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Dr. Bob is Robert Hsiung, MD,
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Posted by rainy on October 30, 2004, at 20:45:54
In reply to Re: topomaxand teaching » rainy, posted by headachequeen on October 30, 2004, at 15:34:09
Kat, maybe the therapist is on Topamax and has foot in mouth syndrome. I'd love to discuss this more on babble mail, but probably not here.
You said earlier in the week that you have a mild form of epilepsy, or at least not full blown, and yet you're on all these sick making meds for it. What's worse? The malady or the cure? Could any of the medications be causing seizures?
And for you thirsty folk out there--topamax does a job on soft drinks, at least at first at least for me. Now I'm up to 12 glasses of ice water a day and know the location of every public rest room around, including those in Penn Station.
Exhausted and a little down, to bed...
rainy
Posted by headachequeen on October 30, 2004, at 20:48:44
In reply to Re: topomax, posted by reltd on October 30, 2004, at 20:41:42
> I need to lose 100+ pounds. I gained 80 pounds over the last 6 years on anti-depression meds. I no longer take them, but during those years the docs insisted they would make me lose wait not gain. WRONG. I insisted I was gaining weight. They stated it must be my fault. Well, we all know now one of the side effects of many of these drugs is weight gain. Anyway, after the last 30 pounds, I refused to take anymore. I was told by my doctor Topomax would suppress my appetit. I'm skeptical, but encouraged after reading your posts. I've experienced the tingling, but don't know about the soda. I drink water. I've got an incredible thirst. What I am concerned about is an incredible feeling of bloat. I'm constantly burping and feel as if my stomach is going to explode. I also have experienced loss of breathe. It's very unsettling. I've also had problems with stomach distress (IBS). Any thoughts. This is my last chance. I don't want to have to have surgery. It's almost that feeling you have when you are in your ninth month of pregnancy and there isn't any room inside. After I belch, I feel better. Just talking gets me out of breathe.
You didn't say what dose you are at right now.. or if you did I missed that... drinking lots of water will help avoid the kidney-related side effects of topomax so you are off to a good start...
if you are just starting, start with evening dosage... start at 25 mg for at least two weeks or until your body and system feel comfortable with the medication, then and only then move up to the next 25 increment... when you reach half the total dosage, start with morning dosage at 25 mg... so that when you reach the total dosage plan, half is taken in the evening and half in the morningalways take topomax with food... and if you have to take another seizure medication for those of you who are taking it for that reason, take the two at leaast two hours apart...
something I learned just recently...
such fun to juggle
kat
Posted by headachequeen on October 30, 2004, at 20:58:15
In reply to Re: a couple of posts back, posted by rainy on October 30, 2004, at 20:45:54
> Kat, maybe the therapist is on Topamax and has foot in mouth syndrome. I'd love to discuss this more on babble mail, but probably not here.
> You said earlier in the week that you have a mild form of epilepsy, or at least not full blown, and yet you're on all these sick making meds for it. What's worse? The malady or the cure? Could any of the medications be causing seizures?
> And for you thirsty folk out there--topamax does a job on soft drinks, at least at first at least for me. Now I'm up to 12 glasses of ice water a day and know the location of every public rest room around, including those in Penn Station.
> Exhausted and a little down, to bed...
> rainy
>Oh, rainy, you do have a way with words...
between the water for topomax and the water for diabetes and the water for tegretol I always claim that I am a washroom inspector for public health... I know every public washroom and public restroom and public powder room and every other term so used within a twenty mile radius of my house... we should form a union!!!! maybe we could get paid for thisI think we should discuss this somewhere, this being the therapists with Topamax foot in mouth syndrome... there must be others who find themselves faced with therapists with the same syndrome...
Good grief... there one is, sitting in the room with a person who suddenly wants to know what one's deepest desires for one's self is... or in the latest case I can think of, in the waiting room where there are others for other therapists as well sitting pretending to look at magazines when really they are occupying space waiting for their names to be called, he suggests as he looks one dead in the face that this should be a joint session and it would be good if one's husband came in too... and one is caught off balance trying to think of a good reason to suggest that is not a good idea...
I am trying to juggle with my feelings in these sessions, talking to a stranger, I am not sure I want to display them to someone who knows me...
good thing that in one of my incarnations I was an open-line host... I am used to thinking on my feet... my reply was feeble I am sure, but I was not ready to discuss things with the therapist really, let alone with my husband in the room...
we had just got rid of the medications and were dealing with real feelings and he wants my husband in there too????
he had the whole leg in his mouth!!!!!!
