Posted by Lorraine on April 11, 2002, at 21:59:25
In reply to Re: Rule out Lyme disease please! » Lorraine, posted by shelliR on April 11, 2002, at 12:39:08
Shelli! Nice to hear from you again. Lyme disease is a bacteria transmitted by ticks (you know this)--I've probably had it for 8 years. Anyway, you see a Lyme Literate MD (someone who just does Lyme). The guy I am going to see is the son of the man who owns one of the highly regarded specialty labs that tests for lyme and he also had lyme himself. This person will work with my MD to help me treat it--I suspect that it will mean intravenous antibiotics for a period of time 6 weeks or more, then oral antibiotics for another period (maybe life). I was never tested for it before. But after the chronic fatigue diagnoses (which basically just said "you have a ton of viruses out of control in your body and your immune system sucks", I asked my doctor if we had ruled out Lyme. So she ran the test and called with the results. I meet with the specialist on the 26th.
It mimics lots of mental illness so especially for those who are treatment resistant and not childhood onset really ought to be ruled out. Here on the west coast, there is not a lot of awareness about Lyme. Thank-you for your kind words of encouragement. I think all of us on this board (and I know you in particular) have a lot of endurance.
I'll keep you posted.
Lorraine
> Lorraine,
>
> I was just thinking about you and hoping that you were maintaining your progress on provigal. I am sorry about the lyme disease diagnosis: that it wasn't brought up before. Are you treating it like
> other immune disorders, or is the treatment entirely different?
>
> I truely believe you have both the resiliency and support to beat this.
>
> Best wishes (I was just telling someone about our thread: you and I and Elizabeth's that went on for months and felt like a private thread in public). And gave us a bond.
>
> Shelli
poster:Lorraine
thread:102535
URL: http://www.dr-bob.org/babble/20020408/msgs/102820.html