Psycho-Babble Medication Thread 13781

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Re: Going off, have some questions........ Please Help

Posted by sweetpeamom on January 12, 2003, at 20:13:37

In reply to Re: Going off, have some questions........ Please Help, posted by CJo on January 12, 2003, at 12:17:03

I'm currently going off of Effexor, and I feel like CRAP! A nurse at my doc's office had the nerve to tell me that I'm not having withdrawals from going off! I wish I had some words of hope for all of you enduring this experience, too. I guess its just a matter of time and patience. You are not alone. Hang in there. I'll be praying for all of you.

 

Re: Going off, have some questions........ Please

Posted by charlie mac on January 12, 2003, at 20:40:07

In reply to Re: Going off, have some questions........ Please Help, posted by sweetpeamom on January 12, 2003, at 20:13:37

> I'm currently going off of Effexor, and I feel like CRAP!

is this what i have to look forward to? are there any people out there that have not had a bad time getting off effexor? lovely. cause i need and want more problems...

 

Re: i'm not sure how i feel » TLove

Posted by LynnPerley on January 12, 2003, at 21:58:45

In reply to i'm not sure how i feel, posted by TLove on January 9, 2003, at 11:54:34

I agree with the others. It took me 6 mos to really feel good. I also needed a higher dose. They say the typical maintenance dose is 150 mg. I settled in at 225 mg. I still have down days, but the downs aren't as extreme, and my family has really noticed a difference. Ask your doc, and good luck.

 

Re: Going off, have some questions........ Please Help » CJo

Posted by M. Lee on January 13, 2003, at 10:18:36

In reply to Re: Going off, have some questions........ Please Help, posted by CJo on January 12, 2003, at 12:17:03

Hi,

I posted a message about a bad experience that I had going off my meds. I was taking a rather high dose (300mg) and stopped cold. If I had to do it again, I would go off much more slowly. Something like reducing 75mg per week.

> Well, a psychiatrist is almost completely out of the picture... the pdocs around here don't have ANY appointments till late March, early April... I can't wait that long. I would get the 75-37.5 but, I am so scared of the withdrawl... I cannot afford to miss 1 more day of work and I know I will if I have withdrawl.
>

I suspect that I would not have had such a downturn, if I had done it slowly.

As far as appointments go. Tell them it is an emergency. That you really need to see someone right away. (and don't feel guilty about saying that, it really _is_ true)
After going off my meds the doctor told me that I should never hesitate to call in a situation like that. My reluctance to call caused me to go through a worse time. If I had only explained what was going on they could have helped me.

 

Re: Going off, have some questions........ Please Help » CJo

Posted by M. Lee on January 13, 2003, at 10:27:14

In reply to Going off, have some questions........ Please Help, posted by CJo on January 11, 2003, at 12:36:00

> I have been on Effexor XR 150mg for about 3 months. I have such a hard time waking up in the morning that I've even missed several days of work and now my job may be in jeopardy. I have to at least lower my dosage, or try to get off of it. Since I have the capsules, can i just take one pellet out each day... and do it like that... like 1 today... 2 tomorrow... 3 next, etc. I am really scared to go off... I felt what the brain shivers were like when I had missed a few doses before.... I don't want to go thru that, I could BARELY function... walking into walls... Please, I really need someone to see me thru this, and I really need some advice on going off... talking to my doc (fam doc btw) isnt an option... I dont think he knows anything about this DRUG. Thank all of u again who had to go thru this already and have posted... you are all my heros :-)
>

I had been having some trouble with sleep. The doc added 15mg Remeron to the Effexor. I take the Effexor XR in the morning, and then the Remeron at bedtime. I sleep much better. About an hour after taking it I get very sleepy, and wake up feeling rested the next day.

Let me know how things go for you. Whatever you decide, I hope you feel better.

Feel free to ask me any other questions.

 

Re: Going off, have some questions........ Please

Posted by M. Lee on January 13, 2003, at 10:42:21

In reply to Re: Going off, have some questions........ Please , posted by charlie mac on January 12, 2003, at 20:40:07

> > I'm currently going off of Effexor, and I feel like CRAP!
>
> is this what i have to look forward to? are there any people out there that have not had a bad time getting off effexor? lovely. cause i need and want more problems...
>
>

I'm curious about that also. I know that I felt awfull, but I also realize that I went off the Effexor the wrong way - I stopped taking it too fast. I really believe that if I had done it slowly it would not have been so bad. Has anyone gone off it slowly and not had difficulty?

And as a postscript to my earlier post (about going off the meds cold turkey and having such a hard time)
I am now back on Effxor, and after going to a higher dose I am feeling much better. It is a really dramatic improvement.