Must have been on about three thousand mgs of the stuff...
Surely M and I aren't the only ones in the alphabet with these therapists????kat
Posted by stresser on October 30, 2004, at 21:14:20
In reply to Re: a couple of posts back » rainy, posted by headachequeen on October 30, 2004, at 20:58:15
Hi everyone! I read the new posts, and they are interesting today. Let me think on this one......., but for now I will tell you that M is really thirsty also, and was from the start of topamx. Riding in the car today, she was bothered by her feet "falling asleep". What's up with that one? Do you think she should drop back 25mg? Kat- you know I'm waiting for your advice!!!
I love it that all of you can say what you want on here, because I never judge anyone for what they say. (I try not to judge at all) Isn't it amazing what we do say when our body language or "bodies" can't be seen? This is one reason this board is so theraputic for all of us. I do say things to all of you that I may not say to my closest friends. (I'm not saying all of you are not my closest friends now)
Rainy- If you tried to babble me, my computer crashed last night and we had to re-load everything. I don't think my babbles are going through to anyone either. I don't know what to do about that. -L
Posted by lorilu on October 30, 2004, at 21:52:53
In reply to Re: topomaxand teaching, posted by rainy on October 30, 2004, at 15:13:28
Right now I'm ok. To tell the truth I think I am ok for a couple of reasons. 1. I think the principal has her own issues and is probably on her own set of meds.(not kidding)2. As long as I continue to excel at my job they will overlook the little mistakes that the "dope-amax" causes. Also, not many special ed. teachers have 2 credentials and a masters so it would be hard to replace me. Parents request to have their kids in my class, go figure :)
Posted by headachequeen on October 30, 2004, at 22:00:17
In reply to Thirsty on topamax, posted by stresser on October 30, 2004, at 21:14:20
> Hi everyone! I read the new posts, and they are interesting today. Let me think on this one......., but for now I will tell you that M is really thirsty also, and was from the start of topamx. Riding in the car today, she was bothered by her feet "falling asleep". What's up with that one? Do you think she should drop back 25mg? Kat- you know I'm waiting for your advice!!!
>
The tingley reaction often accompanies the anti-seizure meds and topomax is an anti-seizure med... it will settle down ... that is the general belief... and I have to agree grudgingly as I am presently free of the tegretol tingles... even the ghastly sharp ones...
it does happen... if it is really uncomfortable then go down by 25 mg on the newest dosage for a few days and start back later... that might help...
but most of the doctors I see when I mention the tingling sensation refer to it as the tegretol tingles and nod knowlingly.... or the topomax tingles depending on which doctor it may be...
> I love it that all of you can say what you want on here, because I never judge anyone for what they say. (I try not to judge at all) Isn't it amazing what we do say when our body language or "bodies" can't be seen? This is one reason this board is so theraputic for all of us. I do say things to all of you that I may not say to my closest friends. (I'm not saying all of you are not my closest friends now)It is indeed that freedom from body language and the lack of faces that frees us to feel comfortable and to develop confidence...
too bad that M couldn't have a comfort group like this...
I still thing this is the best therapy going
>
kat
Posted by headachequeen on October 30, 2004, at 22:02:07
In reply to Re: topomax and teaching, posted by lorilu on October 30, 2004, at 21:52:53
> Right now I'm ok. To tell the truth I think I am ok for a couple of reasons. 1. I think the principal has her own issues and is probably on her own set of meds.(not kidding)2. As long as I continue to excel at my job they will overlook the little mistakes that the "dope-amax" causes. Also, not many special ed. teachers have 2 credentials and a masters so it would be hard to replace me. Parents request to have their kids in my class, go figure :)
with those credentials and abilities are we at all surprised...
and remember some of the most brilliant people often seem a little bizarre...
it hads to their mystique
kat
Posted by lorilu on October 30, 2004, at 22:11:04
In reply to Re: topomax and teaching » lorilu, posted by headachequeen on October 30, 2004, at 22:02:07
> > Right now I'm ok. To tell the truth I think I am ok for a couple of reasons. 1. I think the principal has her own issues and is probably on her own set of meds.(not kidding)2. As long as I continue to excel at my job they will overlook the little mistakes that the "dope-amax" causes. Also, not many special ed. teachers have 2 credentials and a masters so it would be hard to replace me. Parents request to have their kids in my class, go figure :)
>
> with those credentials and abilities are we at all surprised...
