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Dr. Bob is Robert Hsiung, MD,
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Posted by DynaUnity333 on November 26, 2004, at 19:25:09
In reply to Re: A message for Jeroen, posted by Jeroen on November 26, 2004, at 16:49:27
Jeroen,
i now its hard right now but you have to stop the thinking about your life being over.
Right now your life is different than it was six months ago, and from your perception not in a way that is better but in a way that is infact worse.
However just imagine how your life could be in another six months time. It could be better than you have ever known it,
The point is, the medication you believe did this to you (if it was the Geodon) is not currently being taken by you, so that can only be a positive thing.
It must be very scary for you right now because its new and unexpected, but listen to those who are offering their advice, try to answer the questions being asked of you, and try to stop imagining the worse.
Speak to your doctor, explain how bad you feel about it and get referred to wherever it takes to get an opinion and treatment you are happy with. Plus take the vitamins suggested. Sometimes people dismiss vitamins and supplements because no-one has to write an allowance for them on a piece of paper, however they are often just as helpful than anything a doctor can provide.
Posted by ravenstorm on November 26, 2004, at 20:34:02
In reply to Jeroen, posted by DynaUnity333 on November 26, 2004, at 19:25:09
Jeroen--Please stop self medicating. It seems from your posts that you are just ordering meds on line and trying them. It just isn't safe to do that! Especially if you have never been diagnosed. If you have anxiety and social phobia, anti-psychotics aren't the first line of medications to try. If you are not under a psychiatrists care, please make sure you make an appointment to see one. Have you told the neurologist you went to that you tried Geodon or were you afraid to tell him/her because you ordered it on line?? He/she needs to know that in order to treat you effectively.
Please, please, please, it is time for the professionals to take over. Please stay with us.
Posted by Sebastian on November 26, 2004, at 21:38:16
In reply to Re: im thinking of WHY!, posted by Jeroen on November 26, 2004, at 13:39:16
Dude,
You are panicing. People don't die when they get TD, do they? What does your doctor say about it? Do you wear shades? Psychotropic meds make your eyes very sensitive to light. I notice when I'm taking too much, that I scwint and blink. How many meds do you take at what doses?
Posted by Jeroen on November 27, 2004, at 4:56:13
In reply to Re: im thinking of WHY!, posted by Sebastian on November 26, 2004, at 21:38:16
im taking zyprexa 10 mg for 1.4 weeks now
Posted by Sebastian on November 27, 2004, at 10:16:43
In reply to Re: im thinking of WHY!, posted by Jeroen on November 27, 2004, at 4:56:13
You need to give it more time. 1.4 weeks is definetly not enough time. When I had bad response to abilify it took atleast 3 weeks.
Posted by Jeroen on November 27, 2004, at 10:18:26
In reply to Re: im thinking of WHY!, posted by Sebastian on November 27, 2004, at 10:16:43
hey i reacted bad to ABILIFY, i took it 15 days, i got side effects like IRITABILITY, ANXIETY, BLURRED VISION, EYES BLINKING, INSOMNIA
did i go away after 3 weeks? did you feel good on it?
Posted by Sebastian on November 27, 2004, at 10:54:00
In reply to Re: im thinking of WHY!, posted by Jeroen on November 27, 2004, at 10:18:26
Abilify made me feel like crap. It took 3 weeks of getting worse before I started getting better. I was switching right back to zyprexa.
Posted by Jeroen on November 27, 2004, at 11:47:14
In reply to Re: im thinking of WHY!, posted by Sebastian on November 27, 2004, at 10:54:00
sebastian, you still take 3.75 mg abilify ive read on this board am i correct?
have you tryed amentadine with zyprexa or nizatidine for the weight gain?
Posted by ed_uk on November 27, 2004, at 18:03:43
In reply to Re: A message for Jeroen » Jeroen, posted by ed_uk on November 26, 2004, at 15:25:01
Hello Jeroen,
I am really trying to help you. Please can you answer my questions which I posted above.
Regards,
Ed.
