Posted by utopizen on September 10, 2003, at 13:44:13
In reply to Re: What is Xyrem? » femlite, posted by Ame Sans Vie on September 10, 2003, at 12:07:17
For those of you not willing to risk your lives over a medicine, I suggest avoiding GLB at all costs-- including the cost of paying for Xyrem out-of-pocket.
My insurance will pay for Xyrem for anything, and many will. Some have to receive a request from the doctor, and generally it's just a matter of paperwork (sometimes involving "appeals"-- which just means re-submtiting the same thing until they're annoyed enough times they approve you!!)
No insurance has a fixed policy against covering anything. If your doctor sends them enough documentation and appeals, they'll eventually cave in.
And I got the packet from Ovation that they give for Physicians. It includes information for detecting cataplexy, and how to discern it from patients who feign it.
You don't need to wait for fibro to be approved by the FDA, I was on the phone with Xyrem for 1/2 hour talking nothing but off-label uses, much more obscure ones than fibro. The pharmacist says they get requests for medical info by doctors interested in novel applications all the time.
It may be a few hundred a week, but GLB-- that may be deadly.
poster:utopizen
thread:258494
URL: http://www.dr-bob.org/babble/20030907/msgs/258771.html