> and remember some of the most brilliant people often seem a little bizarre...
> it hads to their mystique
> kat
>thanks....i needed that.
Lori
Posted by redscarlet on October 30, 2004, at 22:19:07
In reply to Re: topomax and teaching » lorilu, posted by headachequeen on October 30, 2004, at 22:02:07
> > Right now I'm ok. To tell the truth I think I am ok for a couple of reasons. 1. I think the principal has her own issues and is probably on her own set of meds.(not kidding)2. As long as I continue to excel at my job they will overlook the little mistakes that the "dope-amax" causes. Also, not many special ed. teachers have 2 credentials and a masters so it would be hard to replace me. Parents request to have their kids in my class, go figure :)
>
> with those credentials and abilities are we at all surprised...
> and remember some of the most brilliant people often seem a little bizarre...
> it hads to their mystique
> kat
>
"Extraordinary people have always been misunderstood"
Albert Einstein
:-)
Posted by FionaJ on October 31, 2004, at 7:32:07
In reply to Re: Redirect: mountains and snow » Dr. Bob, posted by rainy on October 30, 2004, at 7:28:15
Posted by rainy on October 31, 2004, at 7:38:33
In reply to Re: Hallo to all of you- (nm), posted by FionaJ on October 31, 2004, at 7:32:07
Hi, FionaJ, what's up?
rainy
Posted by Dr. Bob on October 31, 2004, at 9:50:22
In reply to ooops » merry, posted by rainy on October 30, 2004, at 7:59:40
> I still don't know how to direct posts.
See:
http://www.dr-bob.org/babble/faq.html#redirect
Or just bookmark the thread over there:
http://www.dr-bob.org/babble/social/20041026/msgs/408991.html
Thanks,
Bob
Posted by stresser on October 31, 2004, at 11:13:50
In reply to Re: topomax and teaching, posted by lorilu on October 30, 2004, at 21:52:53
It's amazing how many people are on medications for depression, anxiety, disorders etc. I sub for a special ed teacher on occasion, and I know how difficult it is to have the patience and skill to work with these students. There is a difference between main
stream students and special ed. I really admire your patience, and realize how important it is for you to be alert and remember EVERYTHING. As a parent, sometimes what you think is a very obviouse "topamax stupid" is something we parents don't notice, because we ourselves "have blank moments" just chalk that up to my age.<g> If parents are requesting that their children be placed in your class, then you are doing a great job. BELIEVE ME. I know about this, because I have been around it for years. The teacher I sub for is also a friend, and she shares some of the problems she has encountered at school. These parents can be difficult to work with, so you must be a gift to these kids. -L
Posted by merry on October 31, 2004, at 11:35:50
In reply to Re: topomax and teaching, posted by stresser on October 31, 2004, at 11:13:50
Hi everyone, Just wanted to say hello. I probably won't be posting for a while until I can pay my internet bill. I am using my neighbors 'puter right now. So everyone take care and I will talk to ya'll soon.
merry
Posted by rainy on October 31, 2004, at 12:18:24
In reply to Re: ooops, posted by Dr. Bob on October 31, 2004, at 9:50:22
Sorry, I do know how to book mark. And Merry, good luck. keep us as posted as you can.
rainy
Posted by headachequeen on October 31, 2004, at 12:33:54
In reply to Re: topomax and teaching, posted by redscarlet on October 30, 2004, at 22:19:07
> > it hads to their mystique
> > kat
> >
>
>
> "Extraordinary people have always been misunderstood"
> Albert Einstein
> :-)
>That was the quote I was trying to remember...
thank you, lorilu...
sure beats, 'it Hads to their mystique'
sigh...
kat
Posted by headachequeen on October 31, 2004, at 12:35:05
In reply to Re: topomax and teaching, posted by lorilu on October 30, 2004, at 22:11:04
> > > Right now I'm ok. To tell the truth I think I am ok for a couple of reasons. 1. I think the principal has her own issues and is probably on her own set of meds.(not kidding)2. As long as I continue to excel at my job they will overlook the little mistakes that the "dope-amax" causes. Also, not many special ed. teachers have 2 credentials and a masters so it would be hard to replace me. Parents request to have their kids in my class, go figure :)
> >
> > with those credentials and abilities are we at all surprised...
> > and remember some of the most brilliant people often seem a little bizarre...
> > it hads to their mystique
> > kat
> >
>
> thanks....i needed that.
