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Dr. Bob is Robert Hsiung, MD,
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Posted by shar30906 on November 20, 2002, at 22:34:58
In reply to Re: Starting on Topomax for Migraines. Advice anyone?, posted by Jaycee on November 18, 2002, at 5:17:27
I suffered from debilating migranes from three car accidents for 6 years and had taken every mediaction out without much luck. the ony thing i had i has found that helped was chiropractic adjudustments, but their only as good as the dr. the dr. i had found had to move so i was left in the same boat, most of the meds i had taken left me with rebound headaches, that were worse then the migranes, so it didn't matter what i did. I had exactly the same prob with the agitation with the topamax as you did, i had to keep the dosage low at 100mg, and add depakote. they are treating migrane headaces with other anti seizure meds like neurotin, but I found the side effects of that med to be very severe, everey, med effect each of us differenty, so don't give up hope, and you might want to look into chiropractic a few shots, it is not pleasant at first but i was in so much pain at first that i coulndn't turn my head to the left for three years, and now i can, and i can't give credit for that to a med. good luck
shar309906
Posted by stampin_up_gal on November 24, 2002, at 18:24:50
In reply to Topamax Experiences?, posted by Kingfish on January 4, 2001, at 7:29:48
Hi, I just started taking Topamax two months ago for weight loss and migraines, I was having two a month. The first month was great, I was gradually upped to 100 mg and no migraines, with a 14 lb weight loss. The second month I was upped to 150 mg and I started getting severe headaches in the evening, every night. Now it has turned into one continuous migraine. I thought at first it was stress but since it didn't go away over the weekend I think it is related to Topamax. I have lowered the Topamax to 100 mg but it hasn't helped. Has anyone else had this problem? I am also on Synthroid and was wondering about an interaction causing the migraine. Can anyone help me?
Posted by beachblond on December 2, 2002, at 12:47:18
In reply to Re: Topomax-I like it...But.....Bill, posted by Bill1888 on November 4, 2002, at 15:37:14
I'm taking Topomax for bi-polar II and it definitely helps the mood swings (along with 500mg of Serazone). My issues with it are loss of concentration and ability to remember in short-term. I had to back off of 200mg a day to 100 mg and that got a little better. The worst problem now is tingling and numbness in my fingers, toes and lips. It's better at the lower dosage but still a bother. Anybody else?? P.S. I've had no weight loss. For all of this, I could at least drop a few pounds.
Posted by sjb on December 2, 2002, at 13:35:47
In reply to Topomax woes, posted by beachblond on December 2, 2002, at 12:47:18
You are not alone. The weight loss effects of Topomax, I believe, are overstated in the long run. Every time I see someone post about how they just started and are losing weight, I want to ask, hey, check back in 2-3 months. I lost weight when I went on it intially, but the weight returned after 3 months.
I did not have all the symptoms you described but I know others have. It definately is, "Dopamax" and dulls cognition. As an athlete, I found it made me noticably weaker, also.
Good Luck.
Posted by ROO on December 2, 2002, at 14:08:59
In reply to Re: Topomax woes, posted by sjb on December 2, 2002, at 13:35:47
Yeah, I have the tingly toes, fingers and lips too...
I also have sexual side effects from it....it makes me
numb "down there" too...
Posted by vagen on December 2, 2002, at 14:09:37
In reply to Re: Topomax woes, posted by sjb on December 2, 2002, at 13:35:47
I tried topomax at 12.5 mg a night for about 5 nights. I was freezing cold, exhausted, had huge shadows under my eyes, incredibile thirst, could not concentrate, could not focus, my vision was blurry, and I was very hungry.
But, I was stable.
:)I am a professional writer and I couldn't write for beans and my boss was even wondering if I took a trip to la-la land.
I think I am an oddball case though.
But, this is my experience.
I was itchy too.
Posted by JohnX2 on December 2, 2002, at 16:55:49
In reply to Topomax woes, posted by beachblond on December 2, 2002, at 12:47:18
I've take Top'a'max too. I don't think the
tingling and numbness will go away. A lot of
people get that and the majority seem to get
the confusion too. Good news on the mood clamp
though.I lost weight on Topamax because it reduced my
appetite and I ate less, not because it increased
my metabolism.J
> I'm taking Topomax for bi-polar II and it definitely helps the mood swings (along with 500mg of Serazone). My issues with it are loss of concentration and ability to remember in short-term. I had to back off of 200mg a day to 100 mg and that got a little better. The worst problem now is tingling and numbness in my fingers, toes and lips. It's better at the lower dosage but still a bother. Anybody else?? P.S. I've had no weight loss. For all of this, I could at least drop a few pounds.
