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Dr. Bob is Robert Hsiung, MD,
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Posted by kelly7707 on January 28, 2004, at 21:25:45
In reply to Re: Effexor Withdrawl-My description of the Hell » kelly7707, posted by micro on January 28, 2004, at 21:13:03
> > Hi. Yesterday I sat and read through a number of entries and found myself bawling at my computer. On top of how afraid I felt reading it all, I also found a bit of comfort in knowing that I was also not the only one. I am a university student, and dealing with this is close to impossible while trying to get anything done. My concentration is completely gone...I am finding that I am having close-to-panic attacks almost daily. The other day I was in one of my classes and the floor appeared to be uneven, and my heart started pounding and it took everything inside me to calm down and not pass out. I have made an appointment with my GP about the insomnia...but that is now only one of a number of things I need to bring up. I have been off of Effexor since before Christmas now...just before, so I am almost at 5 weeks, and this doesn't seem to be getting any better. Yes, some days are good, but it is always there to haunt you. Has anyone found any antidepressant that also helps with anxiety that didn't affect their sex drive? I tried Wellbutrin and that made me feel like I wanted to crawl out of my skin, and of all that I have tried, my GP said that would have been my best chance. Is there a drug out there that can counteract the sexual side effects that you can take while on an SSRI? I think this message board is really an amazing thing. I was deeply affected by what I read yesterday...and as scary as it is knowing that we all have to deal with this, it is a definate comfort to know that I am not losing my mind. It is so unreal how identical some of these entries are...how we are all really going through so much of the same thing. I can't believe how many people have to live their life like this...it is truly devestating.
> > Anyway, any comments?
>
>
> Hello,
> First, try to be positive. I know that this is alot to ask right now but, it will get better! Second, Please see a biopsychiatrist. Your Pcp is not Qualified to handle the difficulties which you are experiencing nor do they have an extensive background in psychotropic meds. Some Psychiatrists do not do well in rxing either!
>
> Usually, there is a med that will work without compromising your intimacy issues or a combination is possible.
>
> Third, Please purchase Jack Gorman's guide to psychiatric medicines. IT costs about 5 bucks and discusses sexual side effects and how to alleviate them. Sometimes with otc therapies.
> Best money you'll ever spend. Peace MicroThanks so much Micro...I appreciate you taking the time to respond, and I will definately check out that book.
Posted by Norma_B on January 28, 2004, at 21:26:06
In reply to Effexor withdrawal - very bad news, posted by janey on November 1, 1998, at 16:30:34
My Doctor gave me Samples of this drug Effexor Which I took for about a month and I went off last Thursday. He had written me a prescription for 3 more months, I didn't fill it because of cost, But anyhow, the last 5 days have been horrible, I thought I had a flu, then thought it was a problem with my ears causing this dizzyness, etc. Was even beginning to think my husband got life insurance for me and was trying to do me in. I decided to check the internet to see if this Effexor had withdrawl side effects and I see it does. I just want to know if there are any home remedies to help me throught this and how long is it expected to last? I have taken Tylenol, gravol, and even took Mersyndol last night. I'm so sick of feeling this rotten.
Posted by kelly7707 on January 28, 2004, at 21:30:26
In reply to Effexor withdrawal, posted by Norma_B on January 28, 2004, at 21:26:06
> My Doctor gave me Samples of this drug Effexor Which I took for about a month and I went off last Thursday. He had written me a prescription for 3 more months, I didn't fill it because of cost, But anyhow, the last 5 days have been horrible, I thought I had a flu, then thought it was a problem with my ears causing this dizzyness, etc. Was even beginning to think my husband got life insurance for me and was trying to do me in. I decided to check the internet to see if this Effexor had withdrawl side effects and I see it does. I just want to know if there are any home remedies to help me throught this and how long is it expected to last? I have taken Tylenol, gravol, and even took Mersyndol last night. I'm so sick of feeling this rotten.
Honestly, I slowly got off of it, and now am thinking I didn't go off slowly enough (was about a three week period) and have officially been off for about 6 weeks. I am still feeling the withdrawl...but you have to understand that I am a very sensitive person to drugs of all sorts. I don't know what else to tell you except that in time I am sure it gets better...my symptoms seem to stay for a week, and when that week is done, other ones arise...but I know this won't last forever...just hang in there...I know it's hard...I am dealing with it too, but I am finding this site very helpful. A lot of people recommend taking other things to help with the symptoms, but if you can stand it, just plug through it...that's what I have done at least...it can't last forever.
