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Dr. Bob is Robert Hsiung, MD,
[email protected]Shown: posts 1 to 19 of 19. This is the beginning of the thread.
Posted by linkadge on August 10, 2004, at 19:30:10
I don't mean to be an entire stinge, but I hate the people who come on this board and start blithering on for hours about how drug "x" has revolutionized their life, and how once they were lost, but now they're found, and how they will never be unhappy again since they've found drug "x", and how every problem they have has just fluttered out the window, and bla bla bla, on and on. Perhaps I am being extremely bitter, but I feel like saying "just wait for the poop out", "it may be tommorow, it may me two years from now, but when it happens you'll really start to rethink exactly what normal is. Happiness is just one emotion it comes and goes just like day and night. When will people learn that this hedonic treadmill we are on just keeps spinning under our feet. Curb your enthusiasm folks for the "latest and greatest" new drug. Its in our nature to think that magic pill will come floating along, but that magic pill will make kurt cobains of us all.
Linkadge
Posted by partlycloudy on August 10, 2004, at 20:05:12
In reply to I hate when this happens........., posted by linkadge on August 10, 2004, at 19:30:10
Hey, my friend. Everyone is going to be a cheerleader when some drug *finally* works for them. I write my shopping list up here every week, it seems. If it works for me, why not for all else with the same complaints?
The hardest thing for me to accept was that what works for one (or worse, most) people doesn't work for me.
That doesn't mean that we're hopeless - we just need more homework. I compained to my p-doc about having to take 4 drugs a day to be "normal" and she replied that they just hadn't formulated a pill with all my drugs in it.
Makes you think.
Posted by Mariposa on August 10, 2004, at 20:14:01
In reply to Re: I hate when this happens........., posted by partlycloudy on August 10, 2004, at 20:05:12
true, I did it my self also, but when you feel good you just have to *share*, and I understand that.
on the other hand, it's pretty terrible that we all have to take meds...for all our different reasons...~~~8|8
Posted by JahL on August 10, 2004, at 20:24:59
In reply to I hate when this happens........., posted by linkadge on August 10, 2004, at 19:30:10
Hi L.
I'm pleased for anyone who finds respite from their own particular storm. I don't begrudge them their day in the sun one bit. We all essentially want relief from our suffering and little else.
It's inevitable that one day there will be a 'cure' for almost all our ills. Gene technology is the way forward.
Take care and good luck,
Jah.
Posted by woolav on August 10, 2004, at 22:07:48
In reply to Re: I hate when this happens........., posted by JahL on August 10, 2004, at 20:24:59
I understand what your talking about. I get so happy when i start feeling good, but then in a few months Im miserable again. Then, start over with something else. But I think we all live for those "few months/years" when we feel normal. And when you get down again, you have to keep trying. Like the others have said, one day they will have something better out there. But in the meantime, just live for those happy times. Remember the old saying "we only go around this roller coaster once, so make the best of it" or something like that. :) (granted right now, i feel better than i have in a while) but believe me i am cherishing every second.
S
S
Posted by Violet4EVR on August 11, 2004, at 0:11:05
In reply to Re: I hate when this happens........., posted by woolav on August 10, 2004, at 22:07:48
Hey there Linkaedge,
I'm sorry to hear about your disappointment. How many Meds have pooped out on you? Are you currently in the middle of "poop out phase? I understand your disdain for the vicious cycle of meds......hopefully they will develop a drug that won't "poop out."
Best wishes,
Violet4EVR
Posted by Glydin on August 11, 2004, at 7:13:13
In reply to I hate when this happens........., posted by linkadge on August 10, 2004, at 19:30:10
Some of us do have long term success with the meds we use. Mine personally is no latest and greatest, but a very old med.
Success stories are hard to come by, I'll admit. I'm sorry for your difficulites but sometimes this board needs to look at the few good results and not ALL the negative responses.
One of the most damaging things I (I'm only speaking for me) have ever heard on this board is "Oh, you might be good now, but just wait, you'll be sorry". What purpose does that serve? Maybe it's helpful for the person posting to vent but it is not helpful to hear when someone still has some hope for a good treatment.
Posted by linkadge on August 11, 2004, at 7:47:31
In reply to Re: I hate when this happens......... » linkadge, posted by Glydin on August 11, 2004, at 7:13:13
I just can't see it though. I know of nobody who is currently taking an AD for which it is working the same way it originally did. Everyone I've talked to says that after a year or so says they feel more or less right back where they started.
I don't really mean "just wait and you'll be sorry" what I mean is really just "curb your enthusiasm" because thats what really kills your spirits is when you put your hope in a treatment that just doesn't last.
I'm just really afraid that my brain is so dammaged from the crappy meds, that when a good med comes along it wont work anyway.
