopamine. May I ask why you still take AP's? Isn't there any other mixtures of drugs you can use? What were your dosages? I was on 5 mg of zyprexa and 50 mgs of seroquel and 80 mgs of geodon but I wasn't on them all at once. I don't know if those are high doses or not??? How long was your friends on those drugs when their TD came up? Take care too.
Posted by alienatari on April 27, 2005, at 18:48:55
In reply to Re: TD and neuroleptics. alienatari, posted by Phillipa on April 27, 2005, at 18:18:53
What kind of drug is congentin? I have never heard of it I dont think. Thanks.
> They used to use cogentin to keep people from getting TD. I wonder why they don't use it with newer AP's? Fondly, Phillipa
Posted by Phillipa on April 27, 2005, at 18:59:45
In reply to Re: TD and neuroleptics. alienatari, posted by alienatari on April 27, 2005, at 18:48:55
Well, when I worked in psych we gave it along with haldol, stelazine, etc to prevent all the side effects. I can't remember what category it was in but benadryl also helped. So maybe some sort of strong antihistmine? They didn't stress education of meds very well with nurses. You just had to know what it was used for and what the proper dose was. Fondly, Phillipa
Posted by JACJ on April 27, 2005, at 19:21:22
In reply to Re: TD and neuroleptics. alienatari » alienatari, posted by Phillipa on April 27, 2005, at 18:59:45
Reglan is a gastro-med and my friend has TD so bad from it. She had a dystonic reaction from it and the doctor's thought she was crazy and then put her on haldol, thorazine, etc and she is now in a wheelchair. She has a great website about TD. She is such an inspiration.
Come on Ed and others, I wanted to get your view on my first post? Can TD show up after many months? What is their classification by many months? 2? 3? 10?
Posted by Phillipa on April 27, 2005, at 20:25:48
In reply to Re: TD and neuroleptics. alienatari, posted by JACJ on April 27, 2005, at 19:21:22
Ed E-mailed me today and said he is so busy studying for exams that he won't be on the Board for a few weeks. He also apologized for not being able to answer all my E-mails. We're good friends. I need some answere too but I'm afraid he's on "temporary leave". I did see he managed to answer a few threads today. I miss you ED! Fondly, Phillipa
Posted by alienatari on April 28, 2005, at 8:11:24
In reply to Re: TD and neuroleptics. alienatari, posted by JACJ on April 27, 2005, at 19:21:22
That is truely awful, your poor friend. Do you think she will ever recover? I hope she does. Take care
> Reglan is a gastro-med and my friend has TD so bad from it. She had a dystonic reaction from it and the doctor's thought she was crazy and then put her on haldol, thorazine, etc and she is now in a wheelchair. She has a great website about TD. She is such an inspiration.
>
> Come on Ed and others, I wanted to get your view on my first post? Can TD show up after many months? What is their classification by many months? 2? 3? 10?
Posted by alienatari on April 28, 2005, at 8:12:02
In reply to Re: TD and neuroleptics. alienatari » alienatari, posted by Phillipa on April 27, 2005, at 18:59:45
Thanks for the info Ill have to check it out incase i ever go back on AP. Take care
> Well, when I worked in psych we gave it along with haldol, stelazine, etc to prevent all the side effects. I can't remember what category it was in but benadryl also helped. So maybe some sort of strong antihistmine? They didn't stress education of meds very well with nurses. You just had to know what it was used for and what the proper dose was. Fondly, Phillipa
Posted by ed_uk on April 28, 2005, at 10:05:42
In reply to Re: TD and neuroleptics. alienatari, posted by JACJ on April 27, 2005, at 19:21:22
Hi JACJ,
>Can TD show up after many months?
I can only say that I have never heard of a single case of TD appearing many months after discontinuation. I truly believe that there is no reason for you to be worried about developing TD :-)
Kind regards,
Ed.
Posted by TrustInGod on November 2, 2006, at 21:42:45
In reply to TD and neuroleptics, posted by JACJ on April 26, 2005, at 22:39:43
Heres what I found SO FAR ...ok?
http://adam.about.com/reports/000047_7.htm?terms=tardive
It says ....
Tardive dyskinesia is the most serious extrapyramidal side effect. It often manifests itself by repetitive and involuntary movements, or tics, most often of the mouth, lips, or of the legs, arms, or trunk. Symptoms range from mild to severe, and sometimes interfere with eating and walking.
They may appear months or even years after taking the drugs.
After the drug is withdrawn, symptoms can sometimes persist for weeks or months and may be permanent. Some people are more likely to develop these symptoms, including older patients, women, smokers, people with diabetes, and patients with movement disorders.
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