Posted by whittba on December 2, 2002, at 17:24:29
In reply to Re: Topomax woes » beachblond, posted by JohnX2 on December 2, 2002, at 16:55:49
>I'm taking 200 mg a day and seem to be doing better, it was added to my 300 mg of Effexor which I had been on 4 ever. I've been a bit weepy lately but believe it's the holiday blues (my children live with their father). I noticed some tingling a while back but my Dr said that was from Neurontin which I take for neck pain.
>The only thing that I can link to Topomax is some foods taste weird and have a strange texture like I'm biting into cardboard, needless to say I do not desire to eat them. I have lost enough weight to brag about yet I still remain hopeful :DBest wishes
Posted by PAULAGAIL on December 4, 2002, at 22:29:29
In reply to oh, the combinations, posted by art1 on November 16, 2002, at 11:48:21
I AM BI-POLAR WITH SLEEP PROBLEMS, I TAKE A VARIED COMBINATION OF MEDICATIONS, 6400 MG OF NEURONTIN, 200MG OF TOPAMAX, 800MG OF SEROQUIL, 20 MG OF LEXAPRO, 15MG OF REMERON, XANAX (FOOTBALLS) ON AN AS NEEDED BASIS,AND 10MG OF AMBIEN AT BEDTIME. I HAVEN'T NOTICED ANY WEIGHT LOSS WITH THE TOPMAX BUT THE OTHER MEDICATIONS CAN CAUSE WEIGHT GAIN, GOOD LUCK WITH YOUR MEDICATIONS.
Posted by jamielynn on December 6, 2002, at 13:06:37
In reply to Re: oh, the combinations, posted by PAULAGAIL on December 4, 2002, at 22:29:29
I have run the gauntlet with all of you but I am curious-How many of us are running anywhere except to the Docs. I am a former runner and was very athletic. When life got to hectic I put the running on the shelf. I have read and talked to many people who are going the pill route and have not found anyone who can say they really give themself 45 minutes a day for themselves. Please don't get offended because of this question. I am serious. I have tried all of the usual pills and then decided to just get back to walking again. Its not as easy to workout as it would be to take a pill but I have found out the results are better. and safer. I have to know if it is just me or is everyone else exercise shy. Thanks. jamie
Posted by atlrunner2002 on December 6, 2002, at 18:36:35
In reply to How many of you posting are currently exercising?, posted by jamielynn on December 6, 2002, at 13:06:37
> I have run the gauntlet with all of you but I am curious-How many of us are running anywhere except to the Docs. I am a former runner and was very athletic. When life got to hectic I put the running on the shelf. I have read and talked to many people who are going the pill route and have not found anyone who can say they really give themself 45 minutes a day for themselves. Please don't get offended because of this question. I am serious. I have tried all of the usual pills and then decided to just get back to walking again. Its not as easy to workout as it would be to take a pill but I have found out the results are better. and safer. I have to know if it is just me or is everyone else exercise shy. Thanks. jamie
Hi Jamie,
I think I understand your point. I am on Lexapro for depression and Buspar and Xanax for anxiety. And yes, I run regularly! I just ran a half-marathon last Thursday (Thanksgiving Day), in fact.
Running used to alleviate so much of my depression and anxiety, and when it didn't help at all anymore, just as talking with friends/family, watching a funny movie or reading a good book, etc., no longer worked, I knew I was beyond anything I could do for myself, and I went to see my doctor.
Good for you for getting back to walking. I am a firm believer in exercise for the body and soul.
Atlrunner2002
Posted by vagen on December 7, 2002, at 1:35:06
In reply to Running/exercise » jamielynn, posted by atlrunner2002 on December 6, 2002, at 18:36:35
Without exercise/yoga I would really be in trouble.
I hit the gym three times a week for about an hour each. I try to take care of the whole body.
When I go like I am supposed to, I find that I have less s/e, have more energy, am not snappy, and find I am more focused. Perhaps it is taking that extra time just for me, not for the kids, the spouse, the boss, just me. That makes a pretty big statement, don't you think?