Linkadge
Posted by pretty_paints on August 11, 2004, at 7:53:30
In reply to Re: I hate when this happens......... » linkadge, posted by Glydin on August 11, 2004, at 7:13:13
Does it really matter that people get excited when they've found a drug that helps, after being miserable for so long?
I can understand how frustrating it must be watching people in positions you've been in yourself, but even if the drug does eventually poop out on them, what should they do in the meantime? Ban themselves from feeling good and just sit and wait for things to get bad again?
I havent found any perfect drug yet. But I do remember when I was on prozac, and was severely low, I had a good few occasions where things seemed to glitter and just a little bit of light cracked into my dead world. And even though it didn't take me anywhere near WELL, and I have since been experimenting with other stuff, I am still grateful for those minutes. I guess they remind me of the way things are out there in the 'real world'! Hopefully I'll get there one day. I don't think there will ever be a *perfect* drug for me, but if there suddenly was, I expect I'd be on here having a little dance around :)
Posted by Glydin on August 11, 2004, at 9:34:20
In reply to Re: I hate when this happens........., posted by linkadge on August 11, 2004, at 7:47:31
> I just can't see it though. I know of nobody who is currently taking an AD for which it is working the same way it originally did. Everyone I've talked to says that after a year or so says they feel more or less right back where they started.
---You need to look into hangin' with a new crowd (sorry, a little humor).
---I actually do know AD successes ever SSRI's, I really do, a person really close to me who has been on Zoloft for three years and it is still working and they lead a good quality life. A coworker on Paxil five years who is able to work and has even been promoted. A friend on Celexa and Wellbutrin - travels like a fiend and enjoys life. Another friend on a TCA for several years that's a volunteer to the homeless and previously was suicidal. Maybe these don't seem like much, but d*mn if they didn't convince me SOMETIMES, things work. Is it the meds? Is it human spirit? H*ll, I don't really know. I just know they do stick with the chemicals. I'm not just blowin' smoke up your, well, you know, on the above stories. They are true. My answer is Klonopin. It's been good for me. I figure I have a finite number of days on this earth and if the finite number of pills, 1/2 pills, whatever gives me a contented, functional life - I gotta do what I gotta do to get there. I also have to keep a bit of hope that what worked yesterday will work tomorrow. So, while I know you're frustrated and I can well see why. Successes do happen.
> I don't really mean "just wait and you'll be sorry" what I mean is really just "curb your enthusiasm" because thats what really kills your spirits is when you put your hope in a treatment that just doesn't last.
---Agreed, but sometimes, it does. I know you are jaded and I understand where your truth comes from. Try to keep in mind words of finality like: Always, Never, Every... just don't fit most situations in life.
> I'm just really afraid that my brain is so dammaged from the crappy meds, that when a good med comes along it wont work anyway.---I can understand that as a concern. I also believe in the adaptable properties of the brain. Sometimes, the ability of the brain to actually heal is overlooked. The ability it retains to repair after "insult", if indeed the meds used have insulted. True neurotoxins (those substances the scr*w up the brain to a complete altered forever functioning) that cause unrepairable damage seem rare.... that's just my opinion.
Posted by Wraith on August 11, 2004, at 13:35:02
In reply to Re: I hate when this happens........., posted by linkadge on August 11, 2004, at 7:47:31
Linkadge,
Speaking for myself, I am grateful that any pill can 'show me' how things could be. I have spent 20 years struggling with a distorted, bleak and dark world view. The only rays of sunshine to pierce this gloom have come about through the use of medication. (Therapy didn't even come close.)
Your right the pills may poop out but then again what is the alternative? If my brain gets damaged in the process of trial and error, well that's a price I am willing to pay - I honestly believe I wouldn't be here now without the benefit of medication and the patience of my Psych.
I truly wish you well linkadge. In my darkest days you replied to a post I posted about Lithium. That reply alone gave me tremendous hope and strength to carry on.
Take very good care of yourself
Wraith
Posted by linkadge on August 11, 2004, at 15:43:07
In reply to Re: I hate when this happens........., posted by Wraith on August 11, 2004, at 13:35:02
Lithium is a great substance and I wish I had stuck with it. Lithium is one of the medications I don't ever hear much about poop out. However if the med is stopped and started, there is a very real chance it will not work again. Some people believe this is because of a kind of epileptogenic kindling that is created when the brain comes off and on.
I wish I had stuck with it. I felt very normal on it, but now when I try it it doesnt do anything.
I don't doubt that things might improve for me, but I think that if I am to improve I need to find a doctor that will perhaps give an idea of mine a try, because going to the doctor again and getting another prescription for an SSRI is just too much for me. I've seen 5 psyciatrists and 3 doctors in the past 6 months and they all just keep upping the SSRI's. I feel like I've lost all hope.