Posted by Vasterling on January 28, 2004, at 21:33:50
In reply to Effexor withdrawal, posted by Norma_B on January 28, 2004, at 21:26:06
> My Doctor gave me Samples of this drug Effexor Which I took for about a month and I went off last Thursday.
I just want to know if there are any home remedies to help me throught this and how long is it expected to last? I have taken Tylenol, gravol, and even took Mersyndol last night. I'm so sick of feeling this rotten.
When I went through the withdrawal, someone told me on the chat board that benadryl and dramamine would help. I took both of them and it helped tremendously with the dizzyness and nausea. I hope this helps and good luck.
Posted by Roomy on January 28, 2004, at 22:07:38
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by ann33 on January 28, 2004, at 17:01:27
ann, Yep, I was on effexor when I was pregnant. No doctors or studies showed too much information about it either way. I had an 11 yr old daughter and was not really planning on another baby when I got pregnant. We all thought it best to stay on the effexor during the pregnancy. My hubby said I was such a "good sport" during my 9 months. I do drink alot of beer and I do smoke ciggerettes. I gave it all up during those 9 months. The only thing I didnt give up was the Effexor. I had no problem giving up smokes, and no problem giving up the beer...the baby was fine...9 pounds 3 ounces and beautiful. I doubt that I could have done it without the effexor. Giving up the effexor,however has been rougher than quitting smoking, quitting the drinking, or pretty much anything else in my life I have ever done. I have been off it for like a month now, after being on it for 7 years, and the physical side effects are pretty much gone. THANK GOD!!!! I am now dealing with a "rush of emotion" is what I like to call it. 7 years with a lack of emotion, and now BAM all my emotions are pouring out. I can only hope its from the withdrawl. I hope and pray that its withdrawl. If it continues much longer, I will have to consider another anti-depressant, and that alone makes me depressed!!
Posted by kelly7707 on January 28, 2004, at 22:12:59
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by Roomy on January 28, 2004, at 22:07:38
> ann, Yep, I was on effexor when I was pregnant. No doctors or studies showed too much information about it either way. I had an 11 yr old daughter and was not really planning on another baby when I got pregnant. We all thought it best to stay on the effexor during the pregnancy. My hubby said I was such a "good sport" during my 9 months. I do drink alot of beer and I do smoke ciggerettes. I gave it all up during those 9 months. The only thing I didnt give up was the Effexor. I had no problem giving up smokes, and no problem giving up the beer...the baby was fine...9 pounds 3 ounces and beautiful. I doubt that I could have done it without the effexor. Giving up the effexor,however has been rougher than quitting smoking, quitting the drinking, or pretty much anything else in my life I have ever done. I have been off it for like a month now, after being on it for 7 years, and the physical side effects are pretty much gone. THANK GOD!!!! I am now dealing with a "rush of emotion" is what I like to call it. 7 years with a lack of emotion, and now BAM all my emotions are pouring out. I can only hope its from the withdrawl. I hope and pray that its withdrawl. If it continues much longer, I will have to consider another anti-depressant, and that alone makes me depressed!!
Roomy, that is EXACTLY what I am going through right now. I had an app with my GP this week and he has actually prescribed me Celexa, which I have been on before and I haven't started it yet...mainly because I have exams ( I am a university student ) and I remember how brutal those first few weeks are on these drugs...just can't deal with that right now...am dealing with the withdrawl a bit better these days...just the past FEW days...but ya...I went back to him because of exactly what you are contemplating...it's scary...and I don't want to have to be on anything anymore...esp cause of the sexual side effects...but sometimes, you think, what else is there for me to do???
Posted by Althea8869 on January 28, 2004, at 22:40:17
In reply to Re: Effexor withdrawal, posted by Vasterling on January 28, 2004, at 21:33:50
I have been following many of the different threads on this site and learned much from the posts - so first a quick thanks for the info. It is a strangely cathartic process to learn of other struggles that are indeed very similar to mine.
With regard to effexor I can tell you that its withdrawl is worse than any other drug that I have ever tried - in no small part because of its relatively short half life.
Here are some reccomendations that may help some of you - though make no mistake - the ride is extended and it is difficult - but is does end.