Posted by Ponder on December 7, 2002, at 9:13:17
In reply to Re: Running/exercise, posted by vagen on December 7, 2002, at 1:35:06
Another testimonial for the enormous benefits, yet limitations of exercise. There is a nature trail within walking distance of where I live. It takes an hour and a half to hike it and I do it EVERY DAY. If I skip a day, I feel agitated, anxious... you know, more than usual. Still, I need the meds, the meditation, the nutrition, the regular hours, the everything-else-necessary-to-control-bipolar. But exercise is a critical component of my treatment, no question.
Posted by Bill1888 on December 7, 2002, at 11:52:59
In reply to How many of you posting are currently exercising?, posted by jamielynn on December 6, 2002, at 13:06:37
Prior to starting drug therapy exersize and extreme sport were a religion. When I was on SSRI's I found it very hard to find the drive to exercise regularly and no help for a life long compulsize eating habit. Now on Welbutrin and 75 Mg of Topomax have less of the urge to eat compulsively and am eating much more healthy meals and have found the drive to exercise regularly. I have lost 45 pounds in the last three months. I would like to get another 50 odd pounds off and the proof will be in keeping it off but so far so good. Exercise certainly helps me deal with a highly stressful life and the ability to participate in sport (cycling, skiing, rock and ice climbing) brings its own rewards but those rewards only go so far unfortunately and after that we are left with some form of psycho or pharmo therapy. Personally I go in cycles but am rather down on psycho therapy at the moment. I am tired of talking about my depression and would rather live my life as best I can. The drugs and exercise are not a perfect answer but they seem to be helping this week.
Posted by Ponder on December 7, 2002, at 14:55:19
In reply to Re: How many of you posting are currently exercising?, posted by Bill1888 on December 7, 2002, at 11:52:59
Bill,
Are you experiencing any Topa side effects at 75 mg other than appetite suppression? What dose WB?Have to say I understand your feelings about psychotherapy. I have found it useful at times but last week my therapist, a licensed psychologist, asked me to explain to her why medical clinicians are so determined to prevent manic episodes. I asked her if she had heard of the kindling model in bipolar disorder and she had not. So I spent a fair amount of time explaining it to her, telling her what I knew of treatment algorhythms, and assuring her that hypomania is NOT just a matter of feeling extra good. I think it's important for her to know this, given that she has many bipolar patients and has just started a therapy group for bipolar women. I pay her $90 a hour for this? Oh, well. Thanks for letting me vent.
Posted by jamielynn on December 7, 2002, at 19:32:26
In reply to Running/exercise » jamielynn, posted by atlrunner2002 on December 6, 2002, at 18:36:35
Thanks for all of the responses. I thought it was just me. Although I am going back to regular exercise I was afraid the meds would make things worse. You have helped. Thanks. Jamie
Posted by jamielynn on December 8, 2002, at 0:17:12
In reply to Re: Topomax woes, posted by whittba on December 2, 2002, at 17:24:29
Just a brief history on myself - in case anyone wanted to know. Although I was having depressive days-sometimes longer than others. I had went to the doc for the depression & downright lousy moods! I am sure you know what I mean. I was a non smoker exercised regular but had put on aprox 70 lbs in 4 years. I had always been at 150 forever. Then I started smoking sometime in the mix.(now I really feel bad.)Now everyone says its age (42) After trying prozac, then wellbutin - none really helped
but on the other hand when I started getting side effects,i.e. slowing down, tiredness more that usual, which meant I didn't care if I did anything all day! I got off of them both. Finally I noticed my vision would go away in my left eye only and just for about 15 seconds at a time. After seeing a optometrist, several mri's and a couple doppler tests they found I had a psudo tumor. Now with psudo meaning "fake" guess what-no real tumor (good news) but no one -including my nuro. can tell me why this happens. When the nuro told me since she couldn't find out what it was she was going to call it MIGRAINE headaches and give me topamax for weight loss I did't put much trust in her. (Since I hadn't had a headache in several years!)
I decided to do my own research on the Topo and all the rest and you all have really helped me decide to just keep watching and see what goes on for me since the side effects are at the present worse than the depression (most days if ya know what I mean) I hope you all find the right combo for yourselves! I know the struggle you are going thru. !!! Good luck !! jamielynn
Posted by Bill1888 on December 8, 2002, at 13:09:25
In reply to Re: How many of you posting are currently exercising? » Bill1888, posted by Ponder on December 7, 2002, at 14:55:19
I might be experiencing a little bit of a dry mouth. Hard to tell because exerise demands water but I try to drink lots of water any way. I have a very demanding technical job at a software company in the telco industry. I have not really noticed any degradation in my ability to concentrate or the other dumbing effects people have mentioned here but that kind of thing is subtle so it is hard to say for sure. I am taking 150 Mg of Wellbutrin in the evening along with 50 Mg of Topomax and 25 Mg of Topomax in the AM. I am doing a group therapy thing once a week as often as I am able (when I am in town and not traveling on company business) but this is more about the interactions of the group and not so much about our own individual histories directly. I find this more useful and interesting than retreading the the same old ground of the parental relationships from long ago.