> LoriNo thanks needed, you just needed the reminder of the obvious reality
kat
Posted by Larry Hoover on October 31, 2004, at 12:52:36
In reply to Re: ooops » Dr. Bob, posted by rainy on October 31, 2004, at 12:18:24
> Sorry, I do know how to book mark. And Merry, good luck. keep us as posted as you can.
> rainySave the thread as a favourite, is all. Just as you would with any web link you want to easily return to.
Lar
Posted by headachequeen on October 31, 2004, at 13:02:09
In reply to Re: ooops » rainy, posted by Larry Hoover on October 31, 2004, at 12:52:36
> > Sorry, I do know how to book mark. And Merry, good luck. keep us as posted as you can.
> > rainy
>
> Save the thread as a favourite, is all. Just as you would with any web link you want to easily return to.
>
> Lar
> That does not work with all browsers. I do not use Internet Explorer because of all the problems with it and the browser I use does not allow me to save threads favourites. If I save a thread as a favourite, it merely sends me to the home page of the entire system... so I have lost some very interesting and informative threads that way. I learned yesterday that I have to save the link on my email whatsis (how is that for technowhiz lingo) on the desktop for email or I lose track entirely....
kat whose son-in-law the computer tech cannot make it work any better nyah nyah nyah nyah-nyah -- yes I like it when he is bested by my questions <gg>
Posted by headachequeen on October 31, 2004, at 13:21:12
In reply to Re: topomax and teaching, posted by lorilu on October 30, 2004, at 22:11:04
> "Extraordinary people have always been misunderstood"
> Albert Einstein
> :-)These parents can be difficult to work with, so you must be a gift to these kids. -L
> >
>
> thanks....i needed that.
> Lori
SEE.... Two examples of positive reinforcement from two of our members... and look at the result...
oh you people, I love you one and all... look at the effect you can have for incredible good...
positive reinforcement is you....
is us...
we are a great movement for good right here...
I am so proud of you... and so embarrassed that I missed both of these wonderful moments at the times they happened...
If this were a class my students would be throwing puppy treats at me... really they would <g> and rightly so because I always am supposed to notice these things... when clients/students respond with positive reinforcement so quickly and naturally...
it is simply wonderful
and look at the effect it has...
I am in the midst of a rotten dizzy and can hardly read day...
only on the computer... go figure... must mean I want to be here????
and this has simply made a four star day out of the worst possible...
L and Lori you are superb...
puppy treats for both of you...
in our classes that is a positive joke, not meant to be rude or detrimental, by the way <s>kat who had to go back and find those because they were really nagging at me...
Posted by rainy on October 31, 2004, at 16:17:51
In reply to Re: ooops » rainy, posted by Larry Hoover on October 31, 2004, at 12:52:36
Thank, Lar. I do know how to book mark and it works on my machine. It's just the directions on the page about how to post to another board don't make sense to me. Possible medication/alchohol scrambled brains. Or genes. You mentioned that you're a toxocologist? If so, I have several medication related questions for you, especially, Topamax. And possibly the benzodiazapines since I was on, get this, 4 mgs of klonopin qd, for at least 7
years. Quit last year and am deathly afraid of becoming addicted even though my pdoc prescibed them for me again after taking me off cold turkey. I cheated and tapered, and it was still hard.
Are you on meds?
rainy
Posted by Larry Hoover on November 1, 2004, at 7:16:56
In reply to for Larry Hoover, posted by rainy on October 31, 2004, at 16:17:51
> Thank, Lar. I do know how to book mark and it works on my machine. It's just the directions on the page about how to post to another board don't make sense to me.
You mean, like moving a reply so that it goes to another board?
When you reply to a post, you get to the "Enter your post" page. Right under where you it says that, the very first line says "Board", and beside that is a pull-down menu. The default item in the menu is the board you're already on, but you can pick a different one from the menu. Just click on the little blue square with the downward arrow, and highlight the board you want to switch to.
When you submit and confirm your post, you'll get a screen with "Thank you for contributing" or something like that. Right there is a hotlink "Here's a link to your post", or similar. Click on it, to go to your post. If you don't do this next part, no one will find your post. It will simply have disappeared into the depths of Babbleland.
When you get to your post, scroll way way down, as far as you can go. The very last bit of text on the page (not something you wrote, something bob's computer puts there) is the URL for the post. (the http://.... part) Highlight the text, and copy it.