One excellent recommendation that was given to me was to reduce the effexor to a relatively low dose (rather quickly) and then introduce prozac(low dose) to the mix. Continue this for about two weeks and then dump the effexor rapidly (3 days) continuing with the prozac for another week and then titrate off the prozac quickly thereafter. At this point you may want to introduce low level benzo (klono works well) for another couple weeks. The idea here is simply to replace the Effexor with a similarly acting agent that has a very long half life(prozac) that makes for far less withdawl (in most). A few other suggestions: DHA from algea (aka neuromins) - laugh all you want those of you against "supplements", but the top pharmacologists at harvard, mit and Mass General believe this drug could well become the single most important "brain" supplement ever discovered. The research is out there (plenty of it in fact) you could call any one of a number of the doctors at Mass General Psychiatry and ask them for info. It is a specialized formation of the popular Omega 3 supplement, but is derived directly from algea using a very special patented technology. Almost all Omega 3 supplements come from fish oil. Getting it from algea improves its efficacy by as much as 500%. Another excellent supplement that is helpful is Inositol powder (must be pure).Hope all this helps. All i can tell you is that the withdrawl from Effexor @300mg per day was the single most awful experience of my life. It felt somtimes like my eyes and my head were completely disconnected - many of you know just what I am talking about. The "brain shocks" became almost constant during the first four or five days. But the bottom line here- and I hope you walk away with, if nothing else, this: its does end - though many of the symptoms you were talking the Effexor for may return, they are nothing in comparison to the protracted withrawl from effexor. There should be far more serious warnings about effexor withdrawl for those considering it - all this despite the fact that Effexor for many people proves very succussful.
Good luck to all of you and thank you again for your honesty.
Posted by Stryker88 on January 29, 2004, at 12:41:45
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by Roomy on January 28, 2004, at 22:07:38
I understand Benydryl may help with the withdrawl, but Benydryl makes you drowsy ( sleepy). In the middle of the day dont you feel too tired, and just want to sleep????
Posted by jasonr on January 29, 2004, at 12:52:50
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by Stryker88 on January 29, 2004, at 12:41:45
> I understand Benydryl may help with the withdrawl, but Benydryl makes you drowsy ( sleepy). In the middle of the day dont you feel too tired, and just want to sleep????
I told her I heard about this on here, and my p-doc said that the Benydryl helping with the withdrawl is a myth. She said that the only thing it would help with is what it says on the label, or as a placebo effect.
Just passing the info along.
Posted by Norma_B on January 29, 2004, at 14:11:26
In reply to Re: Effexor withdrawal, posted by Vasterling on January 28, 2004, at 21:33:50
I'm feeling not to bad today, it's by evening that I am feeling poorly. I asked my husband to dig me a hole so I could crawl in.Today I am able to function a little better than I did 2 days ago. As for getting these remedies, I can't get out because I live 20 miles away from a store and it's -40F. If I could get rid of this buzzy, dizzy feeling in my head i'd probably feel not to bad.
Posted by on-the-wave on January 29, 2004, at 15:16:05
In reply to Re: Effexor withdrawal, posted by Norma_B on January 29, 2004, at 14:11:26
Hi,
My story is that after 3 years at 300mg once a day, I reduced as follows:
2 weeks - 225mg
2 weeks - 150mg
2 weeks - 75mg
1 week - 37.5 mgI have been off altogether for 4 days.
The tapering process above was excellent compared to the stories on this site.
About 4 - 5 days after reducing the dose I would experience mild symptoms of anxiety, etc for 1 - 2 days.
Untill today all has gone very well. Today i experienced brain zaps every few seconds all day. I have also experienced a heightened emotional state for the last two days.
Other than the above, no other side effects yet. Is this going to get worse or better? I have had no recurrence of the depression or anxiety, although that was pretty much sorted out with therapy, etc.
Has any-one experienced total recovery from symptoms once quitting effexor, and if so, how long does it take.
Thanks
D
Posted by jeenobeano on January 29, 2004, at 15:29:37
In reply to Re: Quitting effexor-xr: my experience so far (300 » kelly7707, posted by jasonr on January 27, 2004, at 10:56:57
Just thought I'd chime in with my experience so far.