Posted by IsoM on December 8, 2002, at 13:17:30
In reply to How many of you posting are currently exercising?, posted by jamielynn on December 6, 2002, at 13:06:37
Jamielynn, I can't run. Each thump of my foot coming down sends shock waves through my head & will bring on headaches. But I love walking & can walk almost as fast as some people jog.
I don't always walk - it depends on what each day is like. But every day that I'm not feeling too much pain, I fill with activity - dancing, working or moving quickly, running up & down staris in my place when I'm cleaning. I'm ADHD & I'm grateful for it. It's often said that the hyperactivity seems to fade with age & is less in women than men, but maybe that's cause some become lazy. I credit it with helping me stay active - I can't sit still for long. But it's benefitted me as my health & physical fitness is very good for my age.
But activity has never been enough to stave off depression for me. Like others, I consider a combination of meds & life style to be what I need to feel good - or even normal. I'm glad to see so many have responded positively to your question on exercise.
Posted by bluedog on December 9, 2002, at 4:01:55
In reply to Running vs other activities » jamielynn, posted by IsoM on December 8, 2002, at 13:17:30
For those of you who have a garden where you live, I find that gardening can be a really great workout!
All that chopping, weed pulling, digging, pushing the lawn mower and pruning and than dragging the prunings to the bin can really work up a good sweat and you get to use almost every muscle in your body.
I just had a HUGE load of mulch delivered to my house this weekend and I spent the entire weekend filling barrow load after barrow load and carting it to every corner of my garden and then raking it all level.
What's more the results give you a wonderful sense of achievement and with a nice hot shower at the end of the day I felt really relaxed and satisfied and slept like a baby at night!
regards
bluedog
Posted by sjb on December 9, 2002, at 9:29:57
In reply to How many of you posting are currently exercising?, posted by jamielynn on December 6, 2002, at 13:06:37
I run between 8 - 15 miles daily and lift weights 2-4 times a week. I was not able to do this on meds and have been off of them, totally, for almost a month. This may be folly if my depression returns. I would go back (and cut back on my excercising) if I found a pill that kept me relatively sane. All the good ones pooped out and I'm tired of psychiatry in general.
Posted by sjb on December 9, 2002, at 9:38:44
In reply to Re: How many of you posting are currently exercising? » Bill1888, posted by Ponder on December 7, 2002, at 14:55:19
I hear ya. I used to find myself explaining things to therapists, also. I read books before they did, was up meds and their side effects better than they were, and they for the most part, were against the amount of excercise I do.
Posted by highanxiety on December 9, 2002, at 14:38:37
In reply to How many of you posting are currently exercising?, posted by jamielynn on December 6, 2002, at 13:06:37
I have always excercised (im on 75 mgs remeron)...I still do despite the wonderful 45 lb weight gain (makes excercize rather pointless)...only now the high dosage has made me very heat sensitive (all my sensory stuff worse). Normally thin as a rail, and excercise makes me burn more, but not on remeron.
Posted by IsoM on December 9, 2002, at 14:48:42
In reply to Re: Gardening can be really physical!!, posted by bluedog on December 9, 2002, at 4:01:55
Gardening can be hard work alright! I'm pretty strong for my age (53) but I do have joint pain & I'm not that big a woman (only 120 lb) so when heavy work needs doing, I've got to call in some strong young guy to lift huge rocks, & dig in compacted soil. But there's nothing like working up a sweat with a cool breeze blowing. Because all SSRIs have made me much warmer, I need to work in the coolest part of the day in warm weather. Bluedog, have you found any of your meds have increased your body heat?
