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Dr. Bob is Robert Hsiung, MD,
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Posted by kparis on June 2, 2006, at 16:56:24
In reply to Re: Cymbalta withdrawal - Ellimae, posted by gapsgal on June 1, 2006, at 22:05:40
Hi All,
Day nine and counting!
I saw my GP today and he agreed that this is an evil drug to get off of. He also said that there were many more side effects than with most other drugs of its kind. My BP is high and I need to have a kidney function test done on Monday along with other tests. He said that I have to get my BP down and that will help with the edema. He does not feel that I will need to be on BP meds when I'm finished with the withdrawal. I feel like crap. A sausage about to pop. Blah.
Hope you're all doing well/better than yesterday/all that is good.
Kparis
Posted by Avalon on June 2, 2006, at 17:15:03
In reply to Re: Cymbalta withdrawal - Ellimae, posted by kparis on June 2, 2006, at 16:56:24
Kparis, that's great that you've made it 9 days but really discouraging that you're still having symptoms. I am now down to every other day, I dump increasing # of granules out each time so I'm probably down to about a 15 mg dose. And I already have waves of nausea here and there, and I'm not even completely off it yet. I'd like to stop after tomorrow's dose, but I'm so afraid. I am trying to get my house ready to sell so there's a lot of work to be done, and I can't afford to be sick....especially for an extended period of time!
Please keep us posted and hope you feel better soon.
Posted by gapsgal on June 3, 2006, at 11:07:16
In reply to Re: Cymbalta withdrawal - Ellimae, posted by kparis on June 2, 2006, at 16:56:24
I am down to 15 mg as well, i have been told that my kidneys are losing function and that I may have kidney disease, could this be a coincidence? Do you think our kidneys have been damaged by this drug? I have already lost 30 percent of my overal kidney function which should be at 90.
> Hi All,
> Day nine and counting!
> I saw my GP today and he agreed that this is an evil drug to get off of. He also said that there were many more side effects than with most other drugs of its kind. My BP is high and I need to have a kidney function test done on Monday along with other tests. He said that I have to get my BP down and that will help with the edema. He does not feel that I will need to be on BP meds when I'm finished with the withdrawal. I feel like crap. A sausage about to pop. Blah.
> Hope you're all doing well/better than yesterday/all that is good.
> Kparis
>
Posted by kparis on June 3, 2006, at 12:07:06
In reply to Re: Cymbalta withdrawal - Ellimae, posted by gapsgal on June 3, 2006, at 11:07:16
I am so sorry about the kidney function. Could be it has affected our kidneys. I had an extremely difficult time yesterday/last evening. When will it end? It seems that one gets through what one thinks is the worst of it and then something else crops up and feels like the worst of it. This is not okay. We truly must watch our kidney functions and ask many questions. If it is destroying our kidneys, what are we to do? It feels like something out of a B horror movie!
Kparis
Posted by gapsgal on June 4, 2006, at 11:06:53
In reply to Re: Cymbalta withdrawal - Ellimae, posted by kparis on June 3, 2006, at 12:07:06
I never linked my kidney problem to this until I began reading other posts. The sad thing is that Eli Lilly would never admit to this if it is related.
Donna
> I am so sorry about the kidney function. Could be it has affected our kidneys. I had an extremely difficult time yesterday/last evening. When will it end? It seems that one gets through what one thinks is the worst of it and then something else crops up and feels like the worst of it. This is not okay. We truly must watch our kidney functions and ask many questions. If it is destroying our kidneys, what are we to do? It feels like something out of a B horror movie!
>
> Kparis
Posted by kparis on June 4, 2006, at 15:08:23
In reply to Re: Cymbalta withdrawal - Ellimae, posted by gapsgal on June 4, 2006, at 11:06:53
http://www.yourlawyer.com/newsletter/read/57
this site talks about Cymbalta.
My kidney pain goes on and on. Tuesday I'll have tests done. My GP feels that Cymbalta is to blame.
I'll keep you posted.
Be well!
KParis
Posted by kparis on June 5, 2006, at 21:00:22
In reply to Re: Cymbalta withdrawal » secretme, posted by kparis on April 30, 2006, at 11:28:38
Is no one any longer reading/responding/sharing on this blog?