Posted by Jeroen on November 28, 2004, at 5:06:40
In reply to Re: Jeroen, posted by ed_uk on November 27, 2004, at 18:03:43
> Hello Jeroen,
>
> I am really trying to help you. Please can you answer my questions which I posted above.
>
> Regards,
> Ed.i dont know what my diagnosis is, i dont hear voices, i have this problem since i was 14 years old, so it could be schizoaffective or something like that i really dont know
Posted by ed_uk on November 28, 2004, at 7:30:04
In reply to Re: A message for Jeroen » Jeroen, posted by ed_uk on November 26, 2004, at 15:25:01
Hi Jeroen,
Please could you answer these questions. I know it is difficult for you to read because of your eyes. Perhaps you could ask a friend to help you.
Do you see a psychiatrist?
Was the Zyprexa prescribed for you or did you buy it online? The problem with Zyprexa is that it can actually cause tardive dyskinesia in rare cases. You need to discuss with a doctor whether it is advisable for you to continue the Zyprexa.
If antipsychotic medication is no longer needed, the best way to ensure improvement in tardive dyskinesia might be to stop all antipsychotic medication. If what you are experiencing is blepharospasm, several treatments are available as I mentioned earlier. Your neurologist can tell you more. It is very important that your neurologist knows that you were taking Geodon. He won't be able to diagnose you unless you tell him the truth. No one on psycho-babble can diagnose you with tardive dyskinesia, only a neurologist can tell you your diagnosis.
If you look up blepharospasm on Google you can read about the treatments which are available.
Best Wishes,
Ed.PS. I know you are frightened about what will happen to you. Please be truthful with your neurologist.
Posted by DanielJ on November 29, 2004, at 9:12:08
In reply to Re: A message for Jeroen, posted by ed_uk on November 28, 2004, at 7:30:04
I have had some terrible eye twitching problems in the distant past. These can also be caused by dietary deficiency but mine were linked to caffiene consumption. In those days when I wasn't drinking coffee I was having a Coke. I short just too much caffiene. When I cut back on caffiene, after a few weeks my problem gradually disappeared. Caffiene can also contribute to the intensity of twitching even though it isn't the initial cause.
Posted by Sebastian on November 29, 2004, at 20:36:02
In reply to Re: im thinking of WHY!, posted by Jeroen on November 27, 2004, at 11:47:14
No, I don't take the abilify any more. It was too much for me to stop one med that worked great and take a new one. I went back to the zyprexa, like I've been taking now for the most part of the last 7 years.
I responded so badly to the abilify that even after I stoped taking it and went back to zyprexa, it still took 3 weeks of getting worse feeling, and then I slow recoperation over about the next 2 months.
Some times the bad effects take a while to rub off.
Do you still take abilify? How long were you taking zyprexa before?
Posted by Sebastian on November 29, 2004, at 20:40:11
In reply to Re: Jeroen, posted by Jeroen on November 28, 2004, at 5:06:40
part of my getting better was changing my thinking back to the way it was before the bad experience. That and the right med that worked before. Confidance always wins.
Posted by Jeroen on November 30, 2004, at 6:37:49
In reply to Jeroen, posted by Sebastian on November 29, 2004, at 20:40:11
geodon is same chemical compounds as abilify ive read,, my body rejects both,, and the geodon did some perm damage to my eyes
Posted by Sebastian on November 30, 2004, at 21:32:10
In reply to Re: Jeroen, posted by Jeroen on November 30, 2004, at 6:37:49
Its deffinitly permanent? What does that mean, will you blink a lot for ever, never getting any better?