Now, go back to board where you first were replying from. Find the post that you redirected, and reply to it again. This time, leave the "Board" part alone (because this is the notification of the change to those people who are reading the original thread), but change the subject line to something like "Redirecting to social", with "add name of previous poster selected". Paste the URL into the message box, and it will show up as a clickable link in your post. Include a little bit of the old conversation, or not, as you prefer, to show some idea of what the redirected conversation was about.
> Possible medication/alchohol scrambled brains. Or genes.Or stress. Or age. Or diet. Or?
> You mentioned that you're a toxocologist? If so, I have several medication related questions for you, especially, Topamax.
I can give you *book* answers on meds, just so we're clear.
> And possibly the benzodiazapines since I was on, get this, 4 mgs of klonopin qd, for at least 7
> years.Wowzers.
> Quit last year and am deathly afraid of becoming addicted even though my pdoc prescibed them for me again after taking me off cold turkey. I cheated and tapered, and it was still hard.
You cheated? He took you off cold-turkey? He should have a complaint filed with the authorities, IMHO. Clonazepam withdrawal can cause life-threatening adverse reactions, if done suddenly after long-term high-dose use.
> Are you on meds?
I don't do well with meds. I finally got my doctor to realize that. I get stronger effects at lower doses than most people, with one exception, the benzodiazepines.
Currently, I'm doing a trial of low-dose selegiline, which is really quite good for my cognition and such, but there are side effects, even at 5 mg. The only other meds I use are for sleep, as I have a primary sleep disorder. I take 30 mg temazepam and 25 mg trimipramine (sedating tricyclic) at bedtime.
Lar
Posted by iris2 on November 1, 2004, at 7:29:55
In reply to for Larry Hoover, posted by rainy on October 31, 2004, at 16:17:51
Testing this
Posted by rainy on November 1, 2004, at 9:02:44
In reply to Re: for Larry Hoover » rainy, posted by iris2 on November 1, 2004, at 7:29:55
Thanks, Larry and Iris2. As I remember now it wasn't cold turkery, she said decrease by 50 mgs for two weeks then off, but I went much slower than that and suffered. I found a UK site about benzo withdrawal and followed their suggestions, sort of. I stayed on the stuff much longer than my doctor wanted me to.
She did say quit wellbutrin and serzone cold turkey and I went off lamictal just so because I'd left it at home when we went out of town.
We are in charge of our bodies, I think, with our pdocs doing the best they can with what they've got. I can't express myself very well in her office, she's told my therapist that she's intimidated by me, and it would be $350 out of pocket for an initial visit to another pdoc, which I'd like to do. We can't afford it.
Looking at this, I realize how easy it is for me to get myself into medication related trouble because of lack of communication with the doctor, or just taking stuff into my own hands. And then whining on the board.
"Book answers?" by this I guess you mean not lab answers? A neurologist told me that Topmax effects the entire nervous system and is responsible for my declining handwriting, tendency to lose my balance, and other annoying neurological signs and symptoms. He also said they would disappear when the Topamax clears out of the body. Um, Lar, is this true and further, how does this medicine work? I don't understand the package insert, either. The mechinism of action part.
rainy
Posted by headachequeen on November 1, 2004, at 13:01:19
In reply to Re: topamx » stresser, posted by headachequeen on October 26, 2004, at 20:54:58
"Extraordinary people have always been misunderstood"
> > Albert Einstein
> > :-)
>
> These parents can be difficult to work with, so you must be a gift to these kids. -L
>
> > >
> >
> > thanks....i needed that.
> > Lori
> SEE.... Two examples of positive reinforcement from two of our members... and look at the result...
> oh you people, I love you one and all... look at the effect you can have for incredible good...
> positive reinforcement is you....
> is us...> I am so proud of you... and so embarrassed that I missed both of these wonderful moments at the times they happened...
> If this were a class my students would be throwing puppy treats at me... really they would <g> and rightly so because I always am supposed to notice these things... when clients/students respond with positive reinforcement so quickly and naturally...
> it is simply wonderful
> and look at the effect it has...
>> L and Lori you are superb...
> puppy treats for both of you...
> in our classes that is a positive joke, not meant to be rude or detrimental, by the way <s>
>
> kat who had to go back and find those because they were really nagging at me...
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Dr. Bob is Robert Hsiung, MD,
[email protected]
Script revised: February 4, 2008
URL: http://www.dr-bob.org/cgi-bin/pb/mget.pl
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