 

Re: Going off, have some questions........ Please

Posted by Joel Maxuel on January 13, 2003, at 12:13:08

In reply to Re: Going off, have some questions........ Please, posted by M. Lee on January 13, 2003, at 10:42:21

> > > I'm currently going off of Effexor, and I feel like CRAP!
> >
> > is this what i have to look forward to? are there any people out there that have not had a bad time getting off effexor? lovely. cause i need and want more problems...
> >
> >
>
> I'm curious about that also. I know that I felt awfull, but I also realize that I went off the Effexor the wrong way - I stopped taking it too fast. I really believe that if I had done it slowly it would not have been so bad. Has anyone gone off it slowly and not had difficulty?

I went cold turkey yesterday, and this is day two, and i still don't feel any side-effects. If anything, I'm sleeping less now (waking up at 13:00 instead of 16:00), but thats just a day's difference. I have no idea what will happen next. I had a small headache about half an hour ago, but that was probably just mind over matter.

Something tells me that my body never ever absorbed this darn stuff anyways. If my body didn't absorb this, what is the possibility that my body didn't absorb any of my other meds? I'll keep you posted. Btw, i was on effexor XR 225mg before i went cold turkey.

--
Joel Maxuel
ShamelessPlug(http://www.maxuel.ca);

 

Re: Effexor and appeitite/weight loss

Posted by lam on January 13, 2003, at 13:19:48

In reply to Re: Effexor and appeitite/weight loss, posted by lucky on January 12, 2003, at 1:13:51

I have been on effexor xr 225 for about 2 months, my appetite seems to grow each day. Though one of my depression symtoms is to eat, and I am beginning to feel as if the effexor is no longer working. Has anyone been on a higher dosage than 225? I started out at 37.5 then went to 75 then 150 and now 225 in the period of 4 months. I am so tired and late any motivation. Help !!!!!!

 

Re: Going off, have some questions........ Please

Posted by lam on January 13, 2003, at 13:34:45

In reply to Re: Going off, have some questions........ Please, posted by M. Lee on January 13, 2003, at 10:42:21

How long were you on Effexor? And at what dosage?And what dosage are you currently taking? What made you deceide to go back on?
Sorry about all the questions, I am just looking for some answers myself. I am not sure if I should go off and try something else besides effexor. And after reading about what some people have gone through, it sounds a little scary.

 

Re: nerve zapping or OTHER SYMPTOMS?

Posted by lam on January 13, 2003, at 13:57:12

In reply to Re: nerve zapping or OTHER SYMPTOMS?, posted by Dysfunk on January 3, 2003, at 14:26:29

How about waking up several times during the night to find your hands asleep and not only tingling but also swollen and very painful (and you have not been laying on them). It usually takes a good ten minutes before they feel half way normal again and it's just close to normal. The first night it happened it scared me to death because I didn't know what was happening and I couldn't feel my hands. Now it happens every night( a few times a night) and my hands don't quite feel right during the day anymore. Have you ever experienced this or heard of anyone who has? My PD
doesn't think its anything to worry about but also told me that perspiring also had nothing to do with the effexor.

 

Re: Going off, have some questions........ Please » lam

Posted by M. Lee on January 13, 2003, at 14:19:40

In reply to Re: Going off, have some questions........ Please, posted by lam on January 13, 2003, at 13:34:45

> How long were you on Effexor? And at what dosage?And what dosage are you currently taking? What made you deceide to go back on?
> Sorry about all the questions, I am just looking for some answers myself. I am not sure if I should go off and try something else besides effexor. And after reading about what some people have gone through, it sounds a little scary.

I had been taking Effexor for a number of years, and it was working very well for me. When I went off it I was taking 300mg Effexor XR.

The only reason that I went off it was that my insurance ran out. I didn't know at the time that there were alternatives to get medication for people who don't have insurance. I found a program where I could get treatment, and started back on the Effexor. I slowly worked back to 300mg, which is what I am taking now. It is working very well for me.

If I had to do it all over, I would have asked my doc about different options. I probably could have gotten into this program sooner, or at the very least he could have helped me get off the meds slowly.

Even though I had a bad experience going off the Effexor, I went back on it. I believe that the difficulty that I had was do to going off the meds too fast. I think that if I had done it slowly I would have been fine. Does that answer your questions? Feel free to ask, if there is anything else you think of.

 

M.Lee thaks for info, I have a few more questions

Posted by lam on January 13, 2003, at 17:28:15

In reply to Re: Going off, have some questions........ Please » lam, posted by M. Lee on January 13, 2003, at 14:19:40

I was considering going off Effexor because I thought my PD told me I was taking the highest dose of Effexor.
But if I am able to try a higher dose I would rather do that first before moving on to find a new med.
How did you get to 300? And how long have you taken 300?
I hope you don't mind my asking.