Posted by Avalon on June 5, 2006, at 22:03:30
In reply to Re: Cymbalta withdrawal, posted by kparis on June 5, 2006, at 21:00:22
Hi KP, I'm still here. In fact, I have an update from my appt with my PM doc this morning. As you may recall, when I called his office to tell him I was going through withdrawal, I was told I should NOT be going through withdrawal from Cymbalta. So that was a couple weeks ago and I went back on the drug and have been slowly tapering off ever since. Today I probably took about 5 mg worth. So at my appt today, he again tells me he doubts it was withdrawal, it was probably a stomach flu. When I started to say what the packaging said about the symptoms from abrupt discontinuance (which included nausea, which I had), he cut me off and said he was quite aware of what was in the prescribing information, and that abrupt withdrawal meant going from a much higher dose to zero ... not 30 mg like I had been on. So I just let the conversation drop, I wasn't about to argue and I certainly wasn't about to cite the Internet, you know how much they love that. He said no other patients have complained of this. His nurse told me she went off it and had no problems. So I guess we all just have the stomach flu...for weeks on end.
I think I will try not taking anymore after today's dose. I'll let you know how I feel in a few days. I hope I don't get sick because I'm having dinner with friends Thurs. night. How are YOU feeling?
Posted by gapsgal on June 5, 2006, at 22:13:26
In reply to Re: Cymbalta withdrawal - Ellimae, posted by kparis on June 4, 2006, at 15:08:23
I have submitted my info to the law site you suggested and hope you did the same. Maybe if enough of us do this something can be done.
Donna
> http://www.yourlawyer.com/newsletter/read/57
>
> this site talks about Cymbalta.
>
> My kidney pain goes on and on. Tuesday I'll have tests done. My GP feels that Cymbalta is to blame.
>
> I'll keep you posted.
>
> Be well!
> KParis
Posted by gapsgal on June 5, 2006, at 22:16:03
In reply to Re: Cymbalta withdrawal, posted by Avalon on June 5, 2006, at 22:03:30
Do you plan to continue seeing this doctor? I have just about had it with these doctors who are not up to date on this and act like we are all idiots.
> Hi KP, I'm still here. In fact, I have an update from my appt with my PM doc this morning. As you may recall, when I called his office to tell him I was going through withdrawal, I was told I should NOT be going through withdrawal from Cymbalta. So that was a couple weeks ago and I went back on the drug and have been slowly tapering off ever since. Today I probably took about 5 mg worth. So at my appt today, he again tells me he doubts it was withdrawal, it was probably a stomach flu. When I started to say what the packaging said about the symptoms from abrupt discontinuance (which included nausea, which I had), he cut me off and said he was quite aware of what was in the prescribing information, and that abrupt withdrawal meant going from a much higher dose to zero ... not 30 mg like I had been on. So I just let the conversation drop, I wasn't about to argue and I certainly wasn't about to cite the Internet, you know how much they love that. He said no other patients have complained of this. His nurse told me she went off it and had no problems. So I guess we all just have the stomach flu...for weeks on end.
>
> I think I will try not taking anymore after today's dose. I'll let you know how I feel in a few days. I hope I don't get sick because I'm having dinner with friends Thurs. night. How are YOU feeling?
Posted by kparis on June 6, 2006, at 5:34:53
In reply to Re: Cymbalta withdrawal, posted by Avalon on June 5, 2006, at 22:03:30
Hi Avalon,
It is so frustrating to have a doc tell you that it's "all in your head." Here we are trying to feel better and we only end up feeling worse because they are telling us we're not really feeling like what we are feeling because they never heard of it.
I hope you do well stopping your Cymbalta. It is so very hard but having the strength to say that you are not going to put that poison into your body is a wonderful and brave thing to do.
I'm feeling horrible. Fortunately, my psychiatrist, GP, and pharmasist are all very supportative. I am feeling worthless, my kidney pain is out of this world, and the extra weight and edema is making me feel ugly and old. Time will tell. I see my GP today for kidney function tests and my psychiatrist called me yesterday and talked to me for quite awhile. She is really wonderful and said that she has much to learn about the drugs she prescribes because all she really has to go on are what the companies tell her and most importantly the feedback from her patients.
I'll let you know how I make and and I hope you do well with stopping the "evil drug."
KestaP
Posted by kparis on June 6, 2006, at 5:36:43
In reply to Re: Cymbalta withdrawal - Ellimae, posted by gapsgal on June 5, 2006, at 22:13:26
> I have submitted my info to the law site you suggested and hope you did the same. Maybe if enough of us do this something can be done.
>
> Donna
Hi Donna,
I haven't as yet. I'm waiting to see what my kidney function results are so I'll have even more amunition!