Linkadge
Posted by aazospiro on August 11, 2004, at 18:17:11
In reply to Re: I hate when this happens........., posted by linkadge on August 11, 2004, at 15:43:07
The only thing the SSRI's ever did for me was empty my pocket; from Paxil to Celexa to Zoloft to the horrible Prozac. Little did I know that Serotonin was not my problem or more specifically the lack thereof. Manerix made my days a little less cloudy to the expense of severe irritability. It was moving from paniced, anxiety ridden and socially incapacitating to rude, angry, tired, fatter, and obstrusive. Amitriptyline was abSOLUTELY HORRIBLE.
Then one day the heavens opened up when I popped a full 200/ 50 Modopar/ Prolopa with my cappacino!!
IT WAS LIKE SNAP! Cool, calm, coherant, reguvanated, free of anxiety almost sleepy for like 10 minutes................WOW!
Its not been all a joyride since then [six months ago] but a hell of alot better than the previous 10 years of my pathetic existance.
I dont know what will happen tomorrow or next month or ten years from now, but for now, Thanks to science, thanks to chemists, thanks to God if you hear me, for lending me some peace at heart and mind.
Good luck to you all
Posted by cpallen79 on August 11, 2004, at 20:51:53
In reply to I hate when this happens........., posted by linkadge on August 10, 2004, at 19:30:10
Hi Linkadge,
I agree, It's hard to see others do that because you feel like they are not being sensible. Theres no such thing as a magic bullet, and most people know that. I think some folks are a bit are a little to eager to feel perfect. My philosophy is this on meds... typically I've gotten at least some type of therapeutic value from all meds I've tried... but there's no cure all... If I can sit back, enjoy life, and have pleasure, then I know a med is doing something for me... I doubt there's ever truly been anyone who has had their life changed 100 percent by a med.
Also, don't feel bad, I truly beleive that something good is going to come your way, even if you don't feel that way right now. May not be right away, but it will happen.
Best,
Chris> I don't mean to be an entire stinge, but I hate the people who come on this board and start blithering on for hours about how drug "x" has revolutionized their life, and how once they were lost, but now they're found, and how they will never be unhappy again since they've found drug "x", and how every problem they have has just fluttered out the window, and bla bla bla, on and on. Perhaps I am being extremely bitter, but I feel like saying "just wait for the poop out", "it may be tommorow, it may me two years from now, but when it happens you'll really start to rethink exactly what normal is. Happiness is just one emotion it comes and goes just like day and night. When will people learn that this hedonic treadmill we are on just keeps spinning under our feet. Curb your enthusiasm folks for the "latest and greatest" new drug. Its in our nature to think that magic pill will come floating along, but that magic pill will make kurt cobains of us all.
>
>
> Linkadge
>
>
>
Posted by linkadge on August 12, 2004, at 8:07:55
In reply to Re: I hate when this happens......... » linkadge, posted by aazospiro on August 11, 2004, at 18:17:11
"full 200/ 50 Modopar/ Prolopa" what on earth is this ????
Linkadge
Posted by woolav on August 12, 2004, at 8:50:06
In reply to Re: I hate when this happens........., posted by linkadge on August 12, 2004, at 8:07:55
Yeah what is that???? some magic drug???
S
Posted by woolav on August 12, 2004, at 8:54:18
In reply to Re: I hate when - 200/ 50 Modopar/ Prolopa, posted by woolav on August 12, 2004, at 8:50:06
whatever it is i have not found 1 english website on it. It looks like french. I did see the word parkinson's on some sites, so maybe its some kind of anti-seizure drug like zyprexa or lamictal..>???
Posted by aazospiro on August 12, 2004, at 11:01:59
In reply to Re: I hate when this happens........., posted by cpallen79 on August 11, 2004, at 20:51:53
Modopar is an antiparkinsonian drug. Its a precursor to dopamine [L-dopa]. therefore dopaminergic antidepressants or psychostims would be my magic drug so to speak
Posted by Shadowplayers721 on August 12, 2004, at 17:40:52
In reply to Re: I hate when this happens........., posted by aazospiro on August 12, 2004, at 11:01:59
Well, I think about diabetics and they do have to make changes with their meds over time. Hypertension causes med changes. My mother started out on one hypertensive med about 30 years ago. Now, she is on 4. She started out on glucophage for type 2 diabetes and now she has to take insulin shots in addition to the glucophage. She has to take something for her arthritis and something for her high cholesterol too. She is taking hormones. She is taking something for bone lose. When you think about it, she wasn't on any meds 30 years ago. So, yes, with depression it changes too. It needs adjustments additions, etc. But, my mother was depressed all her life and was *NEVER* treated for that. Perhaps, if she were, maybe she wouldn't be so unhealthy today?
I do know a guy who has been on Wellbutrin for over 10 years. I wonder if it doesn't have the poop out that SSRI do. Also, I have read that MAOI's tend to not have poop out as fast either. What's your thoughts?
This is the end of the thread.
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