With my pdoc's blessing, I've been titrating down at a ridiculously slow pace, opening up the 75mg capsule and dumping out an additional 2 beads (every third day) or one bead (the other two days) every day. I've been doing this for about 1.5 months now and have managed to get myself off about 20% of the little beads. I'm totally fine about 90% of the time; the other 10% of the time I'm not fine and go thru mild-to-moderate versions of the symptoms described on this board. When that happens, I sit tight at the level I'm at and the feelings dissipate in about 2 days.
It's gonna take me a good 6 months to get off this stuff, at least, but I've tried to go from 75 to 37.5 before and it was too horrific to bear. Excruciating, excruciating. My itty-bitty daily reduction method might be too slow for people who need off NOW, but I figure I've got time. And I'm bad with pain. ;-)
Posted by baddog55 on January 29, 2004, at 22:35:38
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by jeenobeano on January 29, 2004, at 15:29:37
HI,
I am chiming in also. I totally agree with the fact that you need to wean SLOWLY from this drug. I am going even slower, starting at 75 mg for 2 years to 37.5 for a month, then to 18 3/4. I am splitting the capsules to do this and it's really very easy. I am at the 18 3/4 dose for a week now and I promise, the brain zaps are almost bearable. It think it helps if you know what they are and you are expecting them. I would be happy to share my process with anyone if it could help them get off this drug. I have found that patience is the key. good luck to us all!
> Just thought I'd chime in with my experience so far.
>
> With my pdoc's blessing, I've been titrating down at a ridiculously slow pace, opening up the 75mg capsule and dumping out an additional 2 beads (every third day) or one bead (the other two days) every day. I've been doing this for about 1.5 months now and have managed to get myself off about 20% of the little beads. I'm totally fine about 90% of the time; the other 10% of the time I'm not fine and go thru mild-to-moderate versions of the symptoms described on this board. When that happens, I sit tight at the level I'm at and the feelings dissipate in about 2 days.
>
> It's gonna take me a good 6 months to get off this stuff, at least, but I've tried to go from 75 to 37.5 before and it was too horrific to bear. Excruciating, excruciating. My itty-bitty daily reduction method might be too slow for people who need off NOW, but I figure I've got time. And I'm bad with pain. ;-)
Posted by Roomy on January 30, 2004, at 6:18:03
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by baddog55 on January 29, 2004, at 22:35:38
I apologize ahead of time for this lenghthy story but I need to share it to make myself feel better.
My sis-in-law, her hubby, and their two children lived only 1/2 hr away. Our girls are 4 months apart in age so they are close cousins and we all spend alot of time together. Boyde, a very kind man, hard worker, overly loud and friendly (after a few drinks esp,) became withdrawn, paranoid, and downright angry in only a few short months. His personality changed so much that he even told his wife to not leave him home alone with the kids for fear that he may harm them. Long story, short, he shot and killed himself one year ago. The family moved away so as to not live in the same house. Not too far away, so we still get together quite often. About 2-3 weeks ago, she came to me with a question. This was at the peak of my Effexor withdrawl. I had been on the drug for about 7 years. Her question to me was, "You have been on an anti-depressant, give me some advise as to which drug to get my son on. He has gone to a doctor and started up one but I want to know your opinion. Is it a good one?" I was afraid to ask. Yep! Effexor!!!! When I asked her WHY? Why Effexor of all the drugs out there? She told me that when the police gave her back all of Boyd's personal belongings about 6 months ago, after all the police investigations, one of the things they gave her was his partially used bottle of Effexor. She didnt even know he was on it. She doesnt know why the doctor would put her son on it, since it OBVIOUSLY didnt work for Boyd. My question is, WAS he taking it and stopped??? Was it the withdrawl that made him kill himself? It certainly explains the nightmares I have been having over and over. The same stupid voice, chanting and laughing "ya should have talked to him! ya should have talked to him!!! hahahahaha" <- thats just sick and wrong. The same voice. Any dream, every dream, the voice is always there and always says that same thing! It's making me lose my mind! Now I have to figure out a way to get my nephew off Effexor.
-I have been drug free for one month exactly. I feel better now. If the voice in my dreams would go away, I would be downright perfect!!!
-Thanks for reading along. I just had to vent this.