Feel better,
KestaP
>
>
>
>
>
>
> > http://www.yourlawyer.com/newsletter/read/57
> >
> > this site talks about Cymbalta.
> >
> > My kidney pain goes on and on. Tuesday I'll have tests done. My GP feels that Cymbalta is to blame.
> >
> > I'll keep you posted.
> >
> > Be well!
> > KParis
>
>
Posted by Jaspar on June 6, 2006, at 16:46:03
In reply to Re: Cymbalta withdrawal - Ellimae, posted by kparis on June 6, 2006, at 5:36:43
My weird visual/vertigo withdrawal thing is only happening a few times per day now, so it is definitely better.
I'm back to pain and depression. I have just started on a nutritional supplement regimen recommended for depression & anxiety WITHOUT the SAM-e which I want to wait on until all the Cymbalta is out of my system and I have ZERO withdrawal symptoms left... maybe a couple more weeks. I want to be SURE of how I react to the SAM-e.
I am a bit surprised that I am as depressed & anxious as I am... even more than before I went on the Cymbalta... but maybe I still had some of the Zoloft in my system when I went on the Cymbalta. I don't remember. :-(
-Jaspar
Posted by Avalon on June 7, 2006, at 12:07:20
In reply to Re: Cymbalta withdrawal, posted by Jaspar on June 6, 2006, at 16:46:03
Jaspar, you're probably depressed over everything the stupid Cymbalta has put you through! Really, sorry to hear of your pain and depression but I understand not wanting to introduce anything new until your system is cleared. My doctor wants me to start on the Pamelor but I want to make sure I'm clear of Cymbalta (it's day 2 of withdrawal and I did feel sick this morning). Plus I just started Kadian and I want to make sure I can tolerate that before starting something else.
Hang in there and we're here for you!
Posted by Avalon on June 10, 2006, at 21:44:44
In reply to Re: Cymbalta withdrawal, posted by Avalon on June 7, 2006, at 12:07:20
Well, it's day 5 since I discontinued the C-word. Each day I've felt progressively worse. Today is the worst -- dizzy and nauseous. I tried to shake it off by taking a walk, but instead of shaking it off, I just ended up shaking (literally), in addition to being dizzy and nauseous. I had to turn around and come home. It is difficult for me to even write this, as it seems every movement brings on the dizziness, which thens brings on the nausea. I have an appt with my PM on Mon. but he already thinks I'm off-the-wall (per my previous posts from last Mon.) so attributing this to Cymbalta withdrawal will undoubtedly get the same or worse reaction. He wanted me to start Pamelor but this is exactly why I wanted to wait -- I would not have known whether this was a result of Cymbalta withdrawal or a reaction to Pamelor. I sure hope this doesn't last long -- I am pretty much useless and have been either sleeping or lying on the couch nauseous all day.
Posted by kparis on June 11, 2006, at 7:55:12
In reply to Re: Cymbalta withdrawal, posted by Avalon on June 10, 2006, at 21:44:44
Oh Avalon! I am so sorry! However, you are not alone in the way you are feeling. That is EXACTLY how I felt at the same time of withdrawal. My heart hurts for you. It will get better. I've been off for 18 days now and what you are describing went away after about a week, and other things started bothering me.
My doc said that after 2 weeks I'd start feeling better. I did but on day 15 I felt like crap, felt good on day 16 and like crap on day 17. We'll see today. She said it can take 4-6 weeks to feel like one's self. But I think your worst will be over soon. The sweating, feeling nauseated, weak, etc. passes. I drank a ton of water, worked on the building our house with my husband, and kept a spray bottle at hand for those horrible sweats. I ate tons of watermelon, oranges, bananas, cucumber, and all of the watery fruits. Small doses (1/4mg) of Klonopin helped with many of the symptoms. Please keep us posted!
I'm, as I'm sure we all are, with you.
Be well,
Kesta
Posted by SLS on June 11, 2006, at 8:39:36
In reply to Re: Cymbalta withdrawal » Avalon, posted by kparis on June 11, 2006, at 7:55:12
Hi.
I'm sorry that you had such a horrific experience with this drug. There has to be a better way.
Which symptoms did Klonopin help with?
- Scott
Posted by SLS on June 11, 2006, at 9:20:47
In reply to Re: Cymbalta withdrawal, posted by Avalon on June 10, 2006, at 21:44:44
> Well, it's day 5 since I discontinued the C-word. Each day I've felt progressively worse. Today is the worst -- dizzy and nauseous.