Posted by Jeroen on December 1, 2004, at 0:21:14
In reply to Re: Jeroen, posted by Sebastian on November 30, 2004, at 21:32:10
i dont know, i just went outside to store and bank, my eyes were blinking every second, they feel irritated
i already lost a good friend because of this condition
i am falling into depression
Posted by Sebastian on December 1, 2004, at 11:54:33
In reply to Re: Jeroen, posted by Jeroen on December 1, 2004, at 0:21:14
I wonder if the sedating effects of a drug like zyprexa, maybe in a higher dose, would help to relax some of the blinking? Then after taking it for a while maybe the blinking would get better, then you could ease off on the dose, for less weight gain, add some bupropion for the weight also. Initialy with out bupropion. Sounds like zyprexa is the right med for your condition. Do you also drink sugar free caffinated drinks, that help weight also.
With your blinking, is it so bad that you can not see? Are you able to work?
May also help to take an anti-depressant, SSRI, like celexa, which is weight nutral. I have also noticed how celexa helps make vision more pleasant with bright colors. Kind of makes you open your eyes. You could take as much as 80 mg. Personaly I take 60 mg. I've found that 10 mg zyprexa is a very good dose, not too sedating and not too weak. I'm also taking lamictal, which is pleasant for my moods.
Posted by Jeroen on December 1, 2004, at 12:02:29
In reply to Re: Jeroen, posted by Sebastian on December 1, 2004, at 11:54:33
today is exactly 2 weeks since i take zyprexa
my condition is worsened because of zyprexa, blinking all the time
Posted by ed_uk on December 1, 2004, at 12:27:31
In reply to Re: Jeroen, posted by Jeroen on December 1, 2004, at 12:02:29
Hello,
I am worried that you are taking Zyprexa. Zyprexa can cause tardive dyskinesia.
Ed.
Posted by Jeroen on December 1, 2004, at 12:30:22
In reply to Re: Jeroen, posted by ed_uk on December 1, 2004, at 12:27:31
too late, i think im already suffering from it caused by this drug www.geodon.com IT HAS DESTROYED MY LIFE!!! IM 20 YEARS OLD
i only took it 3 weeks enough for TD to be permanent
Posted by jujube on December 1, 2004, at 16:34:02
In reply to Re: Jeroen, posted by Jeroen on December 1, 2004, at 12:30:22
I am so sorry that you are having to go through this. Please don't give up, and never think that it is too late until you have exhausted all possible avenues.
I had read about a couple of natural supplements that may be useful in treating TD. You may want to discuss these with your doctor.
I am sorry that you are having to go through this. Please don't give up yet, and don't say it is too late until you have exhausted all possible avenues. I read recently that a couple of nutritional supplements (vitamins, etc.) can help with TD.
One is DMAE, which is said to, among other things, "exert favorable effects on those chronic Dyskinesias (including Tardive Dyskinesia) that occur as a result of long periods of use of Major Tranquilizers".
Another is Lecithin (phosphatidyl choline), but I am not sure what dosage would be effective.
Anyways, I hope you find something to help with the problem. Keep working with the doctors, and have faith.
Tamara
> too late, i think im already suffering from it caused by this drug www.geodon.com IT HAS DESTROYED MY LIFE!!! IM 20 YEARS OLD
>
> i only took it 3 weeks enough for TD to be permanent
Posted by Sebastian on December 1, 2004, at 19:21:36
In reply to Re: Jeroen, posted by Jeroen on December 1, 2004, at 12:30:22
Have you stoped taking all meds? That might be the best.
Posted by Jeroen on December 2, 2004, at 5:38:51
In reply to Re: Jeroen, posted by Sebastian on December 1, 2004, at 19:21:36
yes i stoped taking zyprexa yesterday, the thing is im suffering from a mental problem what if i never can take these drugs again?
Posted by Sebastian on December 2, 2004, at 12:11:46
In reply to Re: Jeroen, posted by Jeroen on December 2, 2004, at 5:38:51
How is the blinking since you stoped all APs? I think it would be unusual that all APs would have that affect. Unless its just that they make your eyes very sensitive to light? Maybe a drug like: Depakote or lamictal would work? They are not considered APs, but do a simalar effect, with moods, lamictal is saying it has shown affective with scitzoaffective disorder, bipolar, and epilepsy. Might be worth a try.
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Dr. Bob is Robert Hsiung, MD,
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