-Roomy
Posted by KimberlyDi on January 30, 2004, at 15:44:48
In reply to Effexor withdrawal, posted by Norma_B on January 28, 2004, at 21:26:06
Norma, it does get better. I'm now at around 2 weeks off Effexor (from a careful taper-down schedule) and except for a few twinges, I'm no longer sick or unable to function. However, my emotions are fluctuating wildly and I feel frustrated that I can't get a grip. Rebound depression is serious.
Hang in there. Best wishes.
KDi in TX> My Doctor gave me Samples of this drug Effexor Which I took for about a month and I went off last Thursday. He had written me a prescription for 3 more months, I didn't fill it because of cost, But anyhow, the last 5 days have been horrible, I thought I had a flu, then thought it was a problem with my ears causing this dizzyness, etc. Was even beginning to think my husband got life insurance for me and was trying to do me in. I decided to check the internet to see if this Effexor had withdrawl side effects and I see it does. I just want to know if there are any home remedies to help me throught this and how long is it expected to last? I have taken Tylenol, gravol, and even took Mersyndol last night. I'm so sick of feeling this rotten.
Posted by Norma_B on January 30, 2004, at 17:34:59
In reply to Re: Effexor withdrawal, posted by KimberlyDi on January 30, 2004, at 15:44:48
Well today was a bit better than yesterday. I managed to complete a project i've had sitting for many weeks, I even helped my husband make a closet today, but about mid afternoon I seem to go downhill, but I have to admit I feel better than I did a week ago. Is this feeling of sleepyness part of the withdrawl, and hot and cold flashes?
> Norma, it does get better. I'm now at around 2 weeks off Effexor (from a careful taper-down schedule) and except for a few twinges, I'm no longer sick or unable to function. However, my emotions are fluctuating wildly and I feel frustrated that I can't get a grip. Rebound depression is serious.
>
> Hang in there. Best wishes.
> KDi in TX
Posted by fayeroe on January 31, 2004, at 17:45:12
In reply to Sad story of Effexor gone wrong, posted by Roomy on January 30, 2004, at 6:18:03
> I apologize ahead of time for this lenghthy story but I need to share it to make myself feel better.
> My sis-in-law, her hubby, and their two children lived only 1/2 hr away. Our girls are 4 months apart in age so they are close cousins and we all spend alot of time together. Boyde, a very kind man, hard worker, overly loud and friendly (after a few drinks esp,) became withdrawn, paranoid, and downright angry in only a few short months. His personality changed so much that he even told his wife to not leave him home alone with the kids for fear that he may harm them. Long story, short, he shot and killed himself one year ago. The family moved away so as to not live in the same house. Not too far away, so we still get together quite often. About 2-3 weeks ago, she came to me with a question. This was at the peak of my Effexor withdrawl. I had been on the drug for about 7 years. Her question to me was, "You have been on an anti-depressant, give me some advise as to which drug to get my son on. He has gone to a doctor and started up one but I want to know your opinion. Is it a good one?" I was afraid to ask. Yep! Effexor!!!! When I asked her WHY? Why Effexor of all the drugs out there? She told me that when the police gave her back all of Boyd's personal belongings about 6 months ago, after all the police investigations, one of the things they gave her was his partially used bottle of Effexor. She didnt even know he was on it. She doesnt know why the doctor would put her son on it, since it OBVIOUSLY didnt work for Boyd. My question is, WAS he taking it and stopped??? Was it the withdrawl that made him kill himself? It certainly explains the nightmares I have been having over and over. The same stupid voice, chanting and laughing "ya should have talked to him! ya should have talked to him!!! hahahahaha" <- thats just sick and wrong. The same voice. Any dream, every dream, the voice is always there and always says that same thing! It's making me lose my mind! Now I have to figure out a way to get my nephew off Effexor.
> -I have been drug free for one month exactly. I feel better now. If the voice in my dreams would go away, I would be downright perfect!!!
> -Thanks for reading along. I just had to vent this.
> -RoomyRoomy, I don't know if your bro-in-law's suicide was caused by withdrawal from Effexor or not...but I do know that I think you are on the right track to try to get your nephew off of that drug. I took it and it almost killed me. I mean, I nearly died!!!
As for your guilty feelings about the suicide, I've had two people close to me kill themselves and there wasn't anything I could have done about it. I don't think that is possible, if the person is truly committed to ending their life. They will find a way to do that. Please don't feel that you are responsible. I hope the voices quit. I am thinking of you! Fayeroe
Posted by kelly7707 on February 1, 2004, at 12:21:34
In reply to Sad story of Effexor gone wrong, posted by Roomy on January 30, 2004, at 6:18:03
> I apologize ahead of time for this lenghthy story but I need to share it to make myself feel better.