You are going through the worst of it. Benadryl is sometimes used to lessen the severity of the withdrawal symptoms, although it can cause drowsiness. For the nausea, ginger might be helpful. It does several things in the body to treat things like dizziness and motion sickness. In fact, one of its components acts to block 5-HT3 serotonin receptors, just like the drug ondansetron, and thus can be used as an anti-emetic to prevent nausea.
Was it your doctor's directions that you should stop the drug without tapering? Actually, even using the 20mg capsules isn't a small enough dose to use to design an effective taper schedule. You would have to open the capsules and divide its contents into smaller doses.
Good luck with Pamelor (nortriptyline). Most people respond to 75mg when treating depression. Lower dosages seem to be effective when treating pain disorders like fibromyalgia and neuropathies. Although not necessary, one can monitor blood levels to determine if they are taking too much or too little. If this is your first time taking a tricyclic antidepressant (TCA), you might experience a great deal of sedation. However, this usually passes within a few days. Most people start at 10mg.
I wish you didn't have to go through such a torturous ordeal.
- Scott
Posted by gapsgal on June 11, 2006, at 9:51:53
In reply to Re: Cymbalta withdrawal » Avalon, posted by SLS on June 11, 2006, at 9:20:47
Well I am opening my 20 mgs. now and am down to 10 mgs. Not sure how far down I will need to go to avoid the awful withdrawals that I experienced on my previous taper.
I see my specialist Thursday regarding my kidney disease. I have seen on here there are others that have kidney function problems and although it has not been proven I just wonder if it could be drug related.
The liver can cause kidney disease when damaged, and Cymbalta has been proven to cause liver damage so by power of association i just wonder.
Donna
> > Well, it's day 5 since I discontinued the C-word. Each day I've felt progressively worse. Today is the worst -- dizzy and nauseous.
>
> You are going through the worst of it. Benadryl is sometimes used to lessen the severity of the withdrawal symptoms, although it can cause drowsiness. For the nausea, ginger might be helpful. It does several things in the body to treat things like dizziness and motion sickness. In fact, one of its components acts to block 5-HT3 serotonin receptors, just like the drug ondansetron, and thus can be used as an anti-emetic to prevent nausea.
>
> Was it your doctor's directions that you should stop the drug without tapering? Actually, even using the 20mg capsules isn't a small enough dose to use to design an effective taper schedule. You would have to open the capsules and divide its contents into smaller doses.
>
> Good luck with Pamelor (nortriptyline). Most people respond to 75mg when treating depression. Lower dosages seem to be effective when treating pain disorders like fibromyalgia and neuropathies. Although not necessary, one can monitor blood levels to determine if they are taking too much or too little. If this is your first time taking a tricyclic antidepressant (TCA), you might experience a great deal of sedation. However, this usually passes within a few days. Most people start at 10mg.
>
> I wish you didn't have to go through such a torturous ordeal.
>
>
> - Scott
>
Posted by Avalon on June 11, 2006, at 12:47:26
In reply to Re: Cymbalta withdrawal » Avalon, posted by SLS on June 11, 2006, at 9:20:47
Scott, thanks for the advice. In response to your question, I had only been on Cymbalta 3 weeks so my dr. said to drop from 60 to 30 for 3 days then stop. I did so, then got very nauseous 3 days later. Went back on, then tapered VERY slowly for about 3 weeks. At the end I was opening the capsules and counting the tiny granules -- I think I was down to about 5 mg. when I stopped Mon. It is now Day 6, I just got up a little while ago and unfortunately, I'm still nauseous. I have to drive 2 hrs. later to go home for my appt tomorrow with my PM -- not sure how I'm going to handle driving while feeling like s*it. And as I mentioned, my dr. does not want to hear that my symptoms are being caused by Cym withdrawal. He will probably attribute it to the Kadian that I started taking Mon. I KNOW it's not the Kadian. I felt fine on Mon. and Tue., then started with slight nausea on Day 3, building to yesterday's dizziness/nausea. This is the same scenario I went through before with Cymbalta. Oh well... I am going to try to get a piece of toast down now...
Posted by kparis on June 11, 2006, at 13:28:50
In reply to Re: Cymbalta withdrawal » kparis, posted by SLS on June 11, 2006, at 8:39:36
The Klonopin helps with the nausea and the general all over aching.