Thanks again

 

Re: M.Lee thaks for info, I have a few more questions » lam

Posted by M. Lee on January 13, 2003, at 21:59:17

In reply to M.Lee thaks for info, I have a few more questions, posted by lam on January 13, 2003, at 17:28:15

> I was considering going off Effexor because I thought my PD told me I was taking the highest dose of Effexor.
> But if I am able to try a higher dose I would rather do that first before moving on to find a new med.
> How did you get to 300? And how long have you taken 300?
> I hope you don't mind my asking.
>

I went in to see the nurse prescriber on Dec. 18. She was a bit reluctant to go over 225, until I told her that I had already been on 300 once before with no side effects. She did have to consult with one of the doctors and have them "sign-off on it" before writing the 'scrip.

I've had chronic depression for a number of years, but recently it got much worse. A few months ago I was badly injured in a fall. Several weeks after the accident I started to show signs of post traumatic stress.

The other time that I was at 300 was about two years ago. My doctor (at the time) had a bit of a reputation for prescribing "aggressively." Which was not a bad thing for me. I had not showed much improvement at the lower dosage. I was in bad situation with work, and as it got worse - so did the depression. Going to the higher dose of Effexor helped a lot, but in retrospect, I just really needed to get out of the workplace that was causing the stress.

I'm not sure how long you've been on anti-depressants... When I first started taking medication it took a while for me to notice the postive effect that it was having. For the first few months my friends noticed a difference, even though I didn't feel it yet. It's frustrating when you don't feel the progress.

Try explaining your concerns the next time you visit with the PD. Ask about the options. Maybe adding a small amount of another med would help. Maybe there is something else to try.

I don't mind the questions at all. I hope it helps. Let me know how you make out.

 

Re: Going off, have some questions........ Please Help

Posted by syringachalet on January 13, 2003, at 23:35:18

In reply to Re: Going off, have some questions........ Please Help » CJo, posted by M. Lee on January 13, 2003, at 10:18:36

I agree with all those that have posted before me on just calling in and telling them that you have a serious medical problem.
Tell them you would not only not be very productive if you came and tried to work but depending on your job, it could cause an unsafe work environment for your employer and other to be around until you are feeling better.

As I do not know if you resident in the USA, I know that the ADA(Americans with Disabilities Act) covers any employer that hires more than 50 people. It states that not only can your employer not ask your disability upon hire but they can not require you to explain why you need some medically necessary time off...

I also dont know if you can get into see even a nurse practioner/MD at a free clinic to validate this if your employer pushes it...

This is a tough place to be..my thought are with you.. keep us posted in how this works out..

syringachalet

 

Re: Going off, have some questions........ Please Help

Posted by Dysfunk on January 14, 2003, at 9:42:40

In reply to Re: Going off, have some questions........ Please Help, posted by sweetpeamom on January 12, 2003, at 20:13:37

I am going off Effexor too and feel so sick! It diminishes in about a week, then I drop more mgs. and the symptoms come back. GO SLOWLY is my only advice. My symptoms going off:

nightmares
nightsweats
stomach queaziness
body aches
Severe back ache - which my dr tries to say is not related, but it is.

Good luck. The symptoms do pass.

 

Re: Going off, have some questions........ Please Help

Posted by cjo on January 14, 2003, at 12:32:23

In reply to Re: Going off, have some questions........ Please Help, posted by Dysfunk on January 14, 2003, at 9:42:40

Alright, here's the deal... I called my fam doc and we are just going to at least take it down to 75mgs to see how it goes. Boy, am I looking forward to the withdrawl (NOT!!). We'll see how it works... I have noticed that the sleepines only got worse as the dosage rised. And I definately noticed it working at the 75mgs, before I raised it. Wish me luck! And good luck to all of you that are going thru it too, or eventually have to... if ANYONE ever needs someone to talk to... give me a buzz.. my aol im is CrystalAss1979 and my yahoo im is oo_drinkinpro_oo. Seriously thank you guys so much for being here for me.... I'll let you know how everything works out.. and I'll post the withdrawl symptoms too..... Thank You!!!!

Crystal

 

Re: Effexor xr and alcohol

Posted by lam on January 14, 2003, at 14:20:21

In reply to Re: Anyone had success on Effexor XR? , posted by lucky on January 12, 2003, at 1:18:12

Have you heard anyone else say that they feel Effexor can be diluted by alcohol?
I'm wondering if that may be effecting me.
Please let me know.

 

Re: Effexor xr and alcohol

Posted by catri on January 14, 2003, at 15:55:51

In reply to Re: Effexor xr and alcohol, posted by lam on January 14, 2003, at 14:20:21

Hiya, I was thinking that myself when over the Christmas period I began drinking a few glasses of wine a night, and noticed that the effects were getting 'diluted' - its good to know that it isn't just me! I'm trying to stay away from the old vino now though. And also, I have noticed that in the mornings I get those 'head zaps' when I turn my head too quickly...they're pretty weird, but not as much as the weird dreams..still this drug is going very well (I'm on the XR stuff at 75mg) compared with the Prozac that I was on.....