> My sis-in-law, her hubby, and their two children lived only 1/2 hr away. Our girls are 4 months apart in age so they are close cousins and we all spend alot of time together. Boyde, a very kind man, hard worker, overly loud and friendly (after a few drinks esp,) became withdrawn, paranoid, and downright angry in only a few short months. His personality changed so much that he even told his wife to not leave him home alone with the kids for fear that he may harm them. Long story, short, he shot and killed himself one year ago. The family moved away so as to not live in the same house. Not too far away, so we still get together quite often. About 2-3 weeks ago, she came to me with a question. This was at the peak of my Effexor withdrawl. I had been on the drug for about 7 years. Her question to me was, "You have been on an anti-depressant, give me some advise as to which drug to get my son on. He has gone to a doctor and started up one but I want to know your opinion. Is it a good one?" I was afraid to ask. Yep! Effexor!!!! When I asked her WHY? Why Effexor of all the drugs out there? She told me that when the police gave her back all of Boyd's personal belongings about 6 months ago, after all the police investigations, one of the things they gave her was his partially used bottle of Effexor. She didnt even know he was on it. She doesnt know why the doctor would put her son on it, since it OBVIOUSLY didnt work for Boyd. My question is, WAS he taking it and stopped??? Was it the withdrawl that made him kill himself? It certainly explains the nightmares I have been having over and over. The same stupid voice, chanting and laughing "ya should have talked to him! ya should have talked to him!!! hahahahaha" <- thats just sick and wrong. The same voice. Any dream, every dream, the voice is always there and always says that same thing! It's making me lose my mind! Now I have to figure out a way to get my nephew off Effexor.
> -I have been drug free for one month exactly. I feel better now. If the voice in my dreams would go away, I would be downright perfect!!!
> -Thanks for reading along. I just had to vent this.
> -RoomyRoomy, I am at a loss for words, but feel I should at least tell you that my heart is out for you. That voice WILL go away, but maybe you need to talk to someone about how you are feeling about this...sort through the guilt you are feeling and then maybe that awful voice will go away. Like the other reply to your post said, you can't control someone attempting or going through with suicide...it is impossible to control everything...it was OUT of your control and you are not to blame. But I am sure I'd feel the same way. Like I said, I think you need to talk to someone and get some of it sorted out in your head. I am sure it helped bringing it up on here and venting it...but it might take more than that.
Good luck, and I am thinking of you too.
Kelly-effexor free for about 6 weeks.
Posted by fayeroe on February 1, 2004, at 12:32:23
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by baddog55 on January 29, 2004, at 22:35:38
We all talk about the brain zaps.....does anyone know what causes them? How is that happening? Here's where we need Larry Hoover....I absolutely hated them! It was a nightmare when they were really going at their strongest. I even wondered if the people around me could tell that I was being blindsided by my own brain! If you do know the "formula" of how they happen, please share.....I'm sure others would love to know also. Thanks, Pat
Posted by justjustine on February 1, 2004, at 14:27:34
In reply to Re: Quitting effexor-xr: my experience so far (300, posted by fayeroe on February 1, 2004, at 12:32:23
Lhermitte's sign "refers to a shock-like sensation that travels down your spine upon flexing the neck. It can arise in any disorder affecting cervical spinal cord, such as disc compression or even vitamin B12 deficiency." it also may be associated with MS.
i don't know if the two are related or not, but the Lhermitte's sign is usually provoked by stretching the neck. my zaps are NOT provoked by stretching. and well, right now i'm on vicodin and i'm not having any zaps at all... before i started on vicodin, i could only definitely produce zaps by moving my eyes rapidly from side to side.
i recommend searching with http://www.vivisimo.com i have found lots of information with their search engine. (sorry i closed the window i pulled that quote from!)
Posted by fayeroe on February 1, 2004, at 14:41:37
In reply to brain zaps - similarity to Lhermitte's sign, posted by justjustine on February 1, 2004, at 14:27:34
> Lhermitte's sign "refers to a shock-like sensation that travels down your spine upon flexing the neck. It can arise in any disorder affecting cervical spinal cord, such as disc compression or even vitamin B12 deficiency." it also may be associated with MS.