I got my results back from my blood work and everything looks great! The edema is caused by the high bp which was caused by the Cymbalta. I'm on meds for that and it is back to normal and the edema is waning.
My doc told me that Cymbalta is now being given to children instead of Ritilan (sp?). How frightening is that?!
Kesta
Posted by SLS on June 11, 2006, at 13:33:14
In reply to Re: Cymbalta withdrawal, posted by Avalon on June 11, 2006, at 12:47:26
> Scott, thanks for the advice. In response to your question, I had only been on Cymbalta 3 weeks so my dr. said to drop from 60 to 30 for 3 days then stop. I did so, then got very nauseous 3 days later. Went back on, then tapered VERY slowly for about 3 weeks. At the end I was opening the capsules and counting the tiny granules -- I think I was down to about 5 mg. when I stopped Mon. It is now Day 6, I just got up a little while ago and unfortunately, I'm still nauseous. I have to drive 2 hrs. later to go home for my appt tomorrow with my PM -- not sure how I'm going to handle driving while feeling like s*it. And as I mentioned, my dr. does not want to hear that my symptoms are being caused by Cym withdrawal. He will probably attribute it to the Kadian that I started taking Mon. I KNOW it's not the Kadian. I felt fine on Mon. and Tue., then started with slight nausea on Day 3, building to yesterday's dizziness/nausea. This is the same scenario I went through before with Cymbalta. Oh well... I am going to try to get a piece of toast down now...
Good luck :-)
I don't know what is preventing these doctors from acknowledging the existence withdrawal syndromes. Don't they see multiple patients who are reporting the same thing? It's not that rare. It must be a character flaw.
You did everything right.
I guess 2-3 weeks is the magic number. That's the time it takes for the brain to make some adjustments in response to the presence of the drug. Now, it must adjust to the absence of the drug. Your doctor probably doesn't fully appreciate how one can become accomodated to a drug after only two weeks.
What were the side effects that you experienced when you first started taking Cymbalta?
- Scott
Posted by Avalon on June 11, 2006, at 15:13:31
In reply to Re: Cymbalta withdrawal » Avalon, posted by SLS on June 11, 2006, at 13:33:14
My doctor does not believe that going from 60 mg to 30 to zero would cause withdrawal. He acknowledges that an abrupt discontinuance from say, 120 to nothing, would cause withdrawal, but feels the dose I was on was "nothing" and that I must've had the stomach flu. No, he said he's had no other patients go through this. I am hyper-sensitive to side effects so I'm not surprised I am experiencing this -- but I AM surprised he hasn't had ONE other patient who's had any problem going off it?
On your question about what side effects I had while I was on Cymbalta: I was only on it a few weeks and I did not have nausea while on it, but I did have dry mouth and burning/sore tongue that was making me miserable, so I decided to go off it. Little did I know what I was in for!
Posted by bethford on June 12, 2006, at 7:40:05
In reply to Re: Cymbalta withdrawal, posted by kparis on June 11, 2006, at 13:28:50
> The Klonopin helps with the nausea and the general all over aching.
>
>
Greetings Kesta,I was just looking through here for info about my own Cymbalta withdrawals and saw that you're taking Klonopin. Just wondering if you're aware that Klonopin is HIGHLY addictive. You may already know this, but wanted to pass the word along just in case you haven't.
And to all of you I'd like to say thanks--reading these threads have been very very helpful.
Posted by kparis on June 12, 2006, at 10:59:29
In reply to Re: Cymbalta withdrawal » kparis, posted by bethford on June 12, 2006, at 7:40:05
> > The Klonopin helps with the nausea and the general all over aching.
> >
> >
> Greetings Kesta,
>
> I was just looking through here for info about my own Cymbalta withdrawals and saw that you're taking Klonopin. Just wondering if you're aware that Klonopin is HIGHLY addictive. You may already know this, but wanted to pass the word along just in case you haven't.
>
> And to all of you I'd like to say thanks--reading these threads have been very very helpful.
Absolutely. I've used it in conjunction with the Cymbalta for my panic attacks. I completely stopped the K 8 weeks before the Cymbalta. Not a problem. I now take it for the stomach upset, etc. Thanks for your warning...it's appreciated. I take such a small dose (1/8 to 1/4 mg every other day or so) that I have no fear about getting off of it again. Also, my gastro doc suggested I take it when my stomach is bothering me from IBS...it helps with that too, but I won't use it for that because of the addictive qualities.
Kesta
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