Posted by bluedog on December 9, 2002, at 23:06:21
In reply to Re: Gardening can be really physical!! » bluedog, posted by IsoM on December 9, 2002, at 14:48:42
> Gardening can be hard work alright! I'm pretty strong for my age (53) but I do have joint pain & I'm not that big a woman (only 120 lb) so when heavy work needs doing, I've got to call in some strong young guy to lift huge rocks, & dig in compacted soil. But there's nothing like working up a sweat with a cool breeze blowing. Because all SSRIs have made me much warmer, I need to work in the coolest part of the day in warm weather. Bluedog, have you found any of your meds have increased your body heat?
Hi Iso
Good to hear from you! I am still trying to get either a Yahoo or Hotmail email account up and running. I have tried and I've tried again everyday this week and no matter what I do I can't seem to get it to work for me!! Has anyone else had such difficulty setting up one of these accounts? Anyway, I'm going to get my brother to come over this weekend to give me a hand. He is an electronic technician and is a true computer "Wizz". Hopefully I'll have it up and running by next week :).
Regarding the ssri's. I have heard that the ssri's can affect the temperature regulatory systems in your body. I have a very close friend who also happens to be a qualified and registered psychiatric nurse. She herself went through a bout of depression and was on Zoloft for 4 years. She tells me that she had the opposite problem to you and she had difficulty keeping herself warm while she was on the Zoloft. However she was on the maximum therapeutic dose recommended for this medication!!!
Personally I have not had any problems on my current medications (20mg generic Prozac and 2.5mg Diazepam twice per day). However with my previous medication (Effexor XR) I definitely suffered from excessive sweating...usually at night. I used to suffer from horrible night sweats when on the Effexor and I would wake up with the bed literally soaked in a pool of sweat such as that I used to swap sides {and put my poor dog on the wet patch... LOL :) :) } You have probably guessed at this stage that I share my bed with a dog (or two..though the female seems to prefer her own space and will only join us on the really cold nights). Anyway because I used to get drenched in sweat I would go from overheating to suffering from chills from the wet sheets. Thank god the Prozac does not have this effect on me!!!!
NOW, having aired my above views I actually have another possible theory (or HYPOTHESIS as Larry prefers to say) about why you get so hot when gardening in the heat of the day and it does not have as much to do with the medications that you take but they may still contribute to your problem. My theory goes as follows:
I believe that the difference between you and me (disregarding any age and gender differences) actually relates to the CLIMATE in which you live. I have read articles that state that the metabolism between persons who live in hot climates actually differs to the metabolism of persons who live in cooler climates (I don't know how far north in Canada you live but you may live in an outright cold climate...The Yukon for instance????? or perhaps you live further inland away from the moderating effect of the sea on the climate????). The human body is an amazing adaptive organism and people living in colder climates literally have "thicker blood" and a more sluggish metabolism.(Don't ask me about the science on this matter)
I have personally experienced this difference from both sides of the coin. I currently have a very close friend who comes from a northern European country (where it snows and and the lakes freeze over in winter) staying in my beautiful city for a 6 month period. She arrived in the middle of our winter and while us locals were shivering and rugging up in thick wooly jumpers (sweaters) she was practically running around in summer dresses and wanting to go to the beach for a swim. However now that the weather is starting to warm up slightly she is suffering enormously from what she terms "stifling" heat and we all love to tease her about this. It's not even really that warm yet. Here's a sample of the current temperature in my city with a forecast for the coming days:
Current Temperature 30°C
Forecast Maximum 34°C
Hot. Windy.Relative Humidity is 18%
Barometer is at Q1018.7
Visibility is at 10+ kmForecast Min Max
Wed 19 37
Thu 18 29
Fri 14 26I have other friends who have migrated to Australia permanently and within a couple of years they also start feeling the cold during our winters and also enjoy the very pleasant summer temperatures that we get as their systems slowly adapt to the local climate, their metabolism changes and their blood "thins out"
From my own personal experience I lived 2 years in a Northern European country during my 20's and I was constantly suffering from cold (even the summers were more like our autumns in this country) What's more my SAD symptons were absolutely shocking and I hated the really short winter days where it didn't get light until 9.00am and it was already dark by 4.00pm and the sky was also so much lower in general.
So my thoughts on this matter is that the combination of the ssri you take PLUS actually living in a cooler climate creates the conditions in your body that make you overheat when you do your gardening in the hotter part of the day. I think that because in Canada you have shorter summers than in Australia that your body has less time to adapt to the higher summer temperature each season. I'd hazard a guess that you adapt more quickly to the winter cold...am I right???
Do you think that we should trouble Larry to perhaps give us a more scientific explanation for my hypothesis?
warm regards {no pun intented :)}
bluedog
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