>
> i don't know if the two are related or not, but the Lhermitte's sign is usually provoked by stretching the neck. my zaps are NOT provoked by stretching. and well, right now i'm on vicodin and i'm not having any zaps at all... before i started on vicodin, i could only definitely produce zaps by moving my eyes rapidly from side to side.
>
> i recommend searching with http://www.vivisimo.com i have found lots of information with their search engine. (sorry i closed the window i pulled that quote from!)
Mine weren't provoked by stretching my neck either. They were there most of the time, especially when I first reduced the size of my Effexor dosage. I had a friend who went off another AD and she was the one that alerted me to them.......Thanks for the info!!!
Posted by justjustine on February 1, 2004, at 14:59:51
In reply to Re: brain zaps - similarity to Lhermitte's sign » justjustine, posted by fayeroe on February 1, 2004, at 14:41:37
http://www.myelitis.org/tm.htm
one symptom they list here that i definitely have is the "tight banding or girdle-like sensation around the trunk and that area may be very sensitive to touch." has anyone else experienced that? i had to wear long, waistless dresses for several days it was so bad. still bugs me - i had thought it was just part of my general gastrointestinal distress?
but other symptoms don't correlate so well. okay, i need a break from this! it's too scary if i let it get to me and it shouldn't be because i'm getting better!
Posted by justjustine on February 1, 2004, at 15:16:38
In reply to more disturbing similarities to bad things, posted by justjustine on February 1, 2004, at 14:59:51
and considering that effexor has been promoted as effective for neuropathy in diabetes
http://www.findarticles.com/cf_dls/m0CUH/11_23/67340205/p1/article.jhtml
and cancer
http://www.cancersupportivecare.com/neuropathy.htmlhow surprising is it that a drug with such effective pain-relieving qualities seems to cause severe withdrawals in some patients?
Posted by Virginia NP on February 3, 2004, at 10:05:20
In reply to Re: Effexor withdrawal, posted by Norma_B on January 30, 2004, at 17:34:59
I entered here to find a solution for myself as well as my patients. Thank you ALL for the education from the patient perspective. I feel so fortunate that my own withdrawal has been minor in comparison to so many. I have only experienced the sort of "migraine without pain" that several have described. I was on a 75mg XR maintenance dose for 4 years. My tapering began with a 75 mg capsule every other day for a week. I followed this with roughly 32.5 mg for a week. The symptoms were fairly mild and were experienced briefly the morning I was due for a dose. MOST helpful has been the 20mg of fluoxetine (Prozac) for 2-3 days until symptoms abate. I found this tip from another clinician posting on this site. I needed just one dose, however & feel GREAT now.
Just wanted to post a positive----Good luck to everyone finding resolution to your withdrawal.> Well today was a bit better than yesterday. I managed to complete a project i've had sitting for many weeks, I even helped my husband make a closet today, but about mid afternoon I seem to go downhill, but I have to admit I feel better than I did a week ago. Is this feeling of sleepyness part of the withdrawl, and hot and cold flashes?
>
>
> > Norma, it does get better. I'm now at around 2 weeks off Effexor (from a careful taper-down schedule) and except for a few twinges, I'm no longer sick or unable to function. However, my emotions are fluctuating wildly and I feel frustrated that I can't get a grip. Rebound depression is serious.
> >
> > Hang in there. Best wishes.
> > KDi in TX
>
Posted by shadows721 on February 3, 2004, at 23:11:28
In reply to Sad story of Effexor gone wrong, posted by Roomy on January 30, 2004, at 6:18:03
I am so sad for your loss. I haven't withdrawn from Effexor, but I have from Klonopin. It was Hell on Earth. I became suicidal and homicidal. So, I could understand if this fine man became suicidal from withdrawing too fast from this powerful medication. The fact remains; no one knows the real reason for his feelings or why he was suffering.
Please don't blame yourself for this. Surely, there were things that you may have not known about this man. This may have had nothing to do with the Effexor. It may have been about a situation he felt he no longer deal with in his life. Further, even if you told him what you know, he may not have listened to you.
The truth is that blaming yourself will not bring him back. Certainly, he would not want you to torture yourself by taking the blame for something you had nothing to do with in his life. Presently, you can use your power to empower others with knowledge about this medication.
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