Posted by the kindling effect on February 12, 2006, at 17:00:26
In reply to Akathisia » the kindling effect, posted by ed_uk on February 12, 2006, at 15:42:45
> Hi Dave
>
> It must be very difficult for you to post here. Thinking back to my brief experience with acute akathisia I couldn't even be still for a second. Everything was impossible, I wouldn't have been able to make a 20 second phone call never mind write a post on babble. Acute akathisia was an experience of complete helplessness, torture really. Every minute felt like an hour. I thought it would never stop. Textbook descriptions of akathisia are usually very poor. They're just not vivid enough. They make it sound so trivial.It's just nice to have someone who even understands. So many people have never heard of it or just don't get it. It's so difficult to explain. There are times when I can't move (curled in ball) fromthe intensity and other times when I can hardly move and am so s-lo-w and think how can I possibly have akathisia? during the afternoon dip wiht or without dysphoria. Sometimes I can't get up out of a carseat if it's mid afternoon. It;s like Parkinson's without the stiffness? The message from my brain to body doesn't compute,body's too lazy. After light exercise is similar drop to dyshphoria, seconds hours, can't move, flatness and by next day you pay severly agiatated constant pacing/fast walking around the house with legs AND arms vibrating, that buzzing at the base of spine and buttocks. Helpess yeah. You're too busy in hell to notice.
>
> >If I recall it has 5HT2 antagonism and also benefits sleep architecutre.I'd probably try even lower perhaps. I know the higher doses NE kicks in and akathisia can be an issue.
>
> That's right. Low doses may be beneficial for acute AP-induced akathisia.
I'll try anything, especially if it's not so depression inducing as some of these meds.
>
> Which med will you try next Dave?-I'd ideally like to see this doctor at Harvard, let him/her review my notes/med trials and go from there. Fenix if you're out there please provide me with contact info. My babblemail is on.well I desperately need a doctor to prescribe first. Ontario,Canada has a shortage and the last two gave up and said go to Boston. Family doc will only fill my lorazepam and propranolol. Funny reading about benzo-phobe docs here; docs I meet say don't worry, up to 10 mgs is okay. How muchdo you need? Here's 6 months,good luck. You want tons of sub-linguals too? I'm sorry I can't help more. Try Boston.
Any suggestions for doctors are welcome. My parents are even urging me to return to Brasil where I still have some contacts and the private system is more affordable than the US. It;s so difficult to think straight with this rushed ,restlessness inside. It's like the outside world doesn't exist, just too wrapped up in this feeling to notice. You've gotta b*llshit yourself a lot to keep going.
thank you for your time and patience Ed. Please keep me updated of anything you come acrross.
I feel so selfish. Like the type of person who only talk s about themself. It's become difficult to concentrate and have an actual physical concentration at times. It's hard to care anymore. Docs warned my parents about caregiver burnout. It's like i'm just spewing energy at times but you can;t harness it. I can't get away from myself. And fighting it can be worse still.
thanks again. DAVE
poster:the kindling effect
thread:604046
URL: http://www.dr-bob.org/babble/20060212/msgs/609006.html