 

I'm trying to figure this one out......

Posted by Joel Maxuel on January 14, 2003, at 18:57:32

In reply to Re: Going off, have some questions........ Please Help, posted by cjo on January 14, 2003, at 12:32:23

I don't get it. I went from 225mg to zip 3 or 4 days ago, was all prepared for the side effects, and experienced NOTHING! The only thing that has changed is that I'm sleeping less, which is a good thing since I've been sleeping for AT LEAST 12 hours a day. Am I the only one out there that had no side effects even going cold turkey? Does AD poop out have something to do with it? What would be the chance that my body never absorbed those capsules, or that it never done anything if it was absorbed? Or another possibility, could the St. Johns Wort tea have something to do with it? I'm trying to remeber back last year when I went off Paxil. I never got zaps, that I do know. But I wonder if I had no effects (except for that psychotic break that i "supposbaly" had about a week after i stopped the Paxil altogether) at all.

That would be another argument on why AD's don't work....

--
Joel Maxuel
ShamelessPlug(http://www.maxuel.ca);

 

Re: I'm trying to figure this one out......

Posted by Dysfunk on January 14, 2003, at 20:19:14

In reply to I'm trying to figure this one out......, posted by Joel Maxuel on January 14, 2003, at 18:57:32

Maybe you were lucky to not have side effects. I have a family member on the same medication as I who isn't experiencing side effects and I am. Who knows for sure how our brains respond to these medicines?

 

Re: nerve zapping or OTHER SYMPTOMS?

Posted by disney4 on January 14, 2003, at 21:34:04

In reply to Re: nerve zapping or OTHER SYMPTOMS?, posted by lam on January 13, 2003, at 13:57:12

I have had my hands fall asleep at night a lot too. This was way before I tried the effexor. My fingers felt numb during the day at times, but now everything is back to normal. I don't think it was medication related. I hope it was just a phase.

 

Re: Effexor xr and alcohol

Posted by syringachalet on January 14, 2003, at 22:30:27

In reply to Re: Effexor xr and alcohol, posted by catri on January 14, 2003, at 15:55:51

hello catri,

I was on Effexor for about six months and I learned that for me I needed to adjust the times I took my meds, esp my psych meds....

If I had a chance to go out with frineds and have a nice dinner and ONE glass of wine, I took my Effexor(and all my other meds the next morning).
I have continued to do this through my 18 months of Celexa and now when Im on Lexapro.

I have been on psych meds intermittently for the past 20 years and I have learned that my meds are just a very small piece of my life and nothing is engraved in granite for me...
that the secret to compliance is convience...
so I set my med cassette next to my toothbrush in the bathroom and take those meds that next morning when Im already at the sink brushing my teeth....

You got to figure out what works for you...just know. Just knowing that you have some options can make your life a little nicer and managable all I know is it works for me...

syringachalet

 

Re: I'm trying to figure this one out...... » Dysfunk

Posted by EGR on January 14, 2003, at 22:37:16

In reply to Re: I'm trying to figure this one out......, posted by Dysfunk on January 14, 2003, at 20:19:14

> Who knows for sure how our brains respond to these medicines?

You know, that's MY question. Who really does know? Who came up with this "Seratonin re-uptake idea"? How did they ever "see" that was happening... how do they "know" that's our problem, and how do they "invent" these drugs? Why do some work for some people, but not others? Why do some of us have certain side effects, and others completely different ones?


 

Re: Monthly Positive Update

Posted by h20surfer1 on January 14, 2003, at 22:40:38

In reply to Re: Monthly Positive Update, posted by disney4 on January 11, 2003, at 11:30:03

Hi Elsie,

Sorry, I don't come back here often, just happened to make a quick check.

To answer your question on Libido. Effexor wiped out my libido for 3 months. I went to Zero. It slowly came back with time. I was put on Remeron to help in this area (Remeron has little to no side effects and works on a different group of Seretonin Receptors which is believed to help in Libido). Remeron also works on GAD as does Effexor.

After seven months I have 90% of my Libido back. Most importantly, I do not suffer from depression or GAD anymore! Well worth the initial side effects.

As far as going off the AD's is concerned, my belief is that if they are working, why go off of them and go back to where you were?? If your doc recommends continuing them indefinitely then I would do it (I know I will).

Good Luck!

 

Re: Monthly Positive Update

Posted by syringachalet on January 14, 2003, at 22:46:53

In reply to Re: Monthly Positive Update, posted by h20surfer1 on January 14, 2003, at 22:40:38

h20surfer1,

I am happy for you that you have found a combo that helps you feel better and takes care of the labido issue.

I just hope that it lasts for a long time ..
you deserve a smoother ride for awhile...

catch the wave...LMAO